Important questions asked by family members of intensive care unit patients
Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate lev...
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Published in | Critical care medicine Vol. 39; no. 6; p. 1365 |
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Main Authors | , , , , , , , , , , , , , , , , , , , , , , , |
Format | Journal Article |
Language | English |
Published |
United States
01.06.2011
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Abstract | Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit.
This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach ("diagnosis," "treatment," "prognosis," "comfort," "interaction," "communication," "family," "end of life," and "postintensive care unit management"). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit. |
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AbstractList | Relatives often lack important information about intensive care unit patients. High-quality information is crucial to help relatives overcome the often considerable situational stress and to acquire the ability to participate in the decision-making process, most notably regarding the appropriate level of care. We aimed to develop a list of questions important for relatives of patients in the intensive care unit.
This was a multicenter study. Questions asked by relatives of intensive care unit patients were collected from five different sources (literature, panel of 28 intensive care unit nurses and physicians, 1-wk survey of nurses and 1-wk survey of physicians in 14 intensive care units, and in-depth interviews with 14 families). After a qualitative analysis (framework approach and thematic analysis), questions were rated by 22 relatives and 14 intensive care unit physicians, and the ratings were analyzed using principal component analysis and hierarchical clustering.
The five sources produced 2,135 questions. Removal of duplicates and redundancies left 443 questions, which were distributed among nine predefined domains using a framework approach ("diagnosis," "treatment," "prognosis," "comfort," "interaction," "communication," "family," "end of life," and "postintensive care unit management"). Thematic analysis in each domain led to the identification of 46 themes, which were reworded as 46 different questions. Ratings by relatives and physicians showed that 21 of these questions were particularly important for relatives of intensive care unit patients.
This study increases knowledge about the informational needs of relatives of intensive care unit patients. This list of questions may prove valuable for both relatives and intensive care unit physicians as a tool for improving communication in the intensive care unit. |
Author | Toledano, Dany Chaize, Marine Fieux, Fabienne Lautrette, Alexandre Garrouste-Orgeas, Maite Pochard, Frédéric Georges, Hugues Schlemmer, Benoît Rusinova, Katerina Chevret, Sylvie Megarbane, Bruno Jourdain, Merce Falissard, Bruno Bele, Nicolas Regnier, Bernard Kentish-Barnes, Nancy Timsit, Jean-Francois Peigne, Vincent Kouatchet, Achille Cariou, Alain Thirion, Marina Legriel, Stephane Renault, Anne Azoulay, Elie |
Author_xml | – sequence: 1 givenname: Vincent surname: Peigne fullname: Peigne, Vincent organization: AP-HP, Hôpital Saint-Louis, Medical ICU, Paris, France – sequence: 2 givenname: Marine surname: Chaize fullname: Chaize, Marine – sequence: 3 givenname: Bruno surname: Falissard fullname: Falissard, Bruno – sequence: 4 givenname: Nancy surname: Kentish-Barnes fullname: Kentish-Barnes, Nancy – sequence: 5 givenname: Katerina surname: Rusinova fullname: Rusinova, Katerina – sequence: 6 givenname: Bruno surname: Megarbane fullname: Megarbane, Bruno – sequence: 7 givenname: Nicolas surname: Bele fullname: Bele, Nicolas – sequence: 8 givenname: Alain surname: Cariou fullname: Cariou, Alain – sequence: 9 givenname: Fabienne surname: Fieux fullname: Fieux, Fabienne – sequence: 10 givenname: Maite surname: Garrouste-Orgeas fullname: Garrouste-Orgeas, Maite – sequence: 11 givenname: Hugues surname: Georges fullname: Georges, Hugues – sequence: 12 givenname: Merce surname: Jourdain fullname: Jourdain, Merce – sequence: 13 givenname: Achille surname: Kouatchet fullname: Kouatchet, Achille – sequence: 14 givenname: Alexandre surname: Lautrette fullname: Lautrette, Alexandre – sequence: 15 givenname: Stephane surname: Legriel fullname: Legriel, Stephane – sequence: 16 givenname: Bernard surname: Regnier fullname: Regnier, Bernard – sequence: 17 givenname: Anne surname: Renault fullname: Renault, Anne – sequence: 18 givenname: Marina surname: Thirion fullname: Thirion, Marina – sequence: 19 givenname: Jean-Francois surname: Timsit fullname: Timsit, Jean-Francois – sequence: 20 givenname: Dany surname: Toledano fullname: Toledano, Dany – sequence: 21 givenname: Sylvie surname: Chevret fullname: Chevret, Sylvie – sequence: 22 givenname: Frédéric surname: Pochard fullname: Pochard, Frédéric – sequence: 23 givenname: Benoît surname: Schlemmer fullname: Schlemmer, Benoît – sequence: 24 givenname: Elie surname: Azoulay fullname: Azoulay, Elie |
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References | 21768819 - Crit Care Med. 2011 Aug;39(8):2018-9; author reply 2019 21610629 - Crit Care Med. 2011 Jun;39(6):1572-3 |
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Title | Important questions asked by family members of intensive care unit patients |
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