Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings from an International Study - Capron, Alexander Morgan; Mauron, Alexandre; Elger, Bernice Simone; Boggio, Andrea; Ganguli-Mitra, Agomoni; Biller-Andorno, Nikola (Kennedy Institute of Ethics journal, 2009)
Keywords: Agreements; Biobanks; Bioethics; Comparative analysis; Consent; Cultural organizations; Databases, Genetic - ethics; Databases, Genetic - standards; Databases, Genetic - trends; Ethical Analysis; Ethics; Genetic Privacy - ethics; Genetic Privacy - standards; Genetic Privacy - trends; Genetic research; Genetic Research - ethics; Genetics; Human rights; Human subjects; Humans; Informed Consent; International Cooperation; International law; International organizations; Interviews; Minority & ethnic groups; NGOs; Nongovernmental organizations; Ownership; Regulation; Research methodology; Studies; Tissue Banks - ethics; Tissue Banks - standards; Tissue Banks - trends