Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer

Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with mea...

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Published inHead & neck Vol. 35; no. 2; pp. 172 - 183
Main Authors Kissane, David W., Patel, Snehal G., Baser, Raymond E., Bell, Rachel, Farberov, Maria, Ostroff, Jamie S., Li, Yuelin, Singh, Bhuvanesh, Kraus, Dennis H., Shah, Jatin P.
Format Journal Article
LanguageEnglish
Published Hoboken Wiley Subscription Services, Inc., A Wiley Company 01.02.2013
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Abstract Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20‐item SSS had a Cronbach's alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy‐General (FACT‐G) and Functional Assessment of Cancer Therapy‐Head and Neck (FACT‐H&N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor‐specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers. © 2012 Wiley Periodicals, Inc. Head Neck, 2013
AbstractList Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20‐item SSS had a Cronbach's alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy‐General (FACT‐G) and Functional Assessment of Cancer Therapy‐Head and Neck (FACT‐H&N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor‐specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers. © 2012 Wiley Periodicals, Inc. Head Neck, 2013
BACKGROUNDFacial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties.RESULTSA 20-item SSS had a Cronbach's alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H&N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models.CONCLUSIONFurther validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers.
Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. Results A 20-item SSS had a Cronbach's alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H&N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Conclusion Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers. © 2012 Wiley Periodicals, Inc. Head Neck, 2013 [PUBLICATION ABSTRACT]
Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale (SSS) to measure this. Items were administered to 104 patients with squamous cell carcinoma of the oral cavity, together with measures of quality of life and adaptation. Exploratory factor analysis and item response theory (IRT) models assessed its psychometric properties. A 20-item SSS had a Cronbach's alpha of 0.94 and 4 factors: shame with appearance, sense of stigma, regret, and speech/social concerns. These factors show satisfactory internal validity, convergent validity with the Functional Assessment of Cancer Therapy-General (FACT-G) and Functional Assessment of Cancer Therapy-Head and Neck (FACT-H&N), Demoralization Scale and Patient Health Questionnaire (PHQ) Depression, and divergent validity with the Social Desirability Scale. The items displayed desirable properties in factor-specific (IRT) models. Further validation studies are worthwhile to confirm this factor structure, reliability, and validity, and generalizability to all head and neck cancers.
Author Li, Yuelin
Farberov, Maria
Baser, Raymond E.
Shah, Jatin P.
Kraus, Dennis H.
Ostroff, Jamie S.
Kissane, David W.
Bell, Rachel
Singh, Bhuvanesh
Patel, Snehal G.
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  surname: Kissane
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  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
– sequence: 2
  givenname: Snehal G.
  surname: Patel
  fullname: Patel, Snehal G.
  organization: Department of Surgery, Head and Neck Service, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
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  givenname: Raymond E.
  surname: Baser
  fullname: Baser, Raymond E.
  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
– sequence: 4
  givenname: Rachel
  surname: Bell
  fullname: Bell, Rachel
  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
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  givenname: Maria
  surname: Farberov
  fullname: Farberov, Maria
  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
– sequence: 6
  givenname: Jamie S.
  surname: Ostroff
  fullname: Ostroff, Jamie S.
  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
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  givenname: Yuelin
  surname: Li
  fullname: Li, Yuelin
  organization: Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
– sequence: 8
  givenname: Bhuvanesh
  surname: Singh
  fullname: Singh, Bhuvanesh
  organization: Department of Surgery, Head and Neck Service, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
– sequence: 9
  givenname: Dennis H.
  surname: Kraus
  fullname: Kraus, Dennis H.
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  givenname: Jatin P.
  surname: Shah
  fullname: Shah, Jatin P.
  organization: Department of Surgery, Head and Neck Service, Memorial Sloan-Kettering Cancer Center, 1275 York Avenue, New York, New York 10021
BackLink https://www.ncbi.nlm.nih.gov/pubmed/22368160$$D View this record in MEDLINE/PubMed
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1996; 18
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1991; 13
2006; 13
2010
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1993; 88
2000; 9
2006; 17
2004; 9
2007
2006
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2011; 38
2001; 24
2001; 63
1993; 4
2006; 135
2001; 127
1996; 77
1970; 35
2004; 54
2001; 111
1989; 33
2000; 18
1984; 252
2000; 36
1997; 11
1995; 27
2000; 126
1960; 24
1993; 11
1999; 17
1999; 282
1999; 35
2005; 30
1963
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2001; 17
1994; 7
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SSID ssj0003642
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Snippet Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and...
Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and Stigma Scale...
Background Facial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and...
BACKGROUNDFacial disfigurement from head and neck cancer can lead to the development of shame and a perception of stigma. We sought to develop the Shame and...
SourceID proquest
crossref
pubmed
wiley
istex
SourceType Aggregation Database
Index Database
Publisher
StartPage 172
SubjectTerms Adaptation, Physiological
Adaptation, Psychological
Age Factors
appearance
Body Image - psychology
Carcinoma, Squamous Cell - pathology
Carcinoma, Squamous Cell - psychology
Carcinoma, Squamous Cell - surgery
Cross-Sectional Studies
disfigurement
Factor Analysis, Statistical
Female
head and neck cancer
Head and Neck Neoplasms - pathology
Head and Neck Neoplasms - psychology
Head and Neck Neoplasms - surgery
Humans
Male
Mouth Neoplasms - pathology
Mouth Neoplasms - psychology
Mouth Neoplasms - surgery
Neck Dissection - methods
Neck Dissection - psychology
Quality of Life
regret
Reproducibility of Results
Risk Assessment
Self Concept
Sex Factors
Shame
Sickness Impact Profile
Social Stigma
speech
stigma
Surveys and Questionnaires
Title Preliminary evaluation of the reliability and validity of the Shame and Stigma Scale in head and neck cancer
URI https://api.istex.fr/ark:/67375/WNG-W4Z1TVFV-B/fulltext.pdf
https://onlinelibrary.wiley.com/doi/abs/10.1002%2Fhed.22943
https://www.ncbi.nlm.nih.gov/pubmed/22368160
https://www.proquest.com/docview/1271930639
https://search.proquest.com/docview/1273794159
Volume 35
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