Agency in dementia care: systematic review and meta-ethnography

• Published in: International psychogeriatrics Vol. 31; no. 5; pp. 627 - 642
• Main Authors: Bosco, Alessandro, Schneider, Justine, Coleston-Shields, Donna Maria, Jawahar, Kaanthan, Higgs, Paul, Orrell, Martin
• Format: Journal Article
• Language: English
• Published: Cambridge, UK Cambridge University Press 01.05.2019; Elsevier Inc
• Subjects: agency; Autonomy; Caregivers; Caregivers - legislation & jurisprudence; Caregivers - psychology; Cognition & reasoning; Cognitive models; Data analysis; Decision Making; Dementia; Dementia - therapy; Ethnography; Everyday life; Families & family life; Family Relations; Health services; Humans; Influence; Medical personnel; Medical Subject Headings-MeSH; Mental Competency - legislation & jurisprudence; Mental Competency - psychology; Metacognition; Patient Care Planning; Personal Autonomy; Power; Qualitative research; Search strategies; Social change; Social services; Social structure; Systematic review; Terminal Care; United Kingdom > UK; autonomy; dementia; agency; decision-making; metacognition

ABSTRACTObjectivesDementia often limits the agency of the person to such an extent that there is need for external support in making daily life decisions. This support is usually provided by family members who are sometimes legally empowered to engage in decision-making on behalf of the person for w...