A rapid review of current engagement strategies with people who use drugs in monitoring and reporting on substance use-related harms

• Published in: Harm reduction journal Vol. 20; no. 1; pp. 1 - 169
• Main Authors: Perri, Melissa, Khorasheh, Triti, Poon, David Edward-Ooi, Kaminski, Nat, LeBlanc, Sean, Mizon, Leticia, Smoke, Ashley, Strike, Carol, Leece, Pamela
• Format: Journal Article
• Language: English
• Published: London BioMed Central 14.11.2023; BMC
• Subjects: Communication; Community engagement; Criteria; Data management; Data monitoring; Data reporting; Data systems; Drug overdose; Drug use; Drugs; Emergency medical care; Emergency medical services; Fentanyl; Harm reduction; Indicators; Information systems; Literature reviews; Monitoring; Narcotics; Opioids; Overdose; Overdose crisis; Public health; Search strategies; Substance use; Substance use-related harm; Surveillance; Toxicity; Canada; United States > US; North America
• DOI: 10.1186/s12954-023-00902-x
• ISSN: 1477-7517

Abstract Background The Canadian drug supply has significantly increased in toxicity over the past few years, resulting in the worsening of the overdose crisis. A key initiative implemented during this crisis has been data monitoring and reporting of substance use-related harms (SRH). This literature review aims to: (1) identify strategies used for the meaningful engagement of people who use drugs (PWUD) in local, provincial, and national SRH data system planning, reporting, and action and (2) describe data monitoring and reporting strategies and common indicators of SRH within those systems. Methods We searched three academic and five gray literature databases for relevant literature published between 2012 and 2022. Team members who identify as PWUD and a librarian at Public Health Ontario developed search strings collaboratively. Two reviewers screened all search results and applied the eligibility criteria. We used Microsoft Excel for data management. Results Twenty-two articles met our eligibility criteria (peer-reviewed n  = 10 and gray literature reports n  = 12); most used qualitative methods and focused on the Canadian context ( n  = 20). There were few examples of PWUD engaged as authors of reports on SRH monitoring. Among information systems involving PWUD, we found two main strategies: (1) community-based strategies (e.g., word of mouth, through drug sellers, and through satellite workers) and (2) public health-based data monitoring and communication strategies (e.g., communicating drug quality and alerts to PWUD). Substance use-related mortality, hospitalizations, and emergency department visits were the indicators most commonly used in systems of SRH reporting that engaged PWUD. Conclusion This review demonstrates limited engagement of PWUD and silos of activity in existing SRH data monitoring and reporting strategies. Future work is needed to better engage PWUD in these processes in an equitable manner. Building SRH monitoring systems in partnership with PWUD may increase the potential impact of these systems to reduce harms in the community.