Re-evaluating standards of human subjects protection for sensitive health data in social media networks

• Published in: Social networks Vol. 67; pp. 41 - 46
• Main Authors: Chu, Kar-Hai, Colditz, Jason, Sidani, Jaime, Zimmer, Michael, Primack, Brian
• Format: Journal Article
• Language: English
• Published: Amsterdam Elsevier B.V 01.10.2021; Elsevier Science Ltd
• Subjects: Best practice; Cancer; Data collection; Ethics; Health data; Health information; Health problems; Health research; Mass media; Morality; Privacy; Research ethics; Research subjects; Social media; Social networks; Privacy; Research ethics; Health data; Social media

•There are no standards for network studies using social media data.•Consider ethics of consent, expectation of privacy, and personal health information.•Example study: can identify individuals affected by cancer via social media networks.•Guidelines needed to balance public health imperatives, rese...