The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children

: media-1vid110.1542/5839990273001PEDS-VA_2017-4161 OBJECTIVES: To estimate the national prevalence of parent-reported autism spectrum disorder (ASD) diagnosis among US children aged 3 to 17 years as well as their treatment and health care experiences using the 2016 National Survey of Children'...

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Published inPediatrics (Evanston) Vol. 142; no. 6
Main Authors Kogan, Michael D, Vladutiu, Catherine J, Schieve, Laura A, Ghandour, Reem M, Blumberg, Stephen J, Zablotsky, Benjamin, Perrin, James M, Shattuck, Paul, Kuhlthau, Karen A, Harwood, Robin L, Lu, Michael C
Format Journal Article
LanguageEnglish
Published United States 01.12.2018
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Abstract : media-1vid110.1542/5839990273001PEDS-VA_2017-4161 OBJECTIVES: To estimate the national prevalence of parent-reported autism spectrum disorder (ASD) diagnosis among US children aged 3 to 17 years as well as their treatment and health care experiences using the 2016 National Survey of Children's Health (NSCH). The 2016 NSCH is a nationally representative survey of 50 212 children focused on the health and well-being of children aged 0 to 17 years. The NSCH collected parent-reported information on whether children ever received an ASD diagnosis by a care provider, current ASD status, health care use, access and challenges, and methods of treatment. We calculated weighted prevalence estimates of ASD, compared health care experiences of children with ASD to other children, and examined factors associated with increased likelihood of medication and behavioral treatment. Parents of an estimated 1.5 million US children aged 3 to 17 years (2.50%) reported that their child had ever received an ASD diagnosis and currently had the condition. Children with parent-reported ASD diagnosis were more likely to have greater health care needs and difficulties accessing health care than children with other emotional or behavioral disorders (attention-deficit/hyperactivity disorder, anxiety, behavioral or conduct problems, depression, developmental delay, Down syndrome, intellectual disability, learning disability, Tourette syndrome) and children without these conditions. Of children with current ASD, 27% were taking medication for ASD-related symptoms, whereas 64% received behavioral treatments in the last 12 months, with variations by sociodemographic characteristics and co-occurring conditions. The estimated prevalence of US children with a parent-reported ASD diagnosis is now 1 in 40, with rates of ASD-specific treatment usage varying by children's sociodemographic and co-occurring conditions.
AbstractList : media-1vid110.1542/5839990273001PEDS-VA_2017-4161 OBJECTIVES: To estimate the national prevalence of parent-reported autism spectrum disorder (ASD) diagnosis among US children aged 3 to 17 years as well as their treatment and health care experiences using the 2016 National Survey of Children's Health (NSCH). The 2016 NSCH is a nationally representative survey of 50 212 children focused on the health and well-being of children aged 0 to 17 years. The NSCH collected parent-reported information on whether children ever received an ASD diagnosis by a care provider, current ASD status, health care use, access and challenges, and methods of treatment. We calculated weighted prevalence estimates of ASD, compared health care experiences of children with ASD to other children, and examined factors associated with increased likelihood of medication and behavioral treatment. Parents of an estimated 1.5 million US children aged 3 to 17 years (2.50%) reported that their child had ever received an ASD diagnosis and currently had the condition. Children with parent-reported ASD diagnosis were more likely to have greater health care needs and difficulties accessing health care than children with other emotional or behavioral disorders (attention-deficit/hyperactivity disorder, anxiety, behavioral or conduct problems, depression, developmental delay, Down syndrome, intellectual disability, learning disability, Tourette syndrome) and children without these conditions. Of children with current ASD, 27% were taking medication for ASD-related symptoms, whereas 64% received behavioral treatments in the last 12 months, with variations by sociodemographic characteristics and co-occurring conditions. The estimated prevalence of US children with a parent-reported ASD diagnosis is now 1 in 40, with rates of ASD-specific treatment usage varying by children's sociodemographic and co-occurring conditions.
Author Kuhlthau, Karen A
Harwood, Robin L
Zablotsky, Benjamin
Shattuck, Paul
Lu, Michael C
Vladutiu, Catherine J
Blumberg, Stephen J
Schieve, Laura A
Kogan, Michael D
Perrin, James M
Ghandour, Reem M
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  surname: Kogan
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  organization: Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland; mkogan@hrsa.gov
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  givenname: Catherine J
  surname: Vladutiu
  fullname: Vladutiu, Catherine J
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  givenname: Reem M
  surname: Ghandour
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  organization: Health Resources and Services Administration, Maternal and Child Health Bureau, Rockville, Maryland
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  surname: Blumberg
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  organization: National Center for Health Statistics, Centers for Disease Control and Prevention, Hyattsville, Maryland
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  organization: AJ Drexel Autism Institute, School of Public Health, Drexel University, Philadelphia, Pennsylvania; and
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  givenname: Karen A
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  fullname: Kuhlthau, Karen A
  organization: Department of Pediatrics, Harvard Medical School, Harvard University and MassGeneral Hospital for Children, Boston, Massachusetts
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  organization: Office of the Dean, Milken Institute School of Public Health, George Washington University, Washington, District of Columbia
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Snippet : media-1vid110.1542/5839990273001PEDS-VA_2017-4161 OBJECTIVES: To estimate the national prevalence of parent-reported autism spectrum disorder (ASD) diagnosis...
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SubjectTerms Adolescent
Adult
Autism Spectrum Disorder - diagnosis
Autism Spectrum Disorder - epidemiology
Autism Spectrum Disorder - psychology
Child
Child, Preschool
Female
Health Surveys - trends
Humans
Male
Parents - psychology
Prevalence
United States - epidemiology
Young Adult
Title The Prevalence of Parent-Reported Autism Spectrum Disorder Among US Children
URI https://www.ncbi.nlm.nih.gov/pubmed/30478241
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