YOU CAN USE MY NAME; YOU DON'T HAVE TO STEAL MY STORY - A CRITIQUE OF ANONYMITY IN INDIGENOUS STUDIES

• Published in: Developing world bioethics Vol. 10; no. 2; pp. 104 - 110
• Main Authors: SVALASTOG, ANNA-LYDIA, ERIKSSON, STEFAN
• Format: Journal Article
• Language: English
• Published: Oxford, UK Blackwell Publishing Ltd 01.08.2010
• Subjects: Anonymity; Anonyms and Pseudonyms; benefit sharing; bioethics; Community participation; Community-Based Participatory Research - ethics; Confidentiality; Confidentiality - ethics; Ethics; Ethics, Research; Etik; HUMANIORA och RELIGIONSVETENSKAP; HUMANITIES and RELIGION; Humans; Identification; Indigenous rights; indigenous studies; Informed Consent - ethics; Ownership - ethics; Population Groups; Property rights; Religion/Theology; Religionsvetenskap/Teologi; research ethics; Research methods; Research projects; Research Subjects; Researcher-Subject Relations - ethics; traditional knowledge
• DOI: 10.1111/j.1471-8847.2010.00276.x
• ISSN: 1471-8731; 1471-8847

ABSTRACT Our claim in this paper is that not being identified as the data source might cause harm to a person or group. Therefore, in some cases the default of anonymisation should be replaced by a careful deliberation, together with research subjects, of how to handle the issues of identification and confidentiality. Our prime example in this article is community participatory research and similar endeavours on indigenous groups. The theme, content and aim of the research, and the question of how to handle property rights and ownership of research results, as well as who should be in charge of the research process, including the process of creating anonymity, should all be answered, before anonymity is accepted.