Researcher views on returning results from multi-omics data to research participants: insights from The Molecular Transducers of Physical Activity Consortium (MoTrPAC) Study

• Published in: BMC medical ethics Vol. 26; no. 1; pp. 22 - 10
• Main Authors: Ormond, Kelly E., Stanclift, Caroline, Reuter, Chloe M., Carter, Jennefer N., Murphy, Kathleen E., Lindholm, Malene E., Wheeler, Matthew T.
• Format: Journal Article
• Language: English
• Published: England BioMed Central Ltd 07.02.2025; BioMed Central; BMC
• Subjects: Adult; Attitude; Attitudes; Beliefs, opinions and attitudes; Biomedical Research - ethics; Consortia; Decision making; Disclosure - ethics; Disease; Ethical aspects; Exercise; Female; Genetic testing; Genomics; Genomics - ethics; Human subjects; Humans; Informed Consent; Interviews; Interviews as Topic; Male; Medical ethics; Medical research; Medical research personnel; Medicine, Experimental; Middle Aged; Multi-omics; Multiomics; Personnel; Polls & surveys; Proteomics; Public opinion; Research Personnel - ethics; Research Personnel - psychology; Research Subjects; Researchers; United States; Attitudes; Informed Consent; Research; Personnel; Genomics; Multi-omics

There is growing consensus in favor of returning individual specific research results that are clinically actionable, valid, and reliable. However, deciding what and how research results should be returned remains a challenge. Researchers are key stakeholders in return of results decision-making and...