The development and initial validation of the PROMIS®+HF‐27 and PROMIS+HF‐10 profiles

Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF (PROMIS+HF) profile measure, including universal and HF‐specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for r...

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Published inESC Heart Failure Vol. 9; no. 5; pp. 3380 - 3392
Main Authors Ahmad, Faraz S., Jackson, Kathryn L., Yount, Susan E., Rothrock, Nan E., Kallen, Michael A., Lacson, Leilani, Bilimoria, Karl Y., Kho, Abel N., Mutharasan, Raja Kannan, McCullough, Peter A., Bruckel, Jeffrey, Fedson, Savitri, Kimmel, Stephen E., Eton, David T., Grady, Kathleen L., Yancy, Clyde W., Cella, David
Format Journal Article
LanguageEnglish
Published England John Wiley & Sons, Inc 01.10.2022
John Wiley and Sons Inc
Wiley
Subjects
Chronic illnesses
Cross-Sectional Studies
Datasets
Diabetes
Electronic health records
Ethnicity
Focus groups
Health status
Heart failure
Heart Failure - diagnosis
Hispanic Americans
Hospitalization
Humans
Mental depression
Original
Outcomes research
Patients
Patient‐reported outcomes
Pulmonary arteries
Quality of Life
Quantitative psychology
Reproducibility of Results
Surveys and Questionnaires
New York
United States > US
Heart failure
Health status
Patient-reported outcomes
Outcomes research
Quality of life
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Abstract Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF (PROMIS+HF) profile measure, including universal and HF‐specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use. Methods and results Candidate items were selected based on psychometric properties and symptom range coverage. HF clinicians (n = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF‐27 and PROMIS+HF‐10 profiles with summary scores (0–100) for overall, physical, mental, and social health. In a cross‐sectional sample (n = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman–Brown), test–retest reliability (intraclass coefficient; n = 100), known‐groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample (n = 75), we evaluated responsiveness of baseline/follow‐up scores by calculating mean differences and Cohen's d and comparing with paired t‐tests. Internal consistency was good to excellent (α 0.82–0.94) for all PROMIS+HF‐27 scores and acceptable to good (α/Spearman–Brown 0.60–0.85) for PROMIS+HF‐10 scores. Test–retest intraclass coefficients were acceptable to excellent (0.75–0.97). Both profiles demonstrated known‐groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF‐27 and PROMIS+HF‐10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group‐based increase of 7.6–8.3 points represented a small to medium change (Cohen's d = 0.40–0.42). For the PROMIS+HF physical summary scores, a group‐based increase of 5.0–5.9 points represented a small to medium change (Cohen's d = 0.29–0.35). Conclusions The PROMIS+HF‐27 and PROMIS+HF‐10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient‐centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision‐making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline‐directed medical therapy.
AbstractList Abstract Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF (PROMIS+HF) profile measure, including universal and HF‐specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use. Methods and results Candidate items were selected based on psychometric properties and symptom range coverage. HF clinicians (n = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF‐27 and PROMIS+HF‐10 profiles with summary scores (0–100) for overall, physical, mental, and social health. In a cross‐sectional sample (n = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman–Brown), test–retest reliability (intraclass coefficient; n = 100), known‐groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample (n = 75), we evaluated responsiveness of baseline/follow‐up scores by calculating mean differences and Cohen's d and comparing with paired t‐tests. Internal consistency was good to excellent (α 0.82–0.94) for all PROMIS+HF‐27 scores and acceptable to good (α/Spearman–Brown 0.60–0.85) for PROMIS+HF‐10 scores. Test–retest intraclass coefficients were acceptable to excellent (0.75–0.97). Both profiles demonstrated known‐groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF‐27 and PROMIS+HF‐10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group‐based increase of 7.6–8.3 points represented a small to medium change (Cohen's d = 0.40–0.42). For the PROMIS+HF physical summary scores, a group‐based increase of 5.0–5.9 points represented a small to medium change (Cohen's d = 0.29–0.35). Conclusions The PROMIS+HF‐27 and PROMIS+HF‐10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient‐centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision‐making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline‐directed medical therapy.
Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF (PROMIS+HF) profile measure, including universal and HF‐specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use. Methods and results Candidate items were selected based on psychometric properties and symptom range coverage. HF clinicians (n = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF‐27 and PROMIS+HF‐10 profiles with summary scores (0–100) for overall, physical, mental, and social health. In a cross‐sectional sample (n = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman–Brown), test–retest reliability (intraclass coefficient; n = 100), known‐groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample (n = 75), we evaluated responsiveness of baseline/follow‐up scores by calculating mean differences and Cohen's d and comparing with paired t‐tests. Internal consistency was good to excellent (α 0.82–0.94) for all PROMIS+HF‐27 scores and acceptable to good (α/Spearman–Brown 0.60–0.85) for PROMIS+HF‐10 scores. Test–retest intraclass coefficients were acceptable to excellent (0.75–0.97). Both profiles demonstrated known‐groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF‐27 and PROMIS+HF‐10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group‐based increase of 7.6–8.3 points represented a small to medium change (Cohen's d = 0.40–0.42). For the PROMIS+HF physical summary scores, a group‐based increase of 5.0–5.9 points represented a small to medium change (Cohen's d = 0.29–0.35). Conclusions The PROMIS+HF‐27 and PROMIS+HF‐10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient‐centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision‐making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline‐directed medical therapy.
AimsHeart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®-Plus-HF (PROMIS+HF) profile measure, including universal and HF-specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use.Methods and resultsCandidate items were selected based on psychometric properties and symptom range coverage. HF clinicians (n = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF-27 and PROMIS+HF-10 profiles with summary scores (0–100) for overall, physical, mental, and social health. In a cross-sectional sample (n = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman–Brown), test–retest reliability (intraclass coefficient; n = 100), known-groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample (n = 75), we evaluated responsiveness of baseline/follow-up scores by calculating mean differences and Cohen's d and comparing with paired t-tests. Internal consistency was good to excellent (α 0.82–0.94) for all PROMIS+HF-27 scores and acceptable to good (α/Spearman–Brown 0.60–0.85) for PROMIS+HF-10 scores. Test–retest intraclass coefficients were acceptable to excellent (0.75–0.97). Both profiles demonstrated known-groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF-27 and PROMIS+HF-10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group-based increase of 7.6–8.3 points represented a small to medium change (Cohen's d = 0.40–0.42). For the PROMIS+HF physical summary scores, a group-based increase of 5.0–5.9 points represented a small to medium change (Cohen's d = 0.29–0.35).ConclusionsThe PROMIS+HF-27 and PROMIS+HF-10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient-centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision-making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline-directed medical therapy.
Abstract Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF (PROMIS+HF) profile measure, including universal and HF‐specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use. Methods and results Candidate items were selected based on psychometric properties and symptom range coverage. HF clinicians ( n  = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF‐27 and PROMIS+HF‐10 profiles with summary scores (0–100) for overall, physical, mental, and social health. In a cross‐sectional sample ( n  = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman–Brown), test–retest reliability (intraclass coefficient; n  = 100), known‐groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample ( n  = 75), we evaluated responsiveness of baseline/follow‐up scores by calculating mean differences and Cohen's d and comparing with paired t ‐tests. Internal consistency was good to excellent ( α 0.82–0.94) for all PROMIS+HF‐27 scores and acceptable to good ( α /Spearman–Brown 0.60–0.85) for PROMIS+HF‐10 scores. Test–retest intraclass coefficients were acceptable to excellent (0.75–0.97). Both profiles demonstrated known‐groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF‐27 and PROMIS+HF‐10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group‐based increase of 7.6–8.3 points represented a small to medium change (Cohen's d  = 0.40–0.42). For the PROMIS+HF physical summary scores, a group‐based increase of 5.0–5.9 points represented a small to medium change (Cohen's d  = 0.29–0.35). Conclusions The PROMIS+HF‐27 and PROMIS+HF‐10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient‐centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision‐making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline‐directed medical therapy.
Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®-Plus-HF (PROMIS+HF) profile measure, including universal and HF-specific items. To facilitate use, we developed shorter, PROMIS+HF profiles intended for research and clinical use. Candidate items were selected based on psychometric properties and symptom range coverage. HF clinicians (n = 43) rated item importance and clinical actionability. Based on these results, we developed the PROMIS+HF-27 and PROMIS+HF-10 profiles with summary scores (0-100) for overall, physical, mental, and social health. In a cross-sectional sample (n = 600), we measured internal consistency reliability (Cronbach's alpha and Spearman-Brown), test-retest reliability (intraclass coefficient; n = 100), known-groups validity via New York Heart Association (NYHA) class, and convergent validity with Kansas City Cardiomyopathy Questionnaire (KCCQ) scores. In a longitudinal sample (n = 75), we evaluated responsiveness of baseline/follow-up scores by calculating mean differences and Cohen's d and comparing with paired t-tests. Internal consistency was good to excellent (α 0.82-0.94) for all PROMIS+HF-27 scores and acceptable to good (α/Spearman-Brown 0.60-0.85) for PROMIS+HF-10 scores. Test-retest intraclass coefficients were acceptable to excellent (0.75-0.97). Both profiles demonstrated known-groups validity for the overall and physical health summary scores based on NYHA class, and convergent validity for nearly all scores compared with KCCQ scores. In the longitudinal sample, we demonstrated responsiveness for PROMIS+HF-27 and PROMIS+HF-10 overall and physical summary scores. For the PROMIS+HF overall summary scores, a group-based increase of 7.6-8.3 points represented a small to medium change (Cohen's d = 0.40-0.42). For the PROMIS+HF physical summary scores, a group-based increase of 5.0-5.9 points represented a small to medium change (Cohen's d = 0.29-0.35). The PROMIS+HF-27 and PROMIS+HF-10 profiles demonstrated good psychometric characteristics with evidence of responsiveness for overall and physical health. These new measures can facilitate patient-centred research and clinical care, such as improving care quality through symptom monitoring, facilitating shared decision-making, evaluating quality of care, assessing new interventions, and monitoring during the initiation and titration of guideline-directed medical therapy.
Author Rothrock, Nan E.
McCullough, Peter A.
Yancy, Clyde W.
Grady, Kathleen L.
Mutharasan, Raja Kannan
Bilimoria, Karl Y.
Kimmel, Stephen E.
Bruckel, Jeffrey
Jackson, Kathryn L.
Eton, David T.
Kallen, Michael A.
Kho, Abel N.
Ahmad, Faraz S.
Lacson, Leilani
Yount, Susan E.
Fedson, Savitri
Cella, David
AuthorAffiliation 13 Center for Patient Centered Outcomes, Institute of Public Health & Medicine Northwestern University Feinberg School of Medicine Chicago IL USA
6 Division of Cardiology University of Rochester Medical Center Rochester NY USA
1 Division of Cardiology, Department of Medicine Northwestern University Feinberg School of Medicine 676 North Saint Clair Street, Suite 600 Chicago IL 60611 USA
4 Surgical Outcomes and Quality Improvement Center (SOQIC), Department of Surgery and Center for Healthcare Studies Northwestern University Feinberg School of Medicine Chicago IL USA
12 Division of Cardiac Surgery, Department of Surgery Northwestern University Feinberg School of Medicine Chicago IL USA
9 Department of Epidemiology University of Florida College of Public Health and Health Professions and College of Medicine Gainesville FL USA
7 Section of Cardiology Michael E DeBakey Veterans Administration Medical Center Houston TX USA
10 Robert D. and Patricia E. Kern Center for the Science of Health Care Deli
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– name: 1 Division of Cardiology, Department of Medicine Northwestern University Feinberg School of Medicine 676 North Saint Clair Street, Suite 600 Chicago IL 60611 USA
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BackLink https://www.ncbi.nlm.nih.gov/pubmed/35841128$$D View this record in MEDLINE/PubMed
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CitedBy_id crossref_primary_10_1093_haschl_qxae038
crossref_primary_10_3390_jcdd10120486
crossref_primary_10_1016_j_jchf_2023_10_003
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DocumentTitleAlternate PROMIS+HF profiles
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Issue 5
Keywords Heart failure
Health status
Patient-reported outcomes
Outcomes research
Quality of life
Language English
License Attribution-NonCommercial
2022 The Authors. ESC Heart Failure published by John Wiley & Sons Ltd on behalf of European Society of Cardiology.
This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
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Snippet Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®‐Plus‐HF...
Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®-Plus-HF...
Abstract Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the...
AimsHeart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®-Plus-HF...
AIMSHeart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the PROMIS®-Plus-HF...
Abstract Aims Heart failure (HF) is a common and morbid condition impacting multiple health domains. We previously reported the development of the...
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StartPage 3380
SubjectTerms Chronic illnesses
Cross-Sectional Studies
Datasets
Diabetes
Electronic health records
Ethnicity
Focus groups
Health status
Heart failure
Heart Failure - diagnosis
Hispanic Americans
Hospitalization
Humans
Mental depression
Original
Outcomes research
Patients
Patient‐reported outcomes
Pulmonary arteries
Quality of Life
Quantitative psychology
Reproducibility of Results
Surveys and Questionnaires
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Title The development and initial validation of the PROMIS®+HF‐27 and PROMIS+HF‐10 profiles
URI https://onlinelibrary.wiley.com/doi/abs/10.1002%2Fehf2.14061
https://www.ncbi.nlm.nih.gov/pubmed/35841128
https://www.proquest.com/docview/2743818265/abstract/
https://search.proquest.com/docview/2691053488
https://pubmed.ncbi.nlm.nih.gov/PMC9715763
https://doaj.org/article/bd9a732e0b0d45aeabb751f5a29f2c5e
Volume 9
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