Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study
To explore how quality of life (QoL) and quality of care (QoC) for people with dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for PwD vary across living arrangements; and to assess the association between QoL and QoC. Cross-sectional survey. Institutional long term care...
Saved in:
Published in | Journal of the American Medical Directors Association Vol. 15; no. 1; p. 54 |
---|---|
Main Authors | , , , , , , , , |
Format | Journal Article |
Language | English |
Published |
United States
01.01.2014
|
Subjects | |
Online Access | Get more information |
Cover
Loading…
Abstract | To explore how quality of life (QoL) and quality of care (QoC) for people with dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for PwD vary across living arrangements; and to assess the association between QoL and QoC.
Cross-sectional survey.
Institutional long term care and home care in 8 European countries (England, Estonia, Finland, France, Germany, the Netherlands, Spain, and Sweden).
PwD receiving formal home care but at risk for admission to an institutional setting, and PwD who were recently admitted.
QoL was assessed by the PwD and by their best informed proxies using the Quality of Life-Alzheimer's Disease scale (QoL-AD) (range 13-52). QoC was measured using quality of care indicators (eg, the presence of depressive symptoms, the presence of pressure ulcers).
A total of 1123 PwD living at home (mean age 82.2, 63%women) and 791 PwD living in institutional care (mean age 84.1, 74% women) participated. QoL of PwD was most often rated highest in Sweden and England and lowest in Estonia and Spain. No differences in QoL were detected among the settings. For the QoC indicators, no consistent patterns were visible in such a way that certain countries or settings scored "higher" or "lower." The presence of depressive symptoms was most consistently associated with lower QoL (P ≤ .001).
There is great variation in QoL and QoC scores among European countries and settings. To gain insight into the underlying causes of these differences, more knowledge is needed about the effect of different national health care systems and dementia strategies on QoL and QoC indicators. Depressive symptoms were associated with QoL, and executing longitudinal studies investigating which factors are associated with change in QoL is highly recommended. |
---|---|
AbstractList | To explore how quality of life (QoL) and quality of care (QoC) for people with dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for PwD vary across living arrangements; and to assess the association between QoL and QoC.
Cross-sectional survey.
Institutional long term care and home care in 8 European countries (England, Estonia, Finland, France, Germany, the Netherlands, Spain, and Sweden).
PwD receiving formal home care but at risk for admission to an institutional setting, and PwD who were recently admitted.
QoL was assessed by the PwD and by their best informed proxies using the Quality of Life-Alzheimer's Disease scale (QoL-AD) (range 13-52). QoC was measured using quality of care indicators (eg, the presence of depressive symptoms, the presence of pressure ulcers).
A total of 1123 PwD living at home (mean age 82.2, 63%women) and 791 PwD living in institutional care (mean age 84.1, 74% women) participated. QoL of PwD was most often rated highest in Sweden and England and lowest in Estonia and Spain. No differences in QoL were detected among the settings. For the QoC indicators, no consistent patterns were visible in such a way that certain countries or settings scored "higher" or "lower." The presence of depressive symptoms was most consistently associated with lower QoL (P ≤ .001).
There is great variation in QoL and QoC scores among European countries and settings. To gain insight into the underlying causes of these differences, more knowledge is needed about the effect of different national health care systems and dementia strategies on QoL and QoC indicators. Depressive symptoms were associated with QoL, and executing longitudinal studies investigating which factors are associated with change in QoL is highly recommended. |
Author | Sutcliffe, Caroline Soto, Maria E Bökberg, Christina Beerens, Hanneke C Zabalegui, Adela Hamers, Jan P H Suhonen, Riitta Saks, Kai Renom-Guiteras, Anna |
Author_xml | – sequence: 1 givenname: Hanneke C surname: Beerens fullname: Beerens, Hanneke C email: h.beerens@maastrichtuniversity.nl organization: Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht, The Netherlands. Electronic address: h.beerens@maastrichtuniversity.nl – sequence: 2 givenname: Caroline surname: Sutcliffe fullname: Sutcliffe, Caroline organization: Personal Social Services Research Unit, Faculty of Medical and Human Sciences, The University of Manchester, Manchester, United Kingdom – sequence: 3 givenname: Anna surname: Renom-Guiteras fullname: Renom-Guiteras, Anna organization: School of Nursing Science, Faculty of Health, University of Witten/Herdecke, Witten, Germany – sequence: 4 givenname: Maria E surname: Soto fullname: Soto, Maria E organization: Department of Geriatric Medicine, CHU Toulouse University Hospital, Toulouse, France – sequence: 5 givenname: Riitta surname: Suhonen fullname: Suhonen, Riitta organization: Department of Nursing Science, University of Turku, Turku, Finland – sequence: 6 givenname: Adela surname: Zabalegui fullname: Zabalegui, Adela organization: Fundació Privada Clínic per a la Recerca Biomèdica, Hospital Clinic of Barcelona, Barcelona, Spain – sequence: 7 givenname: Christina surname: Bökberg fullname: Bökberg, Christina organization: Department of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden – sequence: 8 givenname: Kai surname: Saks fullname: Saks, Kai organization: Department of Internal Medicine, University of Tartu, Tartu, Estonia – sequence: 9 givenname: Jan P H surname: Hamers fullname: Hamers, Jan P H organization: Department of Health Services Research, Faculty of Health, Medicine and Life Sciences, CAPHRI School for Public Health and Primary Care, Maastricht, The Netherlands |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/24220139$$D View this record in MEDLINE/PubMed |
BookMark | eNpFkNlOwzAQRS0Eogt8ARLyDyR4aZyYN1SxSZVYVJ4rxxk3rhI7OA6o_8OH0lIQLzOje--5DzNBx847QOiCkpQSKq426Ua1lUoZoTwlMiWUHKExzXiRSJ5nIzTp-w0hO1uKUzRiM7ZPyjH6ehlUY-MWe4MbawArV-H3f02rANj4gDvwXQP408YaV9CCi1bhABrsh3Vr3PjdiBBabF0fbRyi9U41B36PB2-g7w9i7Vv4ca5xrAHfDsF3oBx-tes6Lm0Lz43SMN-jfRyq7Rk6Marp4fx3T9Hb3e1y_pAsnu4f5zeLRGesiAmlwpic60znUsi8zCUpOUguOBNCETLbnZrxihNKqcnLTOsiI6VQhhclY8Cm6PLQ2w1lC9WqC7ZVYbv6exf7BhumcOg |
CitedBy_id | crossref_primary_10_1002_14651858_CD003477_pub3 crossref_primary_10_1016_j_ijnurstu_2018_07_019 crossref_primary_10_1186_s12877_018_0834_z crossref_primary_10_3233_JAD_148004 crossref_primary_10_1371_journal_pone_0190298 crossref_primary_10_1002_14651858_CD003477_pub4 crossref_primary_10_1039_D0RA00663G crossref_primary_10_1111_jan_12663 crossref_primary_10_1017_S1041610216001083 crossref_primary_10_1111_jan_12544 crossref_primary_10_1371_journal_pone_0285701 crossref_primary_10_1016_j_gerinurse_2015_02_004 crossref_primary_10_1159_000487263 crossref_primary_10_1371_journal_pone_0258852 crossref_primary_10_3390_ijerph18147509 crossref_primary_10_1016_j_jfma_2023_11_012 crossref_primary_10_1177_1471301220965557 crossref_primary_10_3390_ijerph17082650 crossref_primary_10_1080_13607863_2016_1220919 crossref_primary_10_1002_gps_5193 crossref_primary_10_1016_j_ijnurstu_2017_11_008 crossref_primary_10_1186_s12955_023_02094_1 crossref_primary_10_1017_S1041610214000775 crossref_primary_10_1017_S1041610216002167 crossref_primary_10_1186_s12877_020_1499_y crossref_primary_10_1111_jgs_14880 crossref_primary_10_1159_000468923 crossref_primary_10_1017_S1041610215002100 crossref_primary_10_1111_jgs_13946 crossref_primary_10_1186_s12877_016_0312_4 crossref_primary_10_1136_bmjoq_2020_000916 crossref_primary_10_1177_15333175211033721 crossref_primary_10_1186_s12877_015_0125_x crossref_primary_10_1016_j_jamda_2018_01_002 crossref_primary_10_1111_jocn_16163 crossref_primary_10_1093_sleep_zsz251 crossref_primary_10_1016_j_eurger_2016_01_012 crossref_primary_10_1111_jan_12570 crossref_primary_10_1007_s11136_018_2041_y crossref_primary_10_1186_s12877_017_0421_8 crossref_primary_10_1002_gps_5519 crossref_primary_10_1016_j_gerinurse_2020_02_001 crossref_primary_10_1186_s12955_019_1095_z crossref_primary_10_1016_j_gerinurse_2020_11_009 crossref_primary_10_1016_j_socscimed_2015_12_032 crossref_primary_10_1016_j_refiri_2021_100232 crossref_primary_10_1080_13607863_2016_1211621 crossref_primary_10_1177_14713012221137472 crossref_primary_10_3390_ijerph17186738 crossref_primary_10_1186_s12877_020_1434_2 crossref_primary_10_1080_00981389_2018_1447531 crossref_primary_10_1017_S0033291718003987 crossref_primary_10_1016_j_healthpol_2017_03_013 crossref_primary_10_1590_1516_4446_2014_1642 crossref_primary_10_1080_13607863_2016_1227766 crossref_primary_10_1017_S1041610214002610 crossref_primary_10_1016_j_archger_2016_06_008 crossref_primary_10_1186_s12877_016_0249_7 crossref_primary_10_1016_j_jamda_2016_02_025 crossref_primary_10_3389_fpsyt_2023_1073030 crossref_primary_10_1186_s12877_022_03450_4 crossref_primary_10_1002_gps_4337 crossref_primary_10_1017_S1041610214002506 crossref_primary_10_1186_s12877_017_0620_3 crossref_primary_10_1017_S1041610215000137 crossref_primary_10_1186_s12877_015_0025_0 crossref_primary_10_1186_s12912_017_0230_6 crossref_primary_10_1016_j_healthpol_2015_09_014 crossref_primary_10_1186_s12955_018_0959_y crossref_primary_10_1371_journal_pone_0115248 crossref_primary_10_3390_ijerph21020135 crossref_primary_10_1016_j_jamda_2014_07_015 crossref_primary_10_1136_bmjopen_2019_030743 crossref_primary_10_1016_j_jamda_2017_06_033 crossref_primary_10_1136_bmjopen_2019_030988 crossref_primary_10_1111_psyg_12495 crossref_primary_10_1002_gps_4620 crossref_primary_10_1080_13607863_2015_1078285 crossref_primary_10_1002_nop2_265 crossref_primary_10_1017_S1041610220000642 crossref_primary_10_1002_14651858_CD009844_pub2 crossref_primary_10_1111_iwj_13081 crossref_primary_10_1016_j_jamda_2016_07_011 crossref_primary_10_12968_ijpn_2019_25_9_432 crossref_primary_10_1038_s41598_021_89646_x crossref_primary_10_1111_jan_12528 crossref_primary_10_1016_j_ijnurstu_2015_02_013 crossref_primary_10_1017_S1041610216000570 crossref_primary_10_1016_j_ijnurstu_2018_09_004 crossref_primary_10_3390_jcm12020401 crossref_primary_10_1007_s41184_017_0008_z crossref_primary_10_1016_j_gaceta_2016_07_006 crossref_primary_10_1111_opn_12447 crossref_primary_10_1002_nop2_2078 crossref_primary_10_1007_s12439_014_0107_z crossref_primary_10_1002_gps_4629 crossref_primary_10_1159_000448806 crossref_primary_10_1136_bmjopen_2020_040753 crossref_primary_10_1017_S0144686X16000970 crossref_primary_10_1002_mpr_1509 crossref_primary_10_3233_JIFS_220181 crossref_primary_10_1111_jpm_12934 crossref_primary_10_1177_1471301218782502 crossref_primary_10_1186_s12877_022_03443_3 crossref_primary_10_3390_ijerph19052799 crossref_primary_10_1016_S0140_6736_17_31363_6 crossref_primary_10_36106_ijar_5601847 crossref_primary_10_1016_j_jamda_2015_08_005 crossref_primary_10_1111_ggi_12948 |
ContentType | Journal Article |
Copyright | Copyright © 2014 American Medical Directors Association, Inc. Published by Elsevier Inc. All rights reserved. |
Copyright_xml | – notice: Copyright © 2014 American Medical Directors Association, Inc. Published by Elsevier Inc. All rights reserved. |
CorporateAuthor | RightTimePlaceCare Consortium |
CorporateAuthor_xml | – name: RightTimePlaceCare Consortium |
DBID | CGR CUY CVF ECM EIF NPM |
DOI | 10.1016/j.jamda.2013.09.010 |
DatabaseName | Medline MEDLINE MEDLINE (Ovid) MEDLINE MEDLINE PubMed |
DatabaseTitle | MEDLINE Medline Complete MEDLINE with Full Text PubMed MEDLINE (Ovid) |
DatabaseTitleList | MEDLINE |
Database_xml | – sequence: 1 dbid: NPM name: PubMed url: https://proxy.k.utb.cz/login?url=http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed sourceTypes: Index Database – sequence: 2 dbid: EIF name: MEDLINE url: https://proxy.k.utb.cz/login?url=https://www.webofscience.com/wos/medline/basic-search sourceTypes: Index Database |
DeliveryMethod | no_fulltext_linktorsrc |
Discipline | Public Health |
EISSN | 1538-9375 |
ExternalDocumentID | 24220139 |
Genre | Research Support, Non-U.S. Gov't Journal Article Comparative Study |
GeographicLocations | Europe |
GeographicLocations_xml | – name: Europe |
GroupedDBID | --- --K .1- .FO 0R~ 1B1 1P~ 354 4.4 457 4CK 53G 5GY 5VS AAEDT AAEDW AALRI AAQFI AAQQT AAQXK AAWTL AAXUO AAYEP ABFRF ABJNI ABLJU ABMAC ACGFS ADBBV ADBIZ ADMUD ADPAM AEFWE AENEX AEVXI AFCTW AFJKZ AFRHN AFTJW AFTRI AFUWQ AHRYX AITUG AIZYK AJUYK ALMA_UNASSIGNED_HOLDINGS AMRAJ ASPBG AVWKF AZFZN BELOY CGR CS3 CUY CVF DU5 EBS ECM EFJIC EIF EJD EO8 EX3 F5P FDB FEDTE FGOYB G-Q HVGLF HZ~ IHE J1W KMI KOM M41 NPM NQ- NTWIH O9- OD~ OO0 OVD R2- RIG ROL RPZ SEL SES SEW TEORI UNMZH WOQ WOW XH2 Z5R ZFV |
ID | FETCH-LOGICAL-c528t-116ff73c5c79697b790b3e9363266a004936c23d30111f7b5cc850b6af38b22e2 |
IngestDate | Sat Sep 28 07:54:24 EDT 2024 |
IsDoiOpenAccess | false |
IsOpenAccess | true |
IsPeerReviewed | true |
IsScholarly | true |
Issue | 1 |
Keywords | international comparisons quality of life quality of care Dementia |
Language | English |
License | Copyright © 2014 American Medical Directors Association, Inc. Published by Elsevier Inc. All rights reserved. |
LinkModel | OpenURL |
MergedId | FETCHMERGED-LOGICAL-c528t-116ff73c5c79697b790b3e9363266a004936c23d30111f7b5cc850b6af38b22e2 |
OpenAccessLink | http://www.jamda.com/article/S152586101300546X/pdf |
PMID | 24220139 |
ParticipantIDs | pubmed_primary_24220139 |
PublicationCentury | 2000 |
PublicationDate | 2014-Jan |
PublicationDateYYYYMMDD | 2014-01-01 |
PublicationDate_xml | – month: 01 year: 2014 text: 2014-Jan |
PublicationDecade | 2010 |
PublicationPlace | United States |
PublicationPlace_xml | – name: United States |
PublicationTitle | Journal of the American Medical Directors Association |
PublicationTitleAlternate | J Am Med Dir Assoc |
PublicationYear | 2014 |
SSID | ssj0020196 |
Score | 2.4486744 |
Snippet | To explore how quality of life (QoL) and quality of care (QoC) for people with dementia (PwD) vary across 8 European countries; to explore how QoL and QoC for... |
SourceID | pubmed |
SourceType | Index Database |
StartPage | 54 |
SubjectTerms | Accidental Falls - statistics & numerical data Aged, 80 and over Cross-Sectional Studies Dementia - epidemiology Depression - epidemiology Drug Utilization Europe - epidemiology Female Home Care Services Humans Male Pain - epidemiology Pressure Ulcer - epidemiology Prospective Studies Proxy Psychotropic Drugs - therapeutic use Quality of Health Care Quality of Life Residential Facilities Restraint, Physical - statistics & numerical data Self Report Surveys and Questionnaires Weight Loss |
Title | Quality of life and quality of care for people with dementia receiving long term institutional care or professional home care: the European RightTimePlaceCare study |
URI | https://www.ncbi.nlm.nih.gov/pubmed/24220139 |
Volume | 15 |
hasFullText | |
inHoldings | 1 |
isFullTextHit | |
isPrint | |
link | http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwnV1Lb9NAEF6l5YKEUHkWCmgO3CpX8WNtL7cKFSIOFSqt1Ftlb3ZFSuK0UnLh9_AjOTIP21liEI-LFe16rWjn08zOt_NQ6nWVoQ3GY0DkNbUw0-iwmjKzUZbUeVUaG7spB8ie5pOL7MOlvhyNvgdRS-tVfWS__jKv5H-kimMoV8qS_QfJ9h_FAfyN8sUnShiffyVjKYDBd-TzmZeLgNvNGEd1URihhIkL5zplPnBWHaKqczOmE-bUb4hUNEWmc-iA8IO8npYH5TsOPy8Xjme6iJCezz8jP59SSj4SNU-JTUHx2uH5N8hp2dwXiQamBkDbuOFcIspNZOBNKrQPX1zA8a5Xdk7NXvooliBg4Mw1aArerzndWtovN01vjz4tuZUUpS3htpyEPEicBTyIC3R3Ko1YeuWuByAWTS2lqwcGRLiM66PrajGlslRxymVwJfQ2gNTNgjGFBxx6x_x5dquqdze1o3aKklqOnBLL1BIFVLOoq5DFsYiDf0M1rNsvbPlDfC4631P3W4HCsaDzgRq55qG6J2wwSJLbI_WtRSosPRBSAZEKt5sxwhMgUkGQCoRU6JAKPVKBkAqEVPgJqbKelgdIBUIqz7wBxBp0OIUhToFx-lhdvDs5fzuJ2v4gkdVJuYriOPe-SK22hclNURdmXKfOpDm6JHlFvm-a2ySdkg2LfVFra0s9Rh3k07JOEpc8UbvNsnH7CtKk1lmS1UlWWXQwrBnjKybXsTNx5rx5pp7KJl_dSBGYq277n_925kDd3eD0hbrjUeu4l3iEXdWvWN4_ALLWotY |
link.rule.ids | 780 |
linkProvider | National Library of Medicine |
openUrl | ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Quality+of+life+and+quality+of+care+for+people+with+dementia+receiving+long+term+institutional+care+or+professional+home+care%3A+the+European+RightTimePlaceCare+study&rft.jtitle=Journal+of+the+American+Medical+Directors+Association&rft.au=Beerens%2C+Hanneke+C&rft.au=Sutcliffe%2C+Caroline&rft.au=Renom-Guiteras%2C+Anna&rft.au=Soto%2C+Maria+E&rft.date=2014-01-01&rft.eissn=1538-9375&rft.volume=15&rft.issue=1&rft.spage=54&rft_id=info:doi/10.1016%2Fj.jamda.2013.09.010&rft_id=info%3Apmid%2F24220139&rft_id=info%3Apmid%2F24220139&rft.externalDocID=24220139 |