Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide
Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism res...
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| Published in | Autism research Vol. 8; no. 5; pp. 473 - 476 |
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| Main Authors | , , , , , , , , , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
United States
01.10.2015
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| Subjects | |
| Online Access | Get full text |
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| Abstract | Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. |
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| AbstractList | Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence‐based therapies. Another barrier is the high cost of training of professionals and para‐professionals to use the tools. Open‐source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost‐effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. |
| Author | Durkin, Maureen S. Rattazzi, Alexia Lee, Li‐Ching Stapel‐Wax, Jennifer Thurm, Audrey Barbaro, Josephine Hoekstra, Rosa A. Tager‐Flusberg, Helen Elsabbagh, Mayada Shih, Andy Happe, Francesca Stone, Wendy L. Gladstone, Melissa Tomlinson, Mark |
| Author_xml | – sequence: 1 givenname: Maureen S. surname: Durkin fullname: Durkin, Maureen S. organization: and Waisman Center, University of Wisconsin‐Madison 789 WARF – sequence: 2 givenname: Mayada surname: Elsabbagh fullname: Elsabbagh, Mayada organization: McGill University – sequence: 3 givenname: Josephine surname: Barbaro fullname: Barbaro, Josephine organization: School of Psychology and Public Health, College of Science, Health, and Engineering, La Trobe University – sequence: 4 givenname: Melissa surname: Gladstone fullname: Gladstone, Melissa organization: Institute of Translational Medicine, University of Liverpool, Alder Hey Children's NHS Foundation Trust – sequence: 5 givenname: Francesca surname: Happe fullname: Happe, Francesca organization: Genetic & Developmental Psychiatry Centre, Institute of Psychiatry, Psychology & Neuroscience (PO 80), King's College London – sequence: 6 givenname: Rosa A. surname: Hoekstra fullname: Hoekstra, Rosa A. organization: Institute of Psychiatry, Psychology & Neuroscience, King's College London, Addison House, Guy's Campus – sequence: 7 givenname: Li‐Ching surname: Lee fullname: Lee, Li‐Ching organization: Johns Hopkins Bloomberg School of Public Health – sequence: 8 givenname: Alexia surname: Rattazzi fullname: Rattazzi, Alexia organization: PANAACEA (Programa Argentino para Niños, Adolescentes y Adultos con Condiciones del Espectro Autista) – sequence: 9 givenname: Jennifer surname: Stapel‐Wax fullname: Stapel‐Wax, Jennifer organization: Department of Pediatrics, Emory University School of Medicine, Director, Infant Toddler Clinical Research Operations Marcus Autism, Center, Children's Healthcare of Atlanta – sequence: 10 givenname: Wendy L. surname: Stone fullname: Stone, Wendy L. organization: University of Washington – sequence: 11 givenname: Helen surname: Tager‐Flusberg fullname: Tager‐Flusberg, Helen organization: Boston University – sequence: 12 givenname: Audrey surname: Thurm fullname: Thurm, Audrey organization: Intramural Research Program, National Institute of Mental Health 10 Center Dr. Rm 1C250 – sequence: 13 givenname: Mark surname: Tomlinson fullname: Tomlinson, Mark organization: Stellenbosch University – sequence: 14 givenname: Andy surname: Shih fullname: Shih, Andy organization: Autism Speaks |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/26437907$$D View this record in MEDLINE/PubMed |
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| Copyright | 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research 2015 The Authors Autism Research published by Wiley Periodicals, Inc. on behalf of International Society for Autism Research. |
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| Notes | The views expressed in this article do not necessarily represent the views of the NIMH, NIH, the Department of Health and Human Services, or the United States Government. This article was published online on 06 October 2015. An error was subsequently identified. This notice is included in the online version to indicate that have been corrected 6 November 2015. |
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| Title | Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide |
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