Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research

• Published in: Journal of the American Medical Informatics Association : JAMIA Vol. 21; no. 4; pp. 583 - 586
• Main Authors: Daugherty, Sarah E, Wahba, Sarita, Fleurence, Rachael
• Format: Journal Article
• Language: English
• Published: England BMJ Publishing Group 01.07.2014
• Series: Brief communication
• Subjects: Computer Communication Networks; Computer Security; Electronic Health Records - organization & administration; Focus on Building a Network for Patient-Centered Outcomes Research; Humans; Outcome Assessment (Health Care) - organization & administration; Patient Participation; Patient-Centered Care; United States; United States; PCORnet; PPRN; comparative effectiveness research; PCORI; infrastructure development

The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials. This paper provides an overview of the patient-powered research networks...