Fulfilling Ethical Responsibility: Moving Beyond the Minimal Standards of Protecting Human Subjects from Research Harm

• Published in: Progress in community health partnerships Vol. 9; no. 2; pp. 41 - 50
• Main Authors: Hébert, James R, Satariano, William A, Friedman, Daniela B, Armstead, Cheryl A, Greiner, Allen, Felder, Tisha M, Coggins, Thomas A, Tanjasiri, Sora, Braun, Kathryn L
• Format: Journal Article
• Language: English
• Published: United States Johns Hopkins University Press 01.01.2015
• Subjects: Biomedical research; Cancer; Clinical trials; Collaboration; Community involvement; Community Networks - organization & administration; Community-Based Participatory Research - ethics; Community-Based Participatory Research - organization & administration; Disease; Disease prevention; Ethics; Ethics, Research; Health disparities; Human subjects; Humans; Medical research; Minority Groups; National Cancer Institute (U.S.) - organization & administration; Neoplasms - ethnology; Public health; Racial Groups; Research Subjects; Researchers; Studies; United States; United States

Problem: Rules for protecting human subjects, in place federally since 1974, have focused primarily on guarding against placing research subjects at social, physical, or psychological risk or violating their privacy and confidentiality. Nevertheless, high-risk communities are routinely subjected to...