Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure. Aim: To investigate grief experi...
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Published in | Palliative medicine Vol. 35; no. 10; pp. 1985 - 1997 |
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Main Authors | , , , , , , , , , , , , , , , , |
Format | Journal Article |
Language | English |
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London, England
SAGE Publications
01.12.2021
Sage Publications Ltd |
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Abstract | Background:
The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.
Aim:
To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.
Design:
Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data.
Setting/participants:
711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.
Results:
High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation.
Conclusions:
People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation. |
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AbstractList | Background:
The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.
Aim:
To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.
Design:
Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data.
Setting/participants:
711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.
Results:
High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation.
Conclusions:
People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation. BACKGROUNDThe COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure. AIMTo investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic. DESIGNBaseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data. SETTING/PARTICIPANTS711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations. RESULTSHigh-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation. CONCLUSIONSPeople bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation. Background: The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure. Aim: To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic. Design: Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data. Setting/participants: 711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations. Results: High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation. Conclusions: People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation. The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure. To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic. Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data. 711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations. High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, = 422) or their General-Practitioner (60%, = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, = 149)/General-Practitioner support (52%, = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% ( = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation. People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation. |
Author | Torrens-Burton, Anna Sutton, Eileen Seddon, Kathy Roulston, Audrey Selman, Lucy E Barawi, Kali Smith, Kirsten V Longo, Mirella Byrne, Anthony Nelson, Annmarie Harrop, Emily Penny, Alison Farnell, Damian Goss, Silvia Finucane, Anne Machin, Linda Sivell, Stephanie |
AuthorAffiliation | 1 Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK 2 School of Dentistry, Cardiff University, Cardiff, UK 3 PRIME Centre, Division of Population Medicine, Cardiff University, Cardiff, UK 5 Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK 9 Centre for Anxiety Disorders and Trauma, Department of Experimental Psychology, University of Oxford, Oxford, UK 6 Queen’s University, Belfast, Northern Ireland, UK 4 Keele University, Keele, UK 8 National Bereavement Alliance/Childhood Bereavement Network, London, UK 7 Clinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, UK |
AuthorAffiliation_xml | – name: 9 Centre for Anxiety Disorders and Trauma, Department of Experimental Psychology, University of Oxford, Oxford, UK – name: 1 Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK – name: 5 Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK – name: 6 Queen’s University, Belfast, Northern Ireland, UK – name: 3 PRIME Centre, Division of Population Medicine, Cardiff University, Cardiff, UK – name: 4 Keele University, Keele, UK – name: 7 Clinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, UK – name: 8 National Bereavement Alliance/Childhood Bereavement Network, London, UK – name: 2 School of Dentistry, Cardiff University, Cardiff, UK |
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Cites_doi | 10.1177/2167702620902748 10.1136/bmj.n1064 10.1136/bmjopen-2020-046872 10.1136/bmjspcare-2020-00242. 10.1186/s12904-016-0165-9 10.1016/j.jad.2020.09.049 10.1177/0269216320920533 10.1177/02692163211019885. 10.1183/09031936.00160014 10.1002/da.20612 10.1177/0269216320946273 10.1016/j.jpainsymman.2012.05.007 10.1177/02692163211017026 10.1111/j.1467-6427.2010.00495.x 10.1186/s12904-021-00806-2 10.1177/0269216318774995 10.1177/02692163211004210 10.1186/s12904-020-0532-4 10.1177/1049909115615568 10.1136/bmj.m1472 10.2196/jmir.6.3.e34 10.1007/s11136-013-0551-1 10.1177/0269216313483663 10.1371/journal.pone.0252188 10.1521/psyc.2012.75.1.76 10.1177/1049732308320110 10.1371/journal.pone.0121101 10.1016/j.psychres.2020.113031 10.1191/1478088706qp063oa 10.1177/2632352420988009 10.1111/j.1753-6405.2012.00825.x |
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Keywords | social support bereavement services Bereavement coronavirus infections pandemics grief |
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References | Pearce, Honey, Lovick 2021; 11 Harrop, Morgan, Byrne 2016; 15 Mughal, Hossain, Brady 2021; 373 Kentish-Barnes, Chaize, Seegers 2015; 45 Eisma, Boelen, Lenferink 2020; 288 Harrop, Scott, Sivell 2020; 19 Kun, Han, Chen 2009; 26 Selman, Chamberlain, Sowden 2021; 35 Aoun, Breen, Howting 2015; 10 Breen 2021; 15 Braun, Clarke 2006; 3 Breen, O’Connor 2011; 33 Hanna, Rapa, Dalton 2021; 35 Mayland, Hughes, Lane Claessen, Francke, Sixma 2013; 45 Wakefield, Fleming, Howorth Eysenbach 2004; 6 Sanderson, Lobb, Mowll 2013; 27 Breen, Aoun, Rumbold 2017; 34 Kristensen, Weisæth, Heir 2012; 75 Mayland, Powell, Clarke 2021; 16 Harrop, Morgan, Longo 2020; 34 Yardley, Rolph 2020; 369 Smith, Wild, Ehlers 2020; 8 Aoun, Breen, White 2018; 32 Islam, Nelson, Longo 2021; 20 Aoun, Keegan, Roberts 2020; 14 Murray 2020 Aoun, Breen, O’Connor 2012; 36 Sim, Machin, Bartlam 2014; 23 Dumont, Dumont, Mongeau 2008; 18 Eisma, Tamminga, Smid 2021; 278 Breen, Kawashima, Joy 2020; 18 Harrop, Mann, Semedo 2020; 34 bibr21-02692163211043372 bibr11-02692163211043372 bibr31-02692163211043372 bibr14-02692163211043372 bibr37-02692163211043372 bibr24-02692163211043372 bibr27-02692163211043372 bibr34-02692163211043372 bibr1-02692163211043372 bibr41-02692163211043372 bibr6-02692163211043372 bibr9-02692163211043372 bibr19-02692163211043372 bibr29-02692163211043372 bibr39-02692163211043372 bibr42-02692163211043372 bibr12-02692163211043372 bibr25-02692163211043372 bibr8-02692163211043372 bibr35-02692163211043372 bibr38-02692163211043372 Aoun SM (bibr20-02692163211043372) 2020; 14 bibr5-02692163211043372 bibr32-02692163211043372 bibr22-02692163211043372 bibr18-02692163211043372 bibr2-02692163211043372 bibr28-02692163211043372 bibr30-02692163211043372 Breen LJ (bibr40-02692163211043372) 2020; 18 bibr33-02692163211043372 bibr36-02692163211043372 bibr7-02692163211043372 bibr26-02692163211043372 bibr13-02692163211043372 bibr16-02692163211043372 bibr4-02692163211043372 bibr23-02692163211043372 bibr3-02692163211043372 bibr10-02692163211043372 bibr17-02692163211043372 National Institute for Clinical Excellence (NICE) (bibr15-02692163211043372) 2004 |
References_xml | – volume: 288 start-page: 113031 year: 2020 article-title: Prolonged grief disorder following the Coronavirus (COVID-19) pandemic publication-title: Psychiatry Res contributor: fullname: Lenferink – volume: 3 start-page: 77 issue: 2 year: 2006 end-page: 101 article-title: Using thematic analysis in psychology publication-title: Qual Res Psychol contributor: fullname: Clarke – volume: 18 start-page: 1049 issue: 8 year: 2008 end-page: 1061 article-title: End-of-life care and the grieving process: family caregivers who have experienced the loss of a terminal-phase cancer patient publication-title: Qual Health Res contributor: fullname: Mongeau – volume: 34 start-page: 275 year: 2017 end-page: 281 article-title: Building community capacity in bereavement support: lessons learnt from bereaved former caregivers publication-title: Am J Hosp Palliat Med contributor: fullname: Rumbold – volume: 45 start-page: 1341 issue: 5 year: 2015 end-page: 1352 article-title: Complicated grief after death of a relative in the intensive care unit publication-title: Eur Respir J contributor: fullname: Seegers – year: 2020 article-title: National-Mapping-of-BAME-Mental-Health-Services.pdf, bamestream.org.uk contributor: fullname: Murray – volume: 27 start-page: 625 issue: 7 year: 2013 end-page: 631 article-title: Signs of post-traumatic stress disorder in caregivers following an expected death: a qualitative study publication-title: Palliat Med contributor: fullname: Mowll – volume: 33 start-page: 98 year: 2011 end-page: 120 article-title: Family and social networks after bereavement: experiences of support, change, and isolation publication-title: J Fam Ther contributor: fullname: O’Connor – volume: 45 start-page: 875 issue: 5 year: 2013 end-page: 884 article-title: Measuring relatives’ perspectives on the quality of palliative care: the consumer quality index palliative care publication-title: J Pain Symptom Manag contributor: fullname: Sixma – volume: 35 start-page: 1267 year: 2021 end-page: 1276 article-title: Sadness, despair and anger when a patient dies alone from COVID-19: a thematic content analysis of Twitter data from bereaved family members and friends publication-title: Palliat Med contributor: fullname: Sowden – volume: 34 start-page: 1165 issue: 9 year: 2020 end-page: 1181 article-title: What elements of a systems’ approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19 publication-title: Palliat Med contributor: fullname: Semedo – volume: 6 start-page: e34 issue: 3 year: 2004 article-title: Improving the quality of web surveys: the checklist for reporting results of internet E-surveys (CHERRIES) publication-title: J Med Internet Res contributor: fullname: Eysenbach – volume: 36 start-page: 14 year: 2012 end-page: 16 article-title: A public health approach to bereavement support services in palliative care publication-title: Aust N Z J Public Health contributor: fullname: O’Connor – volume: 16 start-page: e0252188 year: 2021 article-title: Bereavement care for ethnic minority communities: a systematic review of access to, models of, outcomes from, and satisfaction with, service provision publication-title: PLoS One contributor: fullname: Clarke – volume: 278 start-page: 54 year: 2021 end-page: 56 article-title: Acute grief after deaths due to COVID-19, natural causes and unnatural causes: an empirical comparison publication-title: J Affect Disord contributor: fullname: Smid – volume: 11 start-page: e046872 issue: 3 year: 2021 article-title: ‘A silent epidemic of grief’: a survey of bereavement care provision in the UK and Ireland during the COVID-19 pandemic publication-title: BMJ Open contributor: fullname: Lovick – volume: 34 start-page: 871 issue: 7 year: 2020 end-page: 888 article-title: The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis publication-title: Palliat Med contributor: fullname: Longo – volume: 15 start-page: 92 issue: 1 year: 2016 article-title: “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family caregivers publication-title: BMC Palliat Care contributor: fullname: Byrne – volume: 23 start-page: 1211 issue: 4 year: 2014 end-page: 1220 article-title: Identifying vulnerability in grief: psychometric properties of the adult attitude to grief scale publication-title: Qual Life Res contributor: fullname: Bartlam – volume: 20 start-page: 116 year: 2021 article-title: Before the 2020 pandemic: an observational study exploring public knowledge, attitudes, plans, and preferences towards death and end of life care in Wales publication-title: BMC Palliat Care contributor: fullname: Longo – volume: 26 start-page: 1134 issue: 12 year: 2009 end-page: 1140 article-title: Prevalence and risk factors for posttraumatic stress disorder: a cross-sectional study among survivors of the Wenchuan 2008 earthquake in China publication-title: Depress Anxiety contributor: fullname: Chen – article-title: Inequalities in awareness and availability of bereavement services in north-east England publication-title: BMJ Support Palliat Care contributor: fullname: Howorth – volume: 373 start-page: n1064 year: 2021 article-title: Mental health support through primary care during and after covid-19 publication-title: BMJ contributor: fullname: Brady – volume: 369 start-page: m1472 year: 2020 article-title: Death and dying during the pandemic publication-title: BMJ contributor: fullname: Rolph – volume: 18 start-page: 1 year: 2020 end-page: 9 article-title: Grief literacy: a call to action for compassionate communities publication-title: Death Stud contributor: fullname: Joy – volume: 15 start-page: 2632352420988009 year: 2021 article-title: Harnessing social support for bereavement now and beyond the COVID-19 pandemic publication-title: Palliat Care Soc Pract contributor: fullname: Breen – volume: 35 start-page: 843 issue: 5 year: 2021 end-page: 851 article-title: A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic publication-title: Palliat Med contributor: fullname: Dalton – volume: 75 start-page: 76 issue: 1 year: 2012 end-page: 97 article-title: Bereavement and mental health after sudden and violent losses: a review publication-title: Psychiatr Interpers Biol Process contributor: fullname: Heir – volume: 10 start-page: e0121101 issue: 3 year: 2015 article-title: Who needs bereavement support? A population based survey of bereavement risk and support need publication-title: PLoS One contributor: fullname: Howting – volume: 14 start-page: 2632352420935132 year: 2020 article-title: The impact of bereavement support on wellbeing: a comparative study between Australia and Ireland publication-title: Palliat Care Soc Pract contributor: fullname: Roberts – volume: 19 start-page: 29 issue: 1 year: 2020 end-page: 35 article-title: Coping and wellbeing in bereavement: two core outcomes for evaluating bereavement support in palliative care publication-title: BMC Palliat Care contributor: fullname: Sivell – volume: 8 start-page: 464 issue: 3 year: 2020 end-page: 476 article-title: The masking of mourning: social disconnection after bereavement and its role in psychological distress publication-title: Clin Psychol Sci contributor: fullname: Ehlers – volume: 32 start-page: 1378 year: 2018 end-page: 1388 article-title: What sources of bereavement support are perceived helpful by bereaved people and why? Empirical evidence for the compassionate communities approach publication-title: Palliat Med contributor: fullname: White – article-title: Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic publication-title: Palliat Med contributor: fullname: Lane – ident: bibr14-02692163211043372 doi: 10.1177/2167702620902748 – ident: bibr26-02692163211043372 – ident: bibr37-02692163211043372 doi: 10.1136/bmj.n1064 – ident: bibr3-02692163211043372 doi: 10.1136/bmjopen-2020-046872 – ident: bibr29-02692163211043372 doi: 10.1136/bmjspcare-2020-00242. – ident: bibr38-02692163211043372 – ident: bibr5-02692163211043372 doi: 10.1186/s12904-016-0165-9 – ident: bibr11-02692163211043372 doi: 10.1016/j.jad.2020.09.049 – ident: bibr19-02692163211043372 doi: 10.1177/0269216320920533 – ident: bibr2-02692163211043372 doi: 10.1177/02692163211019885. – ident: bibr8-02692163211043372 doi: 10.1183/09031936.00160014 – ident: bibr9-02692163211043372 doi: 10.1002/da.20612 – ident: bibr16-02692163211043372 doi: 10.1177/0269216320946273 – ident: bibr31-02692163211043372 – ident: bibr28-02692163211043372 – volume-title: Guidance on cancer services: improving supportive and palliative care for adults with cancer. 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The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to... The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among... Background: The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to... BACKGROUNDThe COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support... |
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SubjectTerms | Access Adult Bereavement Coronaviruses COVID-19 Discomfort Emotional support Friendship Grief Health services Humans Infrastructure Mental health Mixed methods research Mourning Original Palliative care Pandemics Polls & surveys SARS-CoV-2 Social media Social Support Uniqueness |
Title | Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic |
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