Open health data: Mapping the ecosystem
Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of o...
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| Published in | Digital health Vol. 7; p. 20552076211050167 |
|---|---|
| Main Authors | , |
| Format | Journal Article |
| Language | English |
| Published |
London, England
SAGE Publications
2021
Sage Publications Ltd SAGE Publishing |
| Subjects | |
| Online Access | Get full text |
| ISSN | 2055-2076 2055-2076 |
| DOI | 10.1177/20552076211050167 |
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| Abstract | Background
Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone.
Objective and methods
This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium.
Results
Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities.
Conclusions
The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research. |
|---|---|
| AbstractList | Background
Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone.
Objective and methods
This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium.
Results
Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities.
Conclusions
The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research. Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone. This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium. Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities. The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research. Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone. Objective and methods This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium. Results Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities. Conclusions The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research. Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone.BACKGROUNDGovernments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health care practitioners in a region to the outcomes of certain surgeries. Health is believed to be a promising subject in the case of open government data policies. However, the specific properties of health data such as its sensibilities regarding privacy, ethics, and ownership encompass particular conditions either enabling or preventing datasets to become freely and easily accessible for everyone.This paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium.OBJECTIVE AND METHODSThis paper aims to map the ecosystem of open health data. By analyzing the foundations of health data and the commonalities of open data ecosystems via literature analysis, the socio-technical environment in which health data managed by governments are opened up or potentially stay closed is created. After its theoretical development, the open health data ecosystem is tested via a case study concerning the Data for Better Health initiative from the government of Belgium.Creation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities.RESULTSCreation and assessment of an open health data ecosystem consisting of stakeholders, interests, information policies, and data preparation activities.The policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research.CONCLUSIONSThe policy domain of health includes de-identification activities, bioethical assessments, and the specific role of data providers within its open data ecosystem. However, the concept of open data does not always fully apply to the topic of health. Such several health datasets may be findable via government portals but not directly accessible. Differentiation within types of health data and data user capacities are recommendable for future research. |
| Author | Crompvoets, Joep Heijlen, Roel |
| AuthorAffiliation | 1 26657 KU Leuven Public Governance Institute , Leuven, Belgium 2 54513 Sciensano , Brussels, Belgium |
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| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/34777853$$D View this record in MEDLINE/PubMed |
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| Cites_doi | 10.4067/S0718-18762012000300011 10.1136/medethics-2014-102374 10.1007/978-94-6265-261-3_1 10.3389/fpubh.2016.00007 10.1016/j.giq.2015.07.006 10.3332/ecancer.2017.709 10.1093/eurpub/ckv149 10.1111/ropr.12081 10.3390/fi4040900 10.1007/978-3-319-23633-9_1 10.1016/j.ejca.2018.09.032 10.2202/1944-2866.1076 10.1093/ijlit/eas014 10.1787/9789264229358-en 10.1111/bju.14367 10.1016/j.egypro.2017.03.237 10.1007/978-94-6265-261-3_5 10.1093/eurpub/ckr149 10.1787/5k46bj4f03s7-en 10.1016/j.giq.2016.01.003 10.1787/9789264244566-en 10.26633/RPSP.2018.66 10.1038/sdata.2016.18 10.4135/9781473909472 10.1016/j.ijmedinf.2012.11.003 10.1111/j.1467-9299.2006.00600.x 10.1001/jama.2010.1249 10.1007/978-3-319-23633-9_28 10.1016/j.giq.2015.09.001 10.1016/j.ijmedinf.2018.03.013 10.1080/10580530.2012.716740 10.1002/9781119138433 10.3233/IP-140329 10.1016/j.healthpol.2005.05.008 10.1002/1944-2866.POI330 10.1186/2047-2501-2-3 |
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| References | Bevan, Hood 2006; 84 Geissbuhler, Safran, Buchan 2013; 82 Gonzalez-Zapata, Heeks 2015; 32 Coppen, van Veen, Groenewegen 2015; 25 Kostkova, Brewer, de Lusignan 2016; 4 Chassang 2017; 11 Raghupathi, Raghupathi 2014; 2 Bannister, Connolly 2011; 3 Martin, Foulonneau, Turki 2013; 11 Zotano, Bersini 2017; 111 Dong, Singh, Attri 2017; 5 Attard, Orlandi, Scerri 2015; 32 Van Veen 2018; 104 Keen, Calinescu, Paige 2013; 5 Carter, Laurie, Dixon-Woods 2015; 41 Conway, VanLare 2010; 304 Dawes, Vidiasova, Parkhimovich 2016; 33 Lin, Chan 2000; 9 Harlan, Robinson 2012; 59 Zuiderwijk, Janssen, Davis 2014; 19 Mehta, Pandit 2018; 114 Cerrilo-i-Martinez 2012; 20 Styrin, Luna-Reyes, Harrison 2017; 11 Walravens 2012; 7 Wilkinson, Dumontier, Aalbersberg 2016; 3 D’Agostino, Samuel, Sarol 2018; 42 Lyseen, Hansen 2015; 10 Tritter, McCallum 2006; 76 Sathianathen, Albersheim-Carter, Labine 2019; 123 Levitin, Redman 1998; 40 Washington 2014; 31 Janssen, Charalabidis, Zuiderwijk 2012; 29 Hakulinen, Arbyn, Brewster 2011; 21 Harrison, Pardo, Cook 2012; 4 bibr33-20552076211050167 bibr26-20552076211050167 bibr8-20552076211050167 bibr46-20552076211050167 bibr39-20552076211050167 bibr53-20552076211050167 bibr40-20552076211050167 Levitin AV (bibr58-20552076211050167) 1998; 40 bibr20-20552076211050167 bibr13-20552076211050167 bibr3-20552076211050167 bibr9-20552076211050167 bibr38-20552076211050167 bibr60-20552076211050167 bibr2-20552076211050167 bibr19-20552076211050167 bibr25-20552076211050167 Lin B (bibr23-20552076211050167) 2000; 9 bibr4-20552076211050167 bibr65-20552076211050167 D’Agostino M (bibr29-20552076211050167) 2018; 42 Cole A (bibr36-20552076211050167) 2018 bibr55-20552076211050167 Harlan Y (bibr1-20552076211050167) 2012; 59 bibr24-20552076211050167 bibr14-20552076211050167 Dong H (bibr28-20552076211050167) 2017; 5 Cattel J (bibr37-20552076211050167) 2013 Annemans L (bibr59-20552076211050167) 2018 bibr34-20552076211050167 bibr64-20552076211050167 bibr54-20552076211050167 bibr44-20552076211050167 Lyseen AK (bibr27-20552076211050167) 2015; 10 bibr49-20552076211050167 Professional Records Standard Body (bibr21-20552076211050167) 2018 bibr30-20552076211050167 bibr43-20552076211050167 bibr50-20552076211050167 bibr15-20552076211050167 bibr6-20552076211050167 bibr35-20552076211050167 Christiaens W (bibr56-20552076211050167) 2014 bibr63-20552076211050167 bibr22-20552076211050167 Manyika J (bibr45-20552076211050167) 2011 bibr5-20552076211050167 Stanford Medicine (bibr47-20552076211050167) 2017 Martin S (bibr10-20552076211050167) 2013; 11 bibr52-20552076211050167 bibr62-20552076211050167 Van Veen EB (bibr31-20552076211050167) 2011 bibr42-20552076211050167 bibr32-20552076211050167 bibr48-20552076211050167 Segen JC (bibr16-20552076211050167) 2002 bibr57-20552076211050167 bibr61-20552076211050167 Styrin E (bibr12-20552076211050167) 2017; 11 bibr11-20552076211050167 European Group on Ethics in Science and New Technologies (bibr18-20552076211050167) 1999 bibr7-20552076211050167 bibr41-20552076211050167 bibr51-20552076211050167 bibr17-20552076211050167 |
| References_xml | – volume: 33 start-page: 15 year: 2016 end-page: 27 article-title: Planning and designing open government data programs: an ecosystem approach publication-title: Gov Inf Q – volume: 5 start-page: 529 year: 2017 end-page: 543 article-title: Open data-set of seven Canadian cities publication-title: IEEE – volume: 32 start-page: 399 year: 2015 end-page: 418 article-title: A systematic review of open government data initiatives publication-title: Gov Inf Q – volume: 11 year: 2017 article-title: Open data ecosystems: an international comparison publication-title: Transform Gov: People, Process Policy – volume: 41 start-page: 404 year: 2015 end-page: 409 article-title: The social licence for research: why care data ran into trouble publication-title: J Med Ethics – volume: 84 start-page: 517 year: 2006 end-page: 538 article-title: What’s measured is what matters: targets and gaming in the English public health care system publication-title: Public Adm – volume: 82 start-page: 1 year: 2013 end-page: 9 article-title: Trustworthy reuse of health data: a transnational perspective publication-title: Int J Med Inf – volume: 11 start-page: 709 year: 2017 article-title: The impact of the EU general data protection regulation on scientific research publication-title: Ecancer – volume: 111 start-page: 750 year: 2017 end-page: 758 article-title: A data-driven approach to assess the potential of smart cities: the case of open data for Brussels capital region publication-title: Energy Procedia – volume: 7 start-page: 121 year: 2012 end-page: 135 article-title: Mobile business and the smart city: developing a business model framework to include public design parameters for mobile city services publication-title: J Theor Appl Electron Commer Res – volume: 4 start-page: 900 year: 2012 end-page: 928 article-title: Creating open government ecosystems: a research and development agenda publication-title: Future Internet – volume: 19 start-page: 17 year: 2014 end-page: 33 article-title: Innovation with open data: essential elements of open data ecosystems publication-title: Inf Polity – volume: 32 start-page: 441 year: 2015 end-page: 452 article-title: The multiple meanings of open government data: understanding different stakeholders and their perspectives publication-title: Gov Inf Q – volume: 4 year: 2016 article-title: Who owns the data? Open data for healthcare publication-title: Front Public Health – volume: 20 start-page: 203 year: 2012 end-page: 222 article-title: Fundamental interests and open data for re-use publication-title: Int J Law Inf Technol – volume: 3 year: 2011 article-title: The trouble with transparency: a critical review of openness in e-government publication-title: Policy Internet – volume: 123 start-page: 180 year: 2019 end-page: 186 article-title: Potential patient harms from misinterpretation of publically reported surgical outcomes publication-title: BJU Int – volume: 10 start-page: 84 year: 2015 end-page: 102 article-title: INSPIRE compliance of public health information: a Danish case study publication-title: Int J Spatial Data Infrastruct Res – volume: 21 start-page: 686 year: 2011 end-page: 687 article-title: Harmonization may be counterproductive – at least for parts of Europe where public health research operates effectively publication-title: Eur J Public Health – volume: 5 start-page: 228 year: 2013 end-page: 243 article-title: Big data + politics = open data: the case of health care data in England publication-title: Policy Internet – volume: 59 start-page: 178 year: 2012 end-page: 208 article-title: The New ambiguity of ‘open government’ publication-title: UCLA L Rev Disc – volume: 42 start-page: 1 year: 2018 end-page: 7 article-title: Open data and public health publication-title: Rev Panam Salud Publica – volume: 25 start-page: 757 year: 2015 end-page: 758 article-title: 2015. Will the trilogue on the EU data protection regulation recognise the importance of health research? publication-title: Eur J Public Health – volume: 3 start-page: 160018 year: 2016 article-title: The FAIR guiding principles for scientific data management and stewardship publication-title: Sci Data – volume: 29 start-page: 258 year: 2012 end-page: 268 article-title: Benefits, adoption barriers and myths of open data and open government publication-title: Inf Syst Manage – volume: 104 start-page: 70 year: 2018 end-page: 80 article-title: Observational health research in Europe: understanding the general data protections regulation and underlying debate publication-title: Eur J Cancer – volume: 31 start-page: 319 year: 2014 end-page: 325 article-title: Government information policy in the Era of big data publication-title: Rev Policy Res – volume: 9 year: 2000 article-title: Managing data quality in the health care industry: some critical issues publication-title: J Int Inf Manag – volume: 304 start-page: 1007 year: 2010 end-page: 1008 article-title: Improving access to health care data. The open government strategy publication-title: JAMA – volume: 2 year: 2014 article-title: Big data analytics in healthcare: promise and potential publication-title: Health Inf Sci Syst – volume: 76 start-page: 165 year: 2006 end-page: 168 article-title: The snakes and ladders of user involvement: moving beyond arnstein publication-title: Health Policy – volume: 114 start-page: 57 year: 2018 end-page: 65 article-title: Concurrence of big data analytics and healthcare: a systematic review publication-title: Int J Med Inform – volume: 11 start-page: 348 year: 2013 end-page: 359 article-title: Risk analysis to overcome barriers to open data publication-title: Electron J e-Gov – volume: 40 start-page: 89 year: 1998 end-page: 101 article-title: Data as a resource: properties, implications, and prescriptions publication-title: Sloan Manage Rev – ident: bibr43-20552076211050167 doi: 10.4067/S0718-18762012000300011 – ident: bibr6-20552076211050167 – ident: bibr44-20552076211050167 doi: 10.1136/medethics-2014-102374 – ident: bibr4-20552076211050167 doi: 10.1007/978-94-6265-261-3_1 – volume: 9 year: 2000 ident: bibr23-20552076211050167 publication-title: J Int Inf Manag – ident: bibr33-20552076211050167 doi: 10.3389/fpubh.2016.00007 – ident: bibr5-20552076211050167 doi: 10.1016/j.giq.2015.07.006 – ident: bibr22-20552076211050167 doi: 10.3332/ecancer.2017.709 – volume: 10 start-page: 84 year: 2015 ident: bibr27-20552076211050167 publication-title: Int J Spatial Data Infrastruct Res – ident: bibr39-20552076211050167 doi: 10.1093/eurpub/ckv149 – ident: bibr51-20552076211050167 doi: 10.1111/ropr.12081 – ident: bibr15-20552076211050167 doi: 10.3390/fi4040900 – volume-title: Big data: the next frontier for innovation, competition and, productivity year: 2011 ident: bibr45-20552076211050167 – ident: bibr65-20552076211050167 – volume: 59 start-page: 178 year: 2012 ident: bibr1-20552076211050167 publication-title: UCLA L Rev Disc – ident: bibr20-20552076211050167 – ident: bibr40-20552076211050167 doi: 10.1007/978-3-319-23633-9_1 – ident: bibr34-20552076211050167 – ident: bibr17-20552076211050167 doi: 10.1016/j.ejca.2018.09.032 – ident: bibr41-20552076211050167 doi: 10.2202/1944-2866.1076 – volume-title: Models for citizen and patient involvement in health care policy – part I: exploration of their feasibility and acceptability year: 2014 ident: bibr56-20552076211050167 – ident: bibr7-20552076211050167 doi: 10.1093/ijlit/eas014 – volume-title: How big data can revolutionize pharmaceutical R&D year: 2013 ident: bibr37-20552076211050167 – volume-title: Ethical issues of healthcare in the information society year: 1999 ident: bibr18-20552076211050167 – volume: 11 year: 2017 ident: bibr12-20552076211050167 publication-title: Transform Gov: People, Process Policy – ident: bibr46-20552076211050167 doi: 10.1787/9789264229358-en – ident: bibr24-20552076211050167 – ident: bibr61-20552076211050167 doi: 10.1111/bju.14367 – volume-title: Standards for the structure and content of health and care records year: 2018 ident: bibr21-20552076211050167 – ident: bibr62-20552076211050167 – ident: bibr52-20552076211050167 doi: 10.1016/j.egypro.2017.03.237 – ident: bibr13-20552076211050167 doi: 10.1007/978-94-6265-261-3_5 – ident: bibr49-20552076211050167 doi: 10.1093/eurpub/ckr149 – ident: bibr3-20552076211050167 doi: 10.1787/5k46bj4f03s7-en – ident: bibr11-20552076211050167 doi: 10.1016/j.giq.2016.01.003 – ident: bibr19-20552076211050167 doi: 10.1787/9789264244566-en – ident: bibr26-20552076211050167 – volume: 42 start-page: 1 year: 2018 ident: bibr29-20552076211050167 publication-title: Rev Panam Salud Publica doi: 10.26633/RPSP.2018.66 – ident: bibr64-20552076211050167 doi: 10.1038/sdata.2016.18 – ident: bibr2-20552076211050167 doi: 10.4135/9781473909472 – volume-title: Harnessing the power of data in health year: 2017 ident: bibr47-20552076211050167 – ident: bibr57-20552076211050167 doi: 10.1016/j.ijmedinf.2012.11.003 – volume-title: Legal barriers to better the better use of health data to deliver pharmaceutical innovation year: 2018 ident: bibr36-20552076211050167 – ident: bibr63-20552076211050167 – ident: bibr54-20552076211050167 doi: 10.1111/j.1467-9299.2006.00600.x – ident: bibr32-20552076211050167 doi: 10.1001/jama.2010.1249 – ident: bibr14-20552076211050167 doi: 10.1007/978-3-319-23633-9_28 – ident: bibr8-20552076211050167 doi: 10.1016/j.giq.2015.09.001 – volume-title: Concise dictionary of modern medecine year: 2002 ident: bibr16-20552076211050167 – volume-title: Health economics for non-economists. Principles, methods and pitfalls of health economic evaluations year: 2018 ident: bibr59-20552076211050167 – ident: bibr30-20552076211050167 – ident: bibr60-20552076211050167 – ident: bibr25-20552076211050167 – volume: 5 start-page: 529 year: 2017 ident: bibr28-20552076211050167 publication-title: IEEE – ident: bibr48-20552076211050167 doi: 10.1016/j.ijmedinf.2018.03.013 – ident: bibr9-20552076211050167 doi: 10.1080/10580530.2012.716740 – ident: bibr35-20552076211050167 doi: 10.1002/9781119138433 – ident: bibr50-20552076211050167 doi: 10.3233/IP-140329 – ident: bibr53-20552076211050167 – volume: 40 start-page: 89 year: 1998 ident: bibr58-20552076211050167 publication-title: Sloan Manage Rev – volume-title: Patient data for health research. A discussion paper on anonymization procedures for the use of patient data for health research year: 2011 ident: bibr31-20552076211050167 – volume: 11 start-page: 348 year: 2013 ident: bibr10-20552076211050167 publication-title: Electron J e-Gov – ident: bibr55-20552076211050167 doi: 10.1016/j.healthpol.2005.05.008 – ident: bibr42-20552076211050167 doi: 10.1002/1944-2866.POI330 – ident: bibr38-20552076211050167 doi: 10.1186/2047-2501-2-3 |
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Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability... Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability of health... Background Governments around the world own multiple datasets related to the policy domain of health. Datasets range from vaccination rates to the availability... |
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| Title | Open health data: Mapping the ecosystem |
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