Questioning assent: how are children's views included as families make decisions about clinical trials?

• Published in: Child : care, health & development Vol. 42; no. 6; pp. 900 - 908
• Main Authors: Madden, L., Shilling, V., Woolfall, K., Sowden, E., Smyth, R. L., Williamson, P. R., Young, B.
• Format: Journal Article
• Language: English
• Published: England Blackwell Publishing Ltd 01.11.2016; John Wiley and Sons Inc
• Subjects: Accounts; Adolescent; assent; Attitudes; Child; Children; Children & youth; Childrens Attitudes; Clinical research; Clinical trials; Decision Making; Discourse analysis; Families & family life; family; Humans; Informed Consent By Minors; Interviews; Interviews as Topic; Learning; Original; Parent Role; Parent-Child Relations; parents; Parents & parenting; Parents - psychology; Patient Participation - psychology; Patient Selection; Randomized Controlled Trials as Topic; Research Subjects - psychology; Semi Structured Interviews; Structured interviews; assent; clinical trials; semi-structured interviews; family; decision-making; parents

Background Assent is used to take children's wishes into account when they are invited into clinical trials, but the concept has attracted considerable criticism. We investigated children's accounts of decision‐making with the aim of informing practice in supporting children when invited t...