Impaired quality of life in systemic sclerosis and patient perception of the disease: A large international survey

• Published in: Seminars in arthritis and rheumatism Vol. 46; no. 1; pp. 115 - 123
• Main Authors: Frantz, Camelia, Avouac, Jérôme, Distler, Oliver, Amrouche, Fazia, Godard, Dominique, Kennedy, Ann Tyrrell, Connolly, Kerry, Varga, John, Matucci-Cerinic, Marco, Allanore, Yannick
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.08.2016
• Subjects: Adult; Aged; Cross-Sectional Studies; Disability Evaluation; Female; Health Status; Health Surveys; Humans; Illness perception; Male; Middle Aged; Quality of Life; Rheumatology; Scleroderma, Systemic - diagnosis; Scleroderma, Systemic - psychology; Severity of Illness Index; Systemic sclerosis; Systemic sclerosis; Illness perception; Quality of life
• ISSN: 0049-0172; 1532-866X
• DOI: 10.1016/j.semarthrit.2016.02.005

The purpose of this study was to assess health-related quality of life (HRQoL) and disease perception in a large, international group of patients with systemic sclerosis (SSc). We placed a standardized questionnaire on a website for patient access. Socio-demographic information, disease characterist...