“Choice of law” in precision medicine research

• Published in: American journal of human genetics Vol. 109; no. 8; pp. 1347 - 1352
• Main Authors: Beskow, Laura M., Wolf, Leslie E.
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 04.08.2022; Elsevier
• Subjects: choice of law; Confidentiality; human subjects protections; Humans; informed consent; legal rights; Precision Medicine; precision medicine research; research ethics; United States; United States; human subjects protections; legal rights; precision medicine research; choice of law; informed consent; research ethics
• ISSN: 0002-9297; 1537-6605; 1537-6605
• DOI: 10.1016/j.ajhg.2022.06.009

Large-scale precision medicine research requires massive amounts of data representing people from all walks of life; thus, in the US, it is often multistate research. Significant legal and ethical quandaries arise as a result of the patchwork of laws states have enacted that may apply to research, a...