Remote assessment of myotonic dystrophy type 1: A feasibility study

• Published in: Muscle & nerve Vol. 66; no. 3; pp. 336 - 339
• Main Authors: Hamel, Johanna, Creigh, Peter D., Dekdebrun, Jeanne, Eichinger, Katy, Thornton, Charles A.
• Format: Journal Article
• Language: English
• Published: Hoboken, USA John Wiley & Sons, Inc 01.09.2022; Wiley Subscription Services, Inc
• Subjects: Assessments; Correlation; Cough; Dystrophy; Feasibility Studies; Grip strength; Hand Strength; Humans; Impairment; Muscle function; Muscle, Skeletal; Muscles; Myotonia; Myotonic dystrophy; Myotonic Dystrophy - diagnosis; outcome measures; Patients; Portable equipment; remote assessments; Tablet computers; Telemedicine; Toolkits; myotonic dystrophy; telemedicine; remote assessments; outcome measures; muscle function

Introduction/Aims Remote study visits (RSVs) are emerging as important tools for clinical research. We tested the feasibility of using RSVs to evaluate patients with myotonic dystrophy type 1 (DM1), including remote quantitative assessment of muscle function, and we assessed correlations of remote a...