Challenges and recommendations to improve institutional review boards’ review of community-engaged research proposals: A scoping review

Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs....

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Published inJournal of clinical and translational science Vol. 7; no. 1; p. e93
Main Authors Onakomaiya, Deborah, Pan, Janet, Roberts, Timothy, Tan, Holly, Nadkarni, Smiti, Godina, Marina, Park, Jo, Fraser, Marilyn, Kwon, Simona C., Schoenthaler, Antoinette, Islam, Nadia
Format Journal Article
LanguageEnglish
Published England Cambridge University Press 2023
Subjects
barriers and facilitators
Collaboration
Community
community participation
community-based participatory research
community-engaged research
Health disparities
Implementation, Policy and Community Engagement
Institutional review board
Participatory research
recommendations
Research ethics
Research methodology
Researchers
Review
Review boards
Software
United States > US
barriers and facilitators
community-engaged research
community-based participatory research
recommendations
Institutional review board
community participation
Online AccessGet full text
ISSN2059-8661
2059-8661
DOI10.1017/cts.2023.516

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Abstract Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies
AbstractList Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies
Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies.Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies.
Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB) approval. This scoping review aims to identify challenges and recommendations for CEnR investigators and community partners working with IRBs. Peer-reviewed articles that reported on CEnR, specified study-related challenges, and lessons learned for working with IRBs and conducted in the United States were included for review. Fifteen studies met the criteria and were extracted for this review. Four challenges identified (1) Community partners not being recognized as research partners (2) Cultural competence, language of consent forms, and literacy level of partners; (3) IRBs apply formulaic approaches to CEnR; & (4) Extensive delays in IRB preparation and approval potentially stifle the relationships with community partners. Recommendations included (1) Training IRBs to understand CEnR principles to streamline and increase the flexibility of the IRB review process; (2) Identifying influential community stakeholders who can provide support for the study; and (3) Disseminating human subjects research training that is accessible to all community investigator to satisfy IRB concerns. Findings from our study suggest that IRBs can benefit from more training in CEnR requirements and methodologies.
ArticleNumber e93
Author Islam, Nadia
Pan, Janet
Park, Jo
Kwon, Simona C.
Nadkarni, Smiti
Schoenthaler, Antoinette
Onakomaiya, Deborah
Roberts, Timothy
Tan, Holly
Fraser, Marilyn
Godina, Marina
AuthorAffiliation 7 Institute for Excellence in Health Equity , New York , NY , USA
1 Vilcek Institute of Graduate Biomedical Sciences, NYU Grossman School of Medicine , New York , NY , USA
2 Department of Population Health, NYU Grossman School of Medicine , New York , NY , USA
3 University of California , Los Angeles , CA , USA
4 Human Research Protections, Office of Science and Research, NYU Grossman School of Medicine , New York , NY , USA
5 National Asian Pacific Center on Aging , Seattle , WA , USA
6 Arthur Ashe Institute for Urban Health , New York , NY , USA
AuthorAffiliation_xml – name: 7 Institute for Excellence in Health Equity , New York , NY , USA
– name: 2 Department of Population Health, NYU Grossman School of Medicine , New York , NY , USA
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– name: 3 University of California , Los Angeles , CA , USA
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– name: 4 Human Research Protections, Office of Science and Research, NYU Grossman School of Medicine , New York , NY , USA
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BackLink https://www.ncbi.nlm.nih.gov/pubmed/37125052$$D View this record in MEDLINE/PubMed
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Keywords barriers and facilitators
community-engaged research
community-based participatory research
recommendations
Institutional review board
community participation
Language English
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– volume-title: Handbook of Qualitative Research
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Snippet Academic and community investigators conducting community-engaged research (CEnR) are often met with challenges when seeking Institutional Review Board (IRB)...
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SubjectTerms barriers and facilitators
Collaboration
Community
community participation
community-based participatory research
community-engaged research
Health disparities
Implementation, Policy and Community Engagement
Institutional review board
Participatory research
recommendations
Research ethics
Research methodology
Researchers
Review
Review boards
Software
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Title Challenges and recommendations to improve institutional review boards’ review of community-engaged research proposals: A scoping review
URI https://www.ncbi.nlm.nih.gov/pubmed/37125052
https://www.proquest.com/docview/2802402888
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https://pubmed.ncbi.nlm.nih.gov/PMC10130837
https://doaj.org/article/afbbb63c0aab4faa9bdbfcc9195fd89b
Volume 7
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