How and why patients made Long Covid

• Published in: Social science & medicine (1982) Vol. 268; p. 113426
• Main Authors: Callard, Felicity, Perego, Elisa
• Format: Journal Article
• Language: English
• Published: England Elsevier Ltd 01.01.2021; Pergamon Press Inc; Pergamon
• Subjects: Advocacy; Chronic Disease; Chronic illness; Citizen science; COVID-19; COVID-19 - epidemiology; COVID-19 - therapy; Humans; Illnesses; Long COVID; Long-hauler; Mapping; Pandemics; Patient activism; Patient groups; Patients; Patients - psychology; SARS-CoV-2; Short Communication; Terminology as Topic; United Kingdom - epidemiology; United States - epidemiology; United States; United Kingdom; Chronic illness; COVID-19; Patient groups; Long-hauler; SARS-CoV-2; Citizen science; Long Covid; Patient activism

Patients collectively made Long Covid – and cognate term ‘Long-haul Covid’ – in the first months of the pandemic. Patients, many with initially ‘mild’ illness, used various kinds of evidence and advocacy to demonstrate a longer, more complex course of illness than laid out in initial reports from Wu...