Patient and Caregiver Priorities for Outcomes in Hemodialysis: An International Nominal Group Technique Study

• Published in: American journal of kidney diseases Vol. 68; no. 3; pp. 444 - 454
• Main Authors: Urquhart-Secord, Rachel, Craig, Jonathan C., Hemmelgarn, Brenda, Tam-Tham, Helen, Manns, Braden, Howell, Martin, Polkinghorne, Kevan R., Kerr, Peter G., Harris, David C., Thompson, Stephanie, Schick-Makaroff, Kara, Wheeler, David C., van Biesen, Wim, Winkelmayer, Wolfgang C., Johnson, David W., Howard, Kirsten, Evangelidis, Nicole, Tong, Allison
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.09.2016
• Subjects: Adolescent; Adult; Aged; Aged, 80 and over; Australia; Canada; Caregivers; clinical research priorities; end-stage renal disease (ESRD); fatigue; Female; focus group; hemodialysis; Humans; Male; Middle Aged; Nephrology; nominal group; Outcome Assessment (Health Care); outcome measurement; patient wellbeing; Patient-centered outcomes; patients; qualitative research; quality of life; Renal Dialysis; Renal Insufficiency, Chronic - therapy; surrogate end points; Young Adult; clinical research priorities; patient wellbeing; surrogate end points; patients; caregivers; fatigue; nominal group; end-stage renal disease (ESRD); outcome measurement; focus group; Patient-centered outcomes; hemodialysis; qualitative research; quality of life

In the context of clinical research, investigators have historically selected the outcomes that they consider to be important, but these are often discordant with patients’ priorities. Efforts to define and report patient-centered outcomes are gaining momentum, though little work has been done in ne...