Recommendations for developing accessible patient information leaflets for clinical trials to address English language literacy as a barrier to research participation
Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifyin...
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| Published in | Current controlled trials in cardiovascular medicine Vol. 25; no. 1; pp. 624 - 16 |
|---|---|
| Main Authors | , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
London
BioMed Central
27.09.2024
BioMed Central Ltd BMC |
| Subjects | |
| Online Access | Get full text |
| ISSN | 1745-6215 1745-6215 |
| DOI | 10.1186/s13063-024-08471-5 |
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| Abstract | Background
Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge.
The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities.
Methods
A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations.
Results
The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility.
Conclusions
This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. |
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| AbstractList | Abstract Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities. Methods A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations. Results The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility. Conclusions This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities.BACKGROUNDLow English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities.A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations.METHODSA literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations.The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility.RESULTSThe framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility.This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials.CONCLUSIONSThis project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities. A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations. The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility. This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities. Methods A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations. Results The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility. Conclusions This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. Keywords: Patient information leaflet, Clinical trials, Recommendations, Accessible, Easy-read Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities. Methods A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations. Results The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility. Conclusions This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. BackgroundLow English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge.The aim of this project was to develop recommendations for developing accessible PILs for clinical trials through a literature review of published and grey literature and co-working with marginalised communities, patients, and health and social care charities.MethodsA literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations.ResultsThe framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility.ConclusionsThis project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often lengthy, complex and have poor readability; this is a persistent and prevalent problem common to trials across the world. Simplifying the information provided in PILs can lead to improved understanding, comprehension and knowledge. A literature review of MEDLINE, Embase and online resources was conducted, and recommendations for developing accessible PILs were extracted from eligible published and grey literature. Grey literature which contained insights into more inclusive forms of communication was also identified and summarised. Meetings were held with two racially marginalised community groups, two groups involving autistic adults and/or adults with learning difficulties and a patient advisory group. Examples of accessible PILs were shared and discussions held about the content and format of the PILs and suggestions for changes/improvements. National Voices, a coalition of health and social care charities in England, held a national online workshop with charities and lived experience partners. Recommendations identified from the multiple sources were coded, collated and refined to develop an overarching framework of recommendations. The framework consists of 74 recommendations for developing accessible PILs for clinical trials. Recommendations cover the five topics of formatting, information presentation, writing style, content and accessibility. This project has developed a comprehensive framework of recommendations to guide researchers in the development of accessible PILs for clinical trials. Findings from previous research and from co-working with marginalised communities, patients and health and social care charities were collated to ensure that a diverse range of voices and experiences informed the framework. These recommendations aim to support researchers to develop better study information to reduce English language literacy as a barrier to participation in clinical trials. |
| ArticleNumber | 624 |
| Audience | Academic |
| Author | Wylde, Vikki Roberts, Kirsty Jameson, Catherine Beswick, Andrew D. Johnson, Emma Brennan, Sharon |
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| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/39334243$$D View this record in MEDLINE/PubMed |
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| Cites_doi | 10.1186/s13063-022-06553-w 10.1186/s40900-023-00492-9 10.1001/jama.292.13.1593 10.1136/bmjopen-2020-037994 10.1186/s13063-020-04613-7 10.1001/jamanetworkopen.2021.10843 10.1192/bjo.2021.1040 10.11157/fohpe.v17i3.179 10.1177/0193945920987999 10.1016/j.bbmt.2011.07.022 10.1017/cts.2023.607 10.1186/1745-6215-15-62 10.1016/j.jclinepi.2023.02.023 10.1111/j.1547-5069.2007.00180.x 10.1186/s12910-016-0127-z 10.1177/15562646211037546 10.1016/j.jclinepi.2011.06.005 10.1016/s1470-2045(08)70128-1 10.1093/ageing/afad082 10.1177/1740774514560831 10.1016/j.cct.2019.105831 10.1080/10810730.2017.1341565 10.1002/cpt.2819 10.1525/jer.2006.1.4.45 10.1186/s13063-021-05849-7 10.1001/jamapediatrics.2013.1385 10.1080/10810730.2010.499990 10.1111/hex.12487 10.1177/15562646221146043 10.1016/j.cct.2016.06.005 10.1186/s13063-016-1384-3 10.1186/s13063-021-05276-8 10.1186/s13063-022-06712-z 10.1177/1556264616637483 10.1186/s13063-016-1652-2 10.1001/archpedi.159.4.347 10.1525/jer.2012.7.5.44 10.1525/jer.2007.2.4.69 10.1371/journal.pone.0047023 10.2147/nrr.S207497 10.1001/jama.2022.9083 10.1111/j.1525-1497.2006.00535.x 10.1525/jer.2013.8.4.1 10.1007/s40615-019-00661-1 10.1186/s12910-023-00920-1 10.1186/1471-2288-14-42 10.1186/s12874-022-01724-4 10.1016/j.jclinepi.2024.111366 10.1186/s40900-021-00265-2 10.1016/j.bbmt.2018.04.014 10.1177/23743735221092573 10.1186/1472-6939-14-28 10.1186/s13063-024-08054-4 10.1016/j.cct.2022.106733 10.1186/s12913-016-1272-2 10.3389/fphar.2021.740334 10.1177/1740774515609290 10.1177/1740774515594362 10.1038/s41416-023-02414-8 10.1177/13623613231202432 10.1111/j.1365-2354.2010.01207.x 10.4314/ahs.v20i2.51 10.1097/ccm.0000000000002815 10.1007/s11013-007-9070-2 |
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| References | J Cunningham-Erves (8471_CR61) 2022; 22 8471_CR19 S Treweek (8471_CR2) 2021; 22 SA Mayers (8471_CR64) 2023; 7 8471_CR21 8471_CR20 S Dawson (8471_CR5) 2022; 23 8471_CR69 8471_CR68 RL Sudore (8471_CR39) 2006; 21 8471_CR66 EJ Emanuel (8471_CR13) 2021; 4 E Cohn (8471_CR34) 2007; 39 S Jilka (8471_CR62) 2021; 7 R Spellecy (8471_CR48) 2018; 24 F Brockhoven (8471_CR60) 2023; 129 AR Tait (8471_CR65) 2005; 159 PE Breese (8471_CR29) 2007; 2 M Bader (8471_CR17) 2022; 116 M Medina-Cordoba (8471_CR25) 2021; 12 NE Kass (8471_CR52) 2015; 12 R Woodward-Kron (8471_CR37) 2016; 17 F Baiden (8471_CR31) 2016; 13 M Sustersic (8471_CR22) 2017; 20 T Symons (8471_CR10) 2022; 23 8471_CR18 A Nishimura (8471_CR16) 2013; 14 Z Yu (8471_CR40) 2021; 43 VW Simonds (8471_CR59) 2020; 7 JR Benatar (8471_CR15) 2012; 7 B Bonevski (8471_CR32) 2014; 14 AL Corneli (8471_CR58) 2006; 1 E Coleman (8471_CR24) 2021; 7 P Atwere (8471_CR44) 2018; 46 A Corneli (8471_CR6) 2023; 113 DH Bodicoat (8471_CR7) 2021; 22 K Gillies (8471_CR23) 2014; 15 BH Lorell (8471_CR51) 2015; 12 MD Witham (8471_CR4) 2020; 21 F Santel (8471_CR12) 2019; 85 H Herieka (8471_CR3) 2024; 25 G Muzanyi (8471_CR30) 2020; 20 8471_CR42 M Jefford (8471_CR56) 2008; 9 G Foe (8471_CR11) 2016; 11 G Brierley (8471_CR26) 2012; 65 DE Cortes (8471_CR35) 2010; 15 P Dellson (8471_CR45) 2016; 16 ED Solomon (8471_CR71) 2022; 17 K Bibbins-Domingo (8471_CR1) 2022; 327 L O'Sullivan (8471_CR9) 2020; 10 JA Hughson (8471_CR36) 2016; 17 AC Burks (8471_CR63) 2019; 9 SC Quinn (8471_CR53) 2012; 7 N Busisiwe (8471_CR33) 2023; 24 A Addissie (8471_CR46) 2016; 17 AR Tait (8471_CR67) 2013; 167 8471_CR72 VW Simonds (8471_CR49) 2017; 22 8471_CR70 V Adams (8471_CR57) 2007; 31 D Eeckhout (8471_CR47) 2023; 18 F Shiely (8471_CR38) 2023; 156 J Lentz (8471_CR50) 2016; 49 EM Denzen (8471_CR54) 2012; 18 8471_CR73 J Flory (8471_CR28) 2004; 292 B Brijnath (8471_CR74) 2024; 170 C Jameson (8471_CR41) 2023; 9 VA Goodwin (8471_CR75) 2023; 52 S Bull (8471_CR14) 2013; 8 KJ Head (8471_CR43) 2022; 9 P Dellson (8471_CR55) 2011; 20 P Hilton (8471_CR27) 2016; 17 8471_CR8 |
| References_xml | – ident: 8471_CR8 – volume: 23 start-page: 672 year: 2022 ident: 8471_CR5 publication-title: Trials doi: 10.1186/s13063-022-06553-w – volume: 9 start-page: 76 year: 2023 ident: 8471_CR41 publication-title: Res Involv Engagem doi: 10.1186/s40900-023-00492-9 – volume: 292 start-page: 1593 year: 2004 ident: 8471_CR28 publication-title: JAMA doi: 10.1001/jama.292.13.1593 – volume: 10 start-page: e037994 year: 2020 ident: 8471_CR9 publication-title: BMJ Open doi: 10.1136/bmjopen-2020-037994 – volume: 21 start-page: 694 year: 2020 ident: 8471_CR4 publication-title: Trials doi: 10.1186/s13063-020-04613-7 – volume: 4 start-page: 5 year: 2021 ident: 8471_CR13 publication-title: JAMA Netw Open doi: 10.1001/jamanetworkopen.2021.10843 – volume: 7 start-page: 8 year: 2021 ident: 8471_CR62 publication-title: BJPsych Open doi: 10.1192/bjo.2021.1040 – volume: 17 start-page: 82 year: 2016 ident: 8471_CR37 publication-title: Focus Health Prof Educ doi: 10.11157/fohpe.v17i3.179 – volume: 43 start-page: 915 year: 2021 ident: 8471_CR40 publication-title: West J Nurs Res doi: 10.1177/0193945920987999 – volume: 18 start-page: 183 year: 2012 ident: 8471_CR54 publication-title: Biol Blood Marrow Transplant doi: 10.1016/j.bbmt.2011.07.022 – ident: 8471_CR21 – ident: 8471_CR19 – volume: 7 start-page: e182 year: 2023 ident: 8471_CR64 publication-title: J Clin Transl Sci doi: 10.1017/cts.2023.607 – ident: 8471_CR70 – volume: 15 start-page: 62 year: 2014 ident: 8471_CR23 publication-title: Trials doi: 10.1186/1745-6215-15-62 – volume: 156 start-page: 105 year: 2023 ident: 8471_CR38 publication-title: J Clin Epidemiol doi: 10.1016/j.jclinepi.2023.02.023 – volume: 39 start-page: 273 year: 2007 ident: 8471_CR34 publication-title: J Nurs Scholarsh doi: 10.1111/j.1547-5069.2007.00180.x – volume: 17 start-page: 12 year: 2016 ident: 8471_CR46 publication-title: BMC Med Ethics doi: 10.1186/s12910-016-0127-z – volume: 17 start-page: 177 year: 2022 ident: 8471_CR71 publication-title: J Empir Res Hum Res Ethics doi: 10.1177/15562646211037546 – volume: 65 start-page: 147 year: 2012 ident: 8471_CR26 publication-title: J Clin Epidemiol doi: 10.1016/j.jclinepi.2011.06.005 – volume: 9 start-page: 485 year: 2008 ident: 8471_CR56 publication-title: Lancet Oncol doi: 10.1016/s1470-2045(08)70128-1 – volume: 52 start-page: afad082 year: 2023 ident: 8471_CR75 publication-title: Age Ageing doi: 10.1093/ageing/afad082 – volume: 12 start-page: 54 year: 2015 ident: 8471_CR52 publication-title: Clin Trials doi: 10.1177/1740774514560831 – volume: 85 start-page: 8 year: 2019 ident: 8471_CR12 publication-title: Contemp Clin Trials doi: 10.1016/j.cct.2019.105831 – volume: 22 start-page: 682 year: 2017 ident: 8471_CR49 publication-title: J Health Commun doi: 10.1080/10810730.2017.1341565 – volume: 113 start-page: 489 year: 2023 ident: 8471_CR6 publication-title: Clin Pharmacol Ther doi: 10.1002/cpt.2819 – volume: 1 start-page: 45 year: 2006 ident: 8471_CR58 publication-title: J Empir Res Hum Res Ethics doi: 10.1525/jer.2006.1.4.45 – volume: 22 start-page: 880 year: 2021 ident: 8471_CR7 publication-title: Trials doi: 10.1186/s13063-021-05849-7 – volume: 167 start-page: 640 year: 2013 ident: 8471_CR67 publication-title: JAMA Pediatr doi: 10.1001/jamapediatrics.2013.1385 – ident: 8471_CR73 – volume: 15 start-page: 172 issue: Suppl 2 year: 2010 ident: 8471_CR35 publication-title: J Health Commun doi: 10.1080/10810730.2010.499990 – ident: 8471_CR20 – volume: 20 start-page: 531 year: 2017 ident: 8471_CR22 publication-title: Health Exp Int J Public Particip Health Care Health Pol doi: 10.1111/hex.12487 – volume: 18 start-page: 3 year: 2023 ident: 8471_CR47 publication-title: J Empir Res Hum Res Ethics doi: 10.1177/15562646221146043 – volume: 49 start-page: 65 year: 2016 ident: 8471_CR50 publication-title: Contemp Clin Trials doi: 10.1016/j.cct.2016.06.005 – ident: 8471_CR18 – volume: 17 start-page: 263 year: 2016 ident: 8471_CR36 publication-title: Trials doi: 10.1186/s13063-016-1384-3 – volume: 22 start-page: 337 year: 2021 ident: 8471_CR2 publication-title: Trials doi: 10.1186/s13063-021-05276-8 – volume: 23 start-page: 8 year: 2022 ident: 8471_CR10 publication-title: Trials doi: 10.1186/s13063-022-06712-z – volume: 11 start-page: 31 year: 2016 ident: 8471_CR11 publication-title: J Empir Res Hum Res Ethics doi: 10.1177/1556264616637483 – volume: 17 start-page: 522 year: 2016 ident: 8471_CR27 publication-title: Trials doi: 10.1186/s13063-016-1652-2 – volume: 159 start-page: 347 year: 2005 ident: 8471_CR65 publication-title: Arch Pediatr Adolesc Med doi: 10.1001/archpedi.159.4.347 – volume: 7 start-page: 44 year: 2012 ident: 8471_CR53 publication-title: J Empir Res Hum Res Ethics doi: 10.1525/jer.2012.7.5.44 – volume: 2 start-page: 69 year: 2007 ident: 8471_CR29 publication-title: J Empir Res Hum Res Ethics doi: 10.1525/jer.2007.2.4.69 – volume: 7 start-page: 7 year: 2012 ident: 8471_CR15 publication-title: PLoS One doi: 10.1371/journal.pone.0047023 – volume: 9 start-page: 31 year: 2019 ident: 8471_CR63 publication-title: Nursing doi: 10.2147/nrr.S207497 – ident: 8471_CR72 – volume: 327 start-page: 2283 year: 2022 ident: 8471_CR1 publication-title: JAMA doi: 10.1001/jama.2022.9083 – volume: 21 start-page: 867 year: 2006 ident: 8471_CR39 publication-title: J Gen Intern Med doi: 10.1111/j.1525-1497.2006.00535.x – ident: 8471_CR69 – volume: 8 start-page: 1 year: 2013 ident: 8471_CR14 publication-title: J Empir Res Hum Res Ethics doi: 10.1525/jer.2013.8.4.1 – ident: 8471_CR42 – volume: 7 start-page: 327 year: 2020 ident: 8471_CR59 publication-title: J Racial Ethn Health Disparities doi: 10.1007/s40615-019-00661-1 – volume: 24 start-page: 43 year: 2023 ident: 8471_CR33 publication-title: BMC Med Ethics doi: 10.1186/s12910-023-00920-1 – volume: 14 start-page: 42 year: 2014 ident: 8471_CR32 publication-title: BMC Med Res Methodol doi: 10.1186/1471-2288-14-42 – volume: 22 start-page: 14 year: 2022 ident: 8471_CR61 publication-title: BMC Med Res Methodol doi: 10.1186/s12874-022-01724-4 – volume: 170 start-page: 111366 year: 2024 ident: 8471_CR74 publication-title: J Clin Epidemiol doi: 10.1016/j.jclinepi.2024.111366 – volume: 7 start-page: 31 year: 2021 ident: 8471_CR24 publication-title: Res Involv Engagem doi: 10.1186/s40900-021-00265-2 – volume: 24 start-page: 2145 year: 2018 ident: 8471_CR48 publication-title: Biol Blood Marrow Transpl doi: 10.1016/j.bbmt.2018.04.014 – volume: 9 start-page: 7 year: 2022 ident: 8471_CR43 publication-title: J Patient Exp doi: 10.1177/23743735221092573 – volume: 14 start-page: 15 year: 2013 ident: 8471_CR16 publication-title: BMC Med Ethics doi: 10.1186/1472-6939-14-28 – volume: 25 start-page: 255 year: 2024 ident: 8471_CR3 publication-title: Trials doi: 10.1186/s13063-024-08054-4 – volume: 116 start-page: 106733 year: 2022 ident: 8471_CR17 publication-title: Contemp Clin Trials doi: 10.1016/j.cct.2022.106733 – volume: 16 start-page: 5 year: 2016 ident: 8471_CR45 publication-title: BMC Health Serv Res doi: 10.1186/s12913-016-1272-2 – volume: 12 start-page: 740334 year: 2021 ident: 8471_CR25 publication-title: Front Pharmacol doi: 10.3389/fphar.2021.740334 – volume: 13 start-page: 234 year: 2016 ident: 8471_CR31 publication-title: Clin Trials doi: 10.1177/1740774515609290 – volume: 12 start-page: 692 year: 2015 ident: 8471_CR51 publication-title: Clin Trials doi: 10.1177/1740774515594362 – volume: 129 start-page: 1195 year: 2023 ident: 8471_CR60 publication-title: Br J Cancer doi: 10.1038/s41416-023-02414-8 – ident: 8471_CR66 doi: 10.1177/13623613231202432 – volume: 20 start-page: 445 year: 2011 ident: 8471_CR55 publication-title: Eur J Cancer Care doi: 10.1111/j.1365-2354.2010.01207.x – volume: 20 start-page: 955 year: 2020 ident: 8471_CR30 publication-title: Afr Health Sci doi: 10.4314/ahs.v20i2.51 – volume: 46 start-page: E111 year: 2018 ident: 8471_CR44 publication-title: Crit Care Med doi: 10.1097/ccm.0000000000002815 – volume: 31 start-page: 445 year: 2007 ident: 8471_CR57 publication-title: PRC. Cult Med Psychiatr doi: 10.1007/s11013-007-9070-2 – ident: 8471_CR68 |
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| Snippet | Background
Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials... Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials are often... Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials... BackgroundLow English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical trials... Abstract Background Low English language literacy is a common barrier to participation in clinical trials. Patient information leaflets (PILs) used in clinical... |
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| SubjectTerms | Access to Information Accessible Autism Biomedicine Charities Clinical trials Clinical Trials as Topic - standards Communication Communication Barriers Community Comprehension COVID-19 vaccines Dementia Easy-read Grey literature Handicapped accessibility Health Knowledge, Attitudes, Practice Health Literacy Health Sciences Humans Inclusion Innovations Language Learning disabilities Learning disabled Limited English Proficiency Literacy Literature reviews Medical research Medicine Medicine & Public Health Medicine, Experimental Meetings Multiculturalism & pluralism Online databases Participation Patient education Patient Education as Topic Patient information leaflet Patient Selection Product development Recommendations Research Subjects - psychology Social exclusion Statistics for Life Sciences |
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| Title | Recommendations for developing accessible patient information leaflets for clinical trials to address English language literacy as a barrier to research participation |
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