The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants

• Published in: Autism : the international journal of research and practice Vol. 23; no. 8; pp. 2007 - 2019
• Main Authors: Nicolaidis, Christina, Raymaker, Dora, Kapp, Steven K, Baggs, Amelia, Ashkenazy, E, McDonald, Katherine, Weiner, Michael, Maslak, Joelle, Hunter, Morrigan, Joyce, Andrea
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01.11.2019; SAGE PUBLICATIONS, INC
• Subjects: Adult; Adults; Anthropology, Cultural; Autism; Autistic adults; Autistic Disorder; Autonomy; College professors; Community-Based Participatory Research - methods; Cooperative Behavior; Developmental Disabilities; Ethnography; Female; Gorillas; Guidelines; Guidelines as Topic; Humans; Inclusion; Intellectual Disability; Male; Participation; Participatory Research; Pervasive Developmental Disorders; Power-sharing; Pregnancy; Research ethics; Research partnerships; Research Personnel; Research Subjects; Researchers; Role; Stakeholder Participation; Teams; Violence - prevention & control; participatory research; qualitative research; survey adaptation; research ethics; autism; adults

As interest in autism in adulthood grows, so does the need for methods to promote the inclusion of autistic adults in research. Our objective was to create practice-based guidelines for the inclusion of autistic adults, both as research team members and as study participants. We conducted an institu...