A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning

• Published in: AIDS care Vol. 29; no. 10; pp. 1287 - 1296
• Main Authors: Lyon, Maureen E., D'Angelo, Lawrence J., Dallas, Ronald H., Hinds, Pamela S., Garvie, Patricia A., Wilkins, Megan L., Garcia, Ana, Briggs, Linda, Flynn, Patricia M., Rana, Sohail R., Cheng, Yao Iris, Wang, Jichuan
• Format: Journal Article
• Language: English
• Published: England Taylor & Francis 03.10.2017; Taylor & Francis Ltd
• Subjects: Acquired immune deficiency syndrome; Acquired Immunodeficiency Syndrome; Active control; Adolescent; Adolescents; Advance Care Planning; Advance directives; Advance Directives - psychology; African Americans; Age; Agreements; AIDS; Bias; Care plans; Child; Clinical research; Clinical trials; Communication; Congruence; Conversation; Decision Making; Diagnosis; End of life decisions; end-of-life; Evidence-based medicine; Exercise; Family - psychology; Female; Functional impairment; HIV; HIV Infections - psychology; HIV Infections - therapy; Hospitals, Pediatric; Human immunodeficiency virus; Humans; Impairment; Intervention; Male; Medical diagnosis; Mortality; Nutrition; palliative care; Patient Acceptance of Health Care; pediatric; Pediatrics; Preferences; Public health; Single-Blind Method; Surveys and Questionnaires; Teenagers; Tips; Treatment preferences; Young Adult; end-of-life; Advance care planning; decision-making; congruence; palliative care; pediatric

The objective of this study is to determine if pediatric advance care planning (pACP) increases adolescent/family congruence in end-of-life (EOL) treatment preferences longitudinally. Adolescents aged 14-21 years with HIV/AIDS and their families were randomized (N = 105 dyads) to three-60-minute ses...