Disability Experiences and Perspectives Regarding Reproductive Decisions, Parenting, and the Utility of Genetic Services: a Qualitative Study

• Published in: Journal of genetic counseling Vol. 27; no. 6; pp. 1360 - 1373
• Main Authors: Roadhouse, C., Shuman, C., Anstey, K., Sappleton, K., Chitayat, D., Ignagni, E.
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.12.2018; Blackwell Publishing Ltd
• Subjects: Attitudes; Biomedical and Life Sciences; Biomedicine; Childbirth & labor; Children with disabilities; Clinical decision making; Clinical Psychology; Community; Content analysis; Data processing; Decision making; Disability; Ethics; Experiential knowledge; Family planning; Genetic counseling; Gynecology; Human Genetics; Medical diagnosis; Original Research; Parenthood; Parents & parenting; People with disabilities; Prenatal care; Prenatal diagnosis; Public Health; Qualitative research; Termination; Disability; Attitudes; Genetic counseling; Parenthood; Prenatal diagnosis; Experiential knowledge

Genetic counselors adopt seemingly contradictory roles: advocating for individuals with genetic conditions while offering prenatal diagnosis and the option of selective termination to prevent the birth of a child with a disability. This duality contributes to the tension between the disability and c...