Strategies to Build Trust and Recruit African American and Latino Community Residents for Health Research: A Cohort Study

Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Methods Using a community and academic partnership in July 2012, r...

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Published inClinical and translational science Vol. 8; no. 5; pp. 412 - 420
Main Authors Sankaré, Ibrahima C., Bross, Rachelle, Brown, Arleen F., del Pino, Homero E., Jones, Loretta F., Morris, D'Ann M., Porter, Courtney, Lucas‐Wright, Aziza, Vargas, Roberto, Forge, Nell, Norris, Keith C., Kahn, Katherine L.
Format Journal Article
LanguageEnglish
Published United States John Wiley & Sons, Inc 01.10.2015
John Wiley and Sons Inc
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Abstract Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Methods Using a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word‐of‐mouth, community agencies, direct marketing, and extant study participants. Results Among 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word‐of‐mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%). Conclusions Although African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
AbstractList BACKGROUNDThis study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers.METHODSUsing a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word-of-mouth, community agencies, direct marketing, and extant study participants.RESULTSAmong 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word-of-mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%).CONCLUSIONSAlthough African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Using a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word-of-mouth, community agencies, direct marketing, and extant study participants. Among 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word-of-mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%). Although African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Methods Using a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word-of-mouth, community agencies, direct marketing, and extant study participants. Results Among 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word-of-mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%). Conclusions Although African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
Abstract Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Methods Using a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word‐of‐mouth, community agencies, direct marketing, and extant study participants. Results Among 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word‐of‐mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%). Conclusions Although African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack of trust between underrepresented communities and researchers. Methods Using a community and academic partnership in July 2012, residents of a South Los Angeles neighborhood were exposed to research recruitment strategies: referral by word‐of‐mouth, community agencies, direct marketing, and extant study participants. Results Among 258 community members exposed to recruitment strategies, 79.8% completed the study. Exposed individuals identified their most important method for learning about the study as referral by study participants (39.8%), community agencies (30.6%), word‐of‐mouth (17.5%), or direct marketing promotion (12.1%). Study completion rates varied by recruitment method: referral by community agencies (88.7%), referral by participants (80.4%), direct marketing promotion (86.2%), word of mouth (64.3%). Conclusions Although African American and Latino communities are often described as difficult to engage in research, we found high levels of research participation and completion when recruitment strategies emerged from the community itself. This suggests recruitment strategies based on CPPR principles represent an important opportunity for addressing health disparities and our high rates of research completion should provide optimism and a road map for next steps.
Author Norris, Keith C.
Sankaré, Ibrahima C.
Porter, Courtney
Bross, Rachelle
Morris, D'Ann M.
Forge, Nell
Kahn, Katherine L.
Jones, Loretta F.
Vargas, Roberto
Brown, Arleen F.
del Pino, Homero E.
Lucas‐Wright, Aziza
AuthorAffiliation 1 David Geffen School of Medicine at University of California Los Angeles California USA
3 Charles R. Drew University of Medicine and Science Los Angeles California USA
4 Healthy African American Families Los Angeles California USA
5 Los Angeles Urban League Los Angeles California USA
6 RAND Corporation Santa Monica California USA
2 Harbor‐UCLA Medical Center and Los Angeles Biomedical Research Institute Torrance California USA
AuthorAffiliation_xml – name: 6 RAND Corporation Santa Monica California USA
– name: 1 David Geffen School of Medicine at University of California Los Angeles California USA
– name: 2 Harbor‐UCLA Medical Center and Los Angeles Biomedical Research Institute Torrance California USA
– name: 4 Healthy African American Families Los Angeles California USA
– name: 5 Los Angeles Urban League Los Angeles California USA
– name: 3 Charles R. Drew University of Medicine and Science Los Angeles California USA
Author_xml – sequence: 1
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  surname: Kahn
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BackLink https://www.ncbi.nlm.nih.gov/pubmed/26094679$$D View this record in MEDLINE/PubMed
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Snippet Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research...
This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research and the lack...
Abstract Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical...
Background This study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research...
BACKGROUNDThis study used Community Partnered Participatory Research (CPPR) to address low participation of racial and ethnic minorities in medical research...
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SubjectTerms Advertising as Topic
African American
African Americans - psychology
Clinical Trials as Topic - methods
Cohort Studies
Community
Community Health Services
Community Partnered Participatory Research
Community-Institutional Relations
Direct marketing
Employment
Health Knowledge, Attitudes, Practice
Health Status Disparities
Healthcare Disparities - ethnology
Hispanic Americans - psychology
Humans
Information Dissemination
Latino
Los Angeles - epidemiology
Marketing of Health Services
Original s
Patient Selection
recruitment
Referral and Consultation
Registries
Research Subjects - psychology
Scholarships & fellowships
translational science
Trust
Word of mouth advertising
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Title Strategies to Build Trust and Recruit African American and Latino Community Residents for Health Research: A Cohort Study
URI https://onlinelibrary.wiley.com/doi/abs/10.1111%2Fcts.12273
https://www.ncbi.nlm.nih.gov/pubmed/26094679
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Volume 8
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