Amyotrophic Lateral Sclerosis and Its Management during the COVID-19 Pandemic: A Qualitative Study with Thematic Analysis of Patients and Caregivers Who Participated in Self-Help Groups

• Published in: Behavioral sciences Vol. 13; no. 10; p. 822
• Main Authors: Palazzo, Lorenza, Pizzolato, Laura, Rigo, Matteo, Bondì, Giuseppina
• Format: Journal Article
• Language: English
• Published: Basel MDPI AG 01.10.2023; MDPI
• Subjects: Amyotrophic lateral sclerosis; amyotrophic lateral sclerosis (ALS); Analysis; Caregivers; COVID-19; COVID-19 pandemic; Data collection; Emotions; Illnesses; Interviews; Medical research; Medicine, Experimental; Nervous system diseases; Pandemics; Qualitative research; qualitative study; Quality of life; Research design; Self help; self-help groups; Support groups; telemedicine

This study employs a qualitative methodology to explore the effects of the pandemic on the lives of ALS patients and their caregivers. It aims to understand whether and how online self-help groups have assisted families dealing with amyotrophic lateral sclerosis (ALS) patients. ALS is a neurodegener...