Enhancing Reuse of Data and Biological Material in Medical Research: From FAIR to FAIR-Health

• Published in: Biopreservation and biobanking Vol. 16; no. 2; p. 97
• Main Authors: Holub, Petr, Kohlmayer, Florian, Prasser, Fabian, Mayrhofer, Michaela Th, Schlünder, Irene, Martin, Gillian M, Casati, Sara, Koumakis, Lefteris, Wutte, Andrea, Kozera, Łukasz, Strapagiel, Dominik, Anton, Gabriele, Zanetti, Gianluigi, Sezerman, Osman Ugur, Mendy, Maimuna, Valík, Dalibor, Lavitrano, Marialuisa, Dagher, Georges, Zatloukal, Kurt, van Ommen, GertJan B, Litton, Jan-Eric
• Format: Journal Article
• Language: English
• Published: United States 01.04.2018
• Subjects: Biological Specimen Banks - organization & administration; Biological Specimen Banks - standards; Confidentiality - standards; Databases, Factual - standards; Guidelines as Topic; Humans; Information Dissemination - methods; open science; incentives; FAIR (Findable, Accessible, Interoperable, and Reusable) principles; provenance information management; privacy protection; quality

The known challenge of underutilization of data and biological material from biorepositories as potential resources for medical research has been the focus of discussion for over a decade. Recently developed guidelines for improved data availability and reusability-entitled FAIR Principles (Findabil...