Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine

• Published in: American journal of bioethics Vol. 21; no. 4; pp. 57 - 66
• Main Author: Lee, Sandra Soo-Jin
• Format: Journal Article
• Language: English
• Published: United States Taylor & Francis 03.04.2021
• Subjects: Altruism; Anthropology; Bioethics; genetic research; human subjects research; Humans; Moral Obligations; Precision Medicine; race and culture/ethnicity; research ethics; Social Justice; Social Responsibility; social science research; Anthropology; genetic research; human subjects research; research ethics; social science research; race and culture/ethnicity

Precision medicine relies on data and biospecimens from participants who willingly offer their personal information on the promise that this act will ultimately result in knowledge that will improve human health. Drawing on anthropological framings of the "gift," this paper contextualizes...