Existing Data Sources in Clinical Epidemiology: Laboratory Information System Databases in Denmark

Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of La...

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Published inClinical epidemiology Vol. 12; pp. 469 - 475
Main Authors Arendt, Johan Frederik Håkonsen, Hansen, Anette Tarp, Ladefoged, Søren Andreas, Sørensen, Henrik Toft, Pedersen, Lars, Adelborg, Kasper
Format Journal Article
LanguageEnglish
Published Macclesfield Dove Medical Press Limited 01.01.2020
Taylor & Francis Ltd
Dove
Dove Medical Press
Subjects
Biological markers
Biomarkers
Biomedical laboratories
Blood groups
Clinical medicine
Codes
Data collection
data resource
Epidemiology
General practitioners
Hospitals
Information systems
laboratory information systems
Medical laboratories
Online databases
Population
Quality standards
Researchers
Review
Thyroid gland
Time
Urine
User interface
Denmark
Aarhus Denmark
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Abstract Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries. Keywords: biomarkers, database, data resource, laboratory information systems
AbstractList Johan Frederik Håkonsen Arendt,1,2 Anette Tarp Hansen,1,3 Søren Andreas Ladefoged,2 Henrik Toft Sørensen,1 Lars Pedersen,1 Kasper Adelborg1,2 1Department of Clinical Epidemiology, Aarhus University Hospital, Aarhus, Denmark; 2Department of Clinical Biochemistry, Aarhus University Hospital, Aarhus, Denmark; 3Department of Clinical Biochemistry, Aalborg University Hospital, Aalborg, DenmarkCorrespondence: Johan Frederik Håkonsen ArendtDepartment of Clinical Epidemiology, Aarhus University Hospital, Olof Palmes Allé 43-45, Aarhus N 8200, DenmarkTel +45 87 16 80 63Fax +45 87 16 72 15Email jfba@clin.au.dkAbstract: Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries.Keywords: biomarkers, database, data resource, laboratory information systems
Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries.Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries.
Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries.
Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers through access to the regional Clinical Laboratory Information System Research Database at Aarhus University and the nationwide Register of Laboratory Results for Research. This review describes these two data sources. The laboratory databases have different geographical and temporal coverage. They both include individual-level biomarker results that are electronically transferred from laboratory information systems. The biomarker results can be linked to all other Danish registries at the individual level, using the unique identifier, the CPR number. The databases include variables such as the CPR number, date and time (hour and minute) of sampling, NPU code, and name of the biomarker, identification code for the laboratory and the requisitioner, the test result with the corresponding unit, and the lower and upper reference limits. Access to the two databases differs since they are hosted by two different institutions. Data cannot be transferred outside Denmark, and direct access is provided only to Danish institutions. It is concluded that access to data on routine biomarkers expands the detailed biological and clinical information available on patients in the Danish healthcare system. The full potential is enabled through linkage to other Danish healthcare registries. Keywords: biomarkers, database, data resource, laboratory information systems
Audience Academic
Author Arendt, Johan Frederik Håkonsen
Pedersen, Lars
Ladefoged, Søren Andreas
Adelborg, Kasper
Sørensen, Henrik Toft
Hansen, Anette Tarp
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  surname: Hansen
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  givenname: Lars
  surname: Pedersen
  fullname: Pedersen, Lars
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  givenname: Kasper
  surname: Adelborg
  fullname: Adelborg, Kasper
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Snippet Routine biomarker results from hospital laboratory information systems, covering hospitals and general practitioners, in Denmark are available to researchers...
Johan Frederik Håkonsen Arendt,1,2 Anette Tarp Hansen,1,3 Søren Andreas Ladefoged,2 Henrik Toft Sørensen,1 Lars Pedersen,1 Kasper Adelborg1,2 1Department of...
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SubjectTerms Biological markers
Biomarkers
Biomedical laboratories
Blood groups
Clinical medicine
Codes
Data collection
data resource
Epidemiology
General practitioners
Hospitals
Information systems
laboratory information systems
Medical laboratories
Online databases
Population
Quality standards
Researchers
Review
Thyroid gland
Time
Urine
User interface
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Title Existing Data Sources in Clinical Epidemiology: Laboratory Information System Databases in Denmark
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