Conducting Clinically Based Intimate Partner Violence Research: Safety Protocol Recommendations
Maintaining safety is of utmost importance during research involving participants who have experienced intimate partner violence (IPV). Limited guidance on safety protocols to protect participants is available, particularly information related to technology-based approaches to informed consent, data...
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Published in | Nursing research (New York) Vol. 66; no. 5; p. 405 |
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Main Authors | , , |
Format | Journal Article |
Language | English |
Published |
United States
01.09.2017
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Abstract | Maintaining safety is of utmost importance during research involving participants who have experienced intimate partner violence (IPV). Limited guidance on safety protocols to protect participants is available, particularly information related to technology-based approaches to informed consent, data collection, and contacting participants during the course of a study.
The purpose of the article is to provide details on the safety protocol developed and utilized with women receiving care at an urban HIV clinic and who were taking part in an observational study of IPV, mental health symptoms, and substance abuse and their relationship to HIV treatment adherence. The protocol presents the technological strategies to promote safety and allow autonomy in participant decision-making throughout the research process, including Voice over Internet Protocol telephone numbers, and tablet-based eligibility screening and data collection. Protocols for management of participants at risk for suicide and/or intimate partner homicide that included automated high-risk messaging to participants and research staff and facilitated disclosure of risk to clinical staff based on participant preferences are discussed.
Use of technology and partnership with clinic staff helped to provide an environment where research regarding IPV could be conducted without undue burden or risk to participants. Utilizing tablet-based survey administration provided multiple practical and safety benefits for participants. Most women who screened into high-risk categories for suicide or intimate partner homicide did not choose to have their results shared with their healthcare providers, indicating the importance of allowing participants control over information sharing whenever possible. |
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AbstractList | Maintaining safety is of utmost importance during research involving participants who have experienced intimate partner violence (IPV). Limited guidance on safety protocols to protect participants is available, particularly information related to technology-based approaches to informed consent, data collection, and contacting participants during the course of a study.
The purpose of the article is to provide details on the safety protocol developed and utilized with women receiving care at an urban HIV clinic and who were taking part in an observational study of IPV, mental health symptoms, and substance abuse and their relationship to HIV treatment adherence. The protocol presents the technological strategies to promote safety and allow autonomy in participant decision-making throughout the research process, including Voice over Internet Protocol telephone numbers, and tablet-based eligibility screening and data collection. Protocols for management of participants at risk for suicide and/or intimate partner homicide that included automated high-risk messaging to participants and research staff and facilitated disclosure of risk to clinical staff based on participant preferences are discussed.
Use of technology and partnership with clinic staff helped to provide an environment where research regarding IPV could be conducted without undue burden or risk to participants. Utilizing tablet-based survey administration provided multiple practical and safety benefits for participants. Most women who screened into high-risk categories for suicide or intimate partner homicide did not choose to have their results shared with their healthcare providers, indicating the importance of allowing participants control over information sharing whenever possible. |
Author | Anderson, Jocelyn C Glass, Nancy E Campbell, Jacquelyn C |
Author_xml | – sequence: 1 givenname: Jocelyn C surname: Anderson fullname: Anderson, Jocelyn C organization: Jocelyn C. Anderson, PhD, RN, is Postdoctoral Scholar, University of Pittsburgh School of Medicine, Pennsylvania. Nancy E. Glass, PhD, MPH, RN, is Professor; and Jacquelyn C. Campbell, PhD, RN, FAAN, is Anna D. Wolf Chair and Professor, Johns Hopkins University School of Nursing, Baltimore, Maryland – sequence: 2 givenname: Nancy E surname: Glass fullname: Glass, Nancy E – sequence: 3 givenname: Jacquelyn C surname: Campbell fullname: Campbell, Jacquelyn C |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/28858149$$D View this record in MEDLINE/PubMed |
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CitedBy_id | crossref_primary_10_1080_01612840_2020_1836536 crossref_primary_10_1177_0886260519871532 crossref_primary_10_1016_j_lanwpc_2020_100017 crossref_primary_10_1136_bmjgh_2021_006780 crossref_primary_10_1186_s41256_021_00224_0 crossref_primary_10_1177_10497323211012997 crossref_primary_10_1186_s12888_020_03005_0 crossref_primary_10_1177_1556264618797557 crossref_primary_10_1080_17441692_2023_2290122 crossref_primary_10_1080_10926771_2020_1796870 |
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SubjectTerms | Adult Data Collection - methods Female Humans Informed Consent Interpersonal Relations Male Middle Aged Patient Participation - methods Safety Management - methods Spouse Abuse - statistics & numerical data |
Title | Conducting Clinically Based Intimate Partner Violence Research: Safety Protocol Recommendations |
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