Uncertainty Management and Communication Preferences Related to Genetic Relativism Among Families Affected by Down Syndrome, Marfan Syndrome, and Neurofibromatosis

• Published in: Health communication Vol. 27; no. 7; pp. 663 - 671
• Main Authors: Parrott, Roxanne, Peters, Kathryn F., Traeder, Tara
• Format: Journal Article
• Language: English
• Published: England Taylor & Francis Group 01.10.2012; Routledge, Taylor & Francis Group
• Subjects: Adolescent; Adult; Aged; Communication; Desire; Down syndrome; Down Syndrome - diagnosis; Down Syndrome - genetics; Down's syndrome; Expectations; Family; Female; Genes; Health; Humans; Male; Marfan syndrome; Marfan Syndrome - diagnosis; Marfan Syndrome - genetics; Middle Aged; Neurofibromatoses - diagnosis; Neurofibromatoses - genetics; Preferences; Social networks; Uncertainty; Young Adult

Genes hold opportunities for us to look backward and forward in family health and disease incidence. Our beliefs about genes' roles in health form around frameworks relating to personal control, and the influence of social networks and/or religious faith on genetic expression in health. These g...