Synergies, Discrepancies, and Action Priorities: A Statewide Engagement Study to Strengthen Clinical Research in Cerebral Palsy

• Published in: Health expectations : an international journal of public participation in health care and health policy Vol. 28; no. 3; pp. e70257 - n/a
• Main Authors: Murphy, Melissa M., Colquitt, Gavin T., Ryals, Paige S., Shin, Katie, Kjeldsen, William C., McIntyre, Allison, Whitten, Sydni V. W., Modlesky, Christopher M., Maitre, Nathalie L.
• Format: Journal Article
• Language: English
• Published: England John Wiley & Sons, Inc 01.06.2025; Wiley
• Subjects: Biomedical Research - organization & administration; Births; Caregivers; Cerebral palsy; Cerebral Palsy - therapy; Clinical research; Co-design; Collaborative approach; Community; Community involvement; Community-Based Participatory Research; Compensation; Data interpretation; Developmental disabilities; Discrepancies; Empowerment; Female; Focus Groups; Group dynamics; Health disparities; Health status; Human subjects; Humans; Interviews as Topic; Male; Maternal & child health; Medical research; Mortality; Needs Assessment; Participation; Participatory research; People with disabilities; Professionals; Qualitative Research; Quality improvement; Research ethics; research partners; Researchers; Stakeholder Participation; trainee pathways; United States > US; Georgia; cerebral palsy; community‐based participatory research; trainee pathways; research partners
• ISSN: 1369-6513; 1369-7625; 1369-7625
• DOI: 10.1111/hex.70257

ABSTRACT Background Cerebral palsy (CP) clinical research is fraught with challenges, in part due to health‐related disparities common among people with disabilities. Perspectives of people with lived experience of CP, clinicians and researchers vary on how to address these disparities. The present...