Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months
Aims and objectives To describe the family caregivers’ caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months. Background Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occ...
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| Published in | Journal of clinical nursing Vol. 26; no. 23-24; pp. 4558 - 4566 |
|---|---|
| Main Authors | , , , , , |
| Format | Journal Article |
| Language | English |
| Published |
England
Wiley Subscription Services, Inc
01.12.2017
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| Abstract | Aims and objectives
To describe the family caregivers’ caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.
Background
Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers’ burden and its determinants.
Design
This is a prospective longitudinal study.
Methods
A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6‐month period at 1–2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies‐Depression.
Results
Of the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22–80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6‐month period. Determinants of caregiving burden were stroke survivors’ physical dependence, caregivers’ age, caring hours per day, depressive symptoms and social support, which explained 46.8%–55.0% of the total variance (p < .05).
Conclusion
Caregivers’ burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours.
Relevance to clinical practice
Nurses need to be aware of and understand caregivers’ cultural values and beliefs about family obligations when considering an intervention to support them in their role at home. |
|---|---|
| AbstractList | Aims and objectives
To describe the family caregivers’ caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.
Background
Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers’ burden and its determinants.
Design
This is a prospective longitudinal study.
Methods
A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6‐month period at 1–2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies‐Depression.
Results
Of the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22–80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6‐month period. Determinants of caregiving burden were stroke survivors’ physical dependence, caregivers’ age, caring hours per day, depressive symptoms and social support, which explained 46.8%–55.0% of the total variance (p < .05).
Conclusion
Caregivers’ burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours.
Relevance to clinical practice
Nurses need to be aware of and understand caregivers’ cultural values and beliefs about family obligations when considering an intervention to support them in their role at home. To describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.AIMS AND OBJECTIVESTo describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers' burden and its determinants.BACKGROUNDSociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers' burden and its determinants.This is a prospective longitudinal study.DESIGNThis is a prospective longitudinal study.A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6-month period at 1-2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies-Depression.METHODSA total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6-month period at 1-2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies-Depression.Of the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22-80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6-month period. Determinants of caregiving burden were stroke survivors' physical dependence, caregivers' age, caring hours per day, depressive symptoms and social support, which explained 46.8%-55.0% of the total variance (p < .05).RESULTSOf the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22-80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6-month period. Determinants of caregiving burden were stroke survivors' physical dependence, caregivers' age, caring hours per day, depressive symptoms and social support, which explained 46.8%-55.0% of the total variance (p < .05).Caregivers' burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours.CONCLUSIONCaregivers' burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours.Nurses need to be aware of and understand caregivers' cultural values and beliefs about family obligations when considering an intervention to support them in their role at home.RELEVANCE TO CLINICAL PRACTICENurses need to be aware of and understand caregivers' cultural values and beliefs about family obligations when considering an intervention to support them in their role at home. Aims and objectivesTo describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.BackgroundSociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers' burden and its determinants.DesignThis is a prospective longitudinal study.MethodsA total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6-month period at 1-2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies-Depression.ResultsOf the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22-80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6-month period. Determinants of caregiving burden were stroke survivors' physical dependence, caregivers' age, caring hours per day, depressive symptoms and social support, which explained 46.8%-55.0% of the total variance (p < .05).ConclusionCaregivers' burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours.Relevance to clinical practiceNurses need to be aware of and understand caregivers' cultural values and beliefs about family obligations when considering an intervention to support them in their role at home. To describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months. Sociocultural factors influence the caregiving experience in China. However, little is known about the dynamic changes occurring in Chinese caregivers' burden and its determinants. This is a prospective longitudinal study. A total of 328 participants (164 stroke survivors and 164 family caregivers) from the neurological units of three hospitals in Shiyan were examined during a 6-month period at 1-2 days before discharge (T1) and 3 weeks (T2), 3 months (T3) and 6 months (T4) postdischarge using the Short Portable Mental Status Questionnaire, Multidimensional Scale of Perceived Social Support, Caregiver Strain Index and the Center for Epidemiological Studies-Depression. Of the 209 dyads recruited, 164 completed all data collection phases, with 69% of the female caregivers aged 56.04 (SD = 4.0; range = 22-80) years. Caregivers reported higher mean burden at T1 (7.35 ± 2.9) but slightly decreased over time at T4 (6.34 ± 3.4), had borderline mean depressive symptoms only in T1 (9.71 ± 3.2) and T2 (9.02 ± 3.8) and had moderate mean social support throughout the 6-month period. Determinants of caregiving burden were stroke survivors' physical dependence, caregivers' age, caring hours per day, depressive symptoms and social support, which explained 46.8%-55.0% of the total variance (p < .05). Caregivers' burden remains a serious problem in the first 6 months. It is an increasing hazard, especially for those at an advanced age who have depressive symptoms and care for severely dependent stroke survivors requiring more caring hours. Nurses need to be aware of and understand caregivers' cultural values and beliefs about family obligations when considering an intervention to support them in their role at home. |
| Author | Liu, Yilan Tam, Wilson Han, Yanhong Mao, Jing Zhang, Xuelin Lopez, Violeta |
| Author_xml | – sequence: 1 givenname: Yanhong surname: Han fullname: Han, Yanhong organization: Huazhong University of Science and Technology – sequence: 2 givenname: Yilan surname: Liu fullname: Liu, Yilan organization: Huazhong University of Science and Technology – sequence: 3 givenname: Xuelin surname: Zhang fullname: Zhang, Xuelin organization: Hubei University of Medicine – sequence: 4 givenname: Wilson surname: Tam fullname: Tam, Wilson organization: National University of Singapore – sequence: 5 givenname: Jing orcidid: 0000-0002-5119-7806 surname: Mao fullname: Mao, Jing email: maojinghust@163.com organization: Huazhong University of Science and Technology – sequence: 6 givenname: Violeta surname: Lopez fullname: Lopez, Violeta organization: National University of Singapore |
| BackLink | https://www.ncbi.nlm.nih.gov/pubmed/28252843$$D View this record in MEDLINE/PubMed |
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| Copyright | 2017 John Wiley & Sons Ltd 2017 John Wiley & Sons Ltd. Copyright © 2017 John Wiley & Sons Ltd |
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| Keywords | social support caregivers depression stroke China burden |
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To describe the family caregivers’ caregiving experience for stroke survivors and to identify the determinants of caregiving burden over... To describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.... Aims and objectivesTo describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6... To describe the family caregivers' caregiving experience for stroke survivors and to identify the determinants of caregiving burden over 6 months.AIMS AND... |
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| SubjectTerms | burden Caregivers China Cultural values depression Families & family life Mental depression Quantitative analysis Social support Stress Stroke |
| Title | Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months |
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