Parents’ Emotional and Social Experiences of Caring for a Child Through Cleft Treatment

• Published in: Qualitative health research Vol. 22; no. 3; pp. 346 - 359
• Main Authors: Nelson, Pauline A., Kirk, Susan A., Caress, Ann-Louise, Glenny, Anne-Marie
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01.03.2012; SAGE PUBLICATIONS, INC
• Subjects: Adaptation, Psychological; Adolescence; Adolescent; Adult; Body Image; Caring; Child; Child Welfare - psychology; Child, Preschool; Children; Childrens health; Cleft Palate - psychology; Deformities; Disabled Children; Emotions; Empathy; Female; Health technology assessment; Humans; Infant; Interview, Psychological; Male; Medical treatment; Middle Aged; Parent-Child Relations; Parents; Parents & parenting; Parents - psychology; Qualitative Research; Social Perception; Social Support; Stress, Psychological; Treatment methods; Young Adult; body image; psychosocial issues; children, disability; parenting; grounded theory

Little is known about the experiences of parents caring for a child through long-term treatment for cleft lip and/or cleft palate. We conducted in-depth interviews with 35 parents with children between the ages of 20 weeks and 21 years to explore experiences across the treatment program. We analyzed...