The acceptability, adoption, and feasibility of a music application developed using participatory design for home-dwelling persons with dementia and their caregivers. The “Alight” app in the LIVE@Home.Path trial
Background Music interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions. We describe the participatory design process of a prototype music application for patients affiliated with a gerontopsychiatric hospital and...
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Published in | Frontiers in psychiatry Vol. 13; p. 949393 |
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Main Authors | , , , , , , |
Format | Journal Article |
Language | English |
Published |
Frontiers Media S.A
18.08.2022
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Subjects | |
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Abstract | Background
Music interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions. We describe the participatory design process of a prototype music application for patients affiliated with a gerontopsychiatric hospital and evaluate the acceptability, adoption, and feasibility of use for dyads of home-dwelling persons with dementia and their informal caregivers.
Methods
The application “Alight” was developed following an iterative, expert-driven participatory design approach, which includes a requirement elicitation phase and two rounds of prototyping and testing in real-world settings. End users and stakeholders were involved in all steps, that is, workshops, interviews, field observation, ethnographic inquiries, and beta testing sessions with music therapists, patients, and caregivers in collaboration with a commercial music and technology company. The last prototyping and testing took place in the
LIVE@Home.Path
trial, a stepped-wedge multicomponent randomized controlled trial to improve resource utilization and caregiver burden in municipal dementia care during 2019–2021.
Results
Mean age of the person with dementia in the
LIVE@Home.Path
trial was 82 years, 62% were female, and the majority had Alzheimer's dementia (44%) of mild severity (71%). Sixty-three dyads were offered Alight in the multicomponent intervention, of which 13% (
n
= 8) accepted use. The dyads accepting Alight did not differ in demographic and clinical characteristics compared to those not interested. The feasibility was high among those accepting Alight, 75% (
n
= 6) reported a positive impact on mood, 50% (
n
= 4) experienced a positive impact on activity, and 50% (
n
= 4) gooduser-friendliness. The adoption was high with daily use or use several times a week reported by 63% (
n
= 5). Obstacles emerged when updating the application in homes without wireless Wi-Fi, and some participants were unfamiliar with using touchscreens.
Conclusion
The feasibility and adoption of the application were high and accepting dyads did not differ on demographic and clinical variables from those not reached. This suggests a high potential for utilization in dementia care. This study contributes methodologically to the field of participatory design and mHealth interventions by demonstrating a specific design approach that throughout the process successfully involved researchers, industry partners, health care practitioners, and end users.
Clinical trial registration
ClinicalTrials.gov
, NCT04043364. |
---|---|
AbstractList | BackgroundMusic interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions. We describe the participatory design process of a prototype music application for patients affiliated with a gerontopsychiatric hospital and evaluate the acceptability, adoption, and feasibility of use for dyads of home-dwelling persons with dementia and their informal caregivers.MethodsThe application “Alight” was developed following an iterative, expert-driven participatory design approach, which includes a requirement elicitation phase and two rounds of prototyping and testing in real-world settings. End users and stakeholders were involved in all steps, that is, workshops, interviews, field observation, ethnographic inquiries, and beta testing sessions with music therapists, patients, and caregivers in collaboration with a commercial music and technology company. The last prototyping and testing took place in the LIVE@Home.Path trial, a stepped-wedge multicomponent randomized controlled trial to improve resource utilization and caregiver burden in municipal dementia care during 2019–2021.ResultsMean age of the person with dementia in the LIVE@Home.Path trial was 82 years, 62% were female, and the majority had Alzheimer's dementia (44%) of mild severity (71%). Sixty-three dyads were offered Alight in the multicomponent intervention, of which 13% (n = 8) accepted use. The dyads accepting Alight did not differ in demographic and clinical characteristics compared to those not interested. The feasibility was high among those accepting Alight, 75% (n = 6) reported a positive impact on mood, 50% (n = 4) experienced a positive impact on activity, and 50% (n = 4) gooduser-friendliness. The adoption was high with daily use or use several times a week reported by 63% (n = 5). Obstacles emerged when updating the application in homes without wireless Wi-Fi, and some participants were unfamiliar with using touchscreens.ConclusionThe feasibility and adoption of the application were high and accepting dyads did not differ on demographic and clinical variables from those not reached. This suggests a high potential for utilization in dementia care. This study contributes methodologically to the field of participatory design and mHealth interventions by demonstrating a specific design approach that throughout the process successfully involved researchers, industry partners, health care practitioners, and end users.Clinical trial registrationClinicalTrials.gov, NCT04043364. Background Music interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions. We describe the participatory design process of a prototype music application for patients affiliated with a gerontopsychiatric hospital and evaluate the acceptability, adoption, and feasibility of use for dyads of home-dwelling persons with dementia and their informal caregivers. Methods The application “Alight” was developed following an iterative, expert-driven participatory design approach, which includes a requirement elicitation phase and two rounds of prototyping and testing in real-world settings. End users and stakeholders were involved in all steps, that is, workshops, interviews, field observation, ethnographic inquiries, and beta testing sessions with music therapists, patients, and caregivers in collaboration with a commercial music and technology company. The last prototyping and testing took place in the LIVE@Home.Path trial, a stepped-wedge multicomponent randomized controlled trial to improve resource utilization and caregiver burden in municipal dementia care during 2019–2021. Results Mean age of the person with dementia in the LIVE@Home.Path trial was 82 years, 62% were female, and the majority had Alzheimer's dementia (44%) of mild severity (71%). Sixty-three dyads were offered Alight in the multicomponent intervention, of which 13% ( n = 8) accepted use. The dyads accepting Alight did not differ in demographic and clinical characteristics compared to those not interested. The feasibility was high among those accepting Alight, 75% ( n = 6) reported a positive impact on mood, 50% ( n = 4) experienced a positive impact on activity, and 50% ( n = 4) gooduser-friendliness. The adoption was high with daily use or use several times a week reported by 63% ( n = 5). Obstacles emerged when updating the application in homes without wireless Wi-Fi, and some participants were unfamiliar with using touchscreens. Conclusion The feasibility and adoption of the application were high and accepting dyads did not differ on demographic and clinical variables from those not reached. This suggests a high potential for utilization in dementia care. This study contributes methodologically to the field of participatory design and mHealth interventions by demonstrating a specific design approach that throughout the process successfully involved researchers, industry partners, health care practitioners, and end users. Clinical trial registration ClinicalTrials.gov , NCT04043364. |
Author | Madsø, Kristine Gustavsen Hynninen, Kia Minna Gedde, Marie Hidle Torrado Vidal, Juan Carlos Knardal, Solgunn Elisabeth Husebo, Bettina Berge, Line Iden |
AuthorAffiliation | 2 Department of Global Public Health and Primary Care, Faculty of Medicine, Center for Elderly and Nursing Home Medicine, University of Bergen , Bergen , Norway 4 Municipality of Bergen , Bergen , Norway 1 Norske Kvinners Sanitetsforening (NKS) Olaviken Gerontopsychiatric Hospital , Askøy , Norway 5 Department of Clinical Psychology, Faculty of Psychology, University of Bergen , Bergen , Norway 3 Haraldsplass Deaconess Hospital , Bergen , Norway |
AuthorAffiliation_xml | – name: 1 Norske Kvinners Sanitetsforening (NKS) Olaviken Gerontopsychiatric Hospital , Askøy , Norway – name: 3 Haraldsplass Deaconess Hospital , Bergen , Norway – name: 5 Department of Clinical Psychology, Faculty of Psychology, University of Bergen , Bergen , Norway – name: 2 Department of Global Public Health and Primary Care, Faculty of Medicine, Center for Elderly and Nursing Home Medicine, University of Bergen , Bergen , Norway – name: 4 Municipality of Bergen , Bergen , Norway |
Author_xml | – sequence: 1 givenname: Line Iden surname: Berge fullname: Berge, Line Iden – sequence: 2 givenname: Marie Hidle surname: Gedde fullname: Gedde, Marie Hidle – sequence: 3 givenname: Juan Carlos surname: Torrado Vidal fullname: Torrado Vidal, Juan Carlos – sequence: 4 givenname: Bettina surname: Husebo fullname: Husebo, Bettina – sequence: 5 givenname: Kia Minna surname: Hynninen fullname: Hynninen, Kia Minna – sequence: 6 givenname: Solgunn Elisabeth surname: Knardal fullname: Knardal, Solgunn Elisabeth – sequence: 7 givenname: Kristine Gustavsen surname: Madsø fullname: Madsø, Kristine Gustavsen |
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Copyright | Copyright © 2022 Berge, Gedde, Torrado Vidal, Husebo, Hynninen, Knardal and Madsø. 2022 Berge, Gedde, Torrado Vidal, Husebo, Hynninen, Knardal and Madsø |
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Music interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions.... BackgroundMusic interventions for persons with dementia can improve health and interaction with caregivers, yet the reach is often restricted to institutions.... |
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StartPage | 949393 |
SubjectTerms | acceptability application dementia home-dwelling music interventions participatory design Psychiatry |
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Title | The acceptability, adoption, and feasibility of a music application developed using participatory design for home-dwelling persons with dementia and their caregivers. The “Alight” app in the LIVE@Home.Path trial |
URI | https://search.proquest.com/docview/2709913924 https://pubmed.ncbi.nlm.nih.gov/PMC9433972 https://doaj.org/article/99346a935aa84e799b1c50d8f9cb154e |
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