Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey

• Published in: Disability and rehabilitation Vol. 41; no. 8; p. 974
• Main Authors: Gumuchian, Stephanie T, Delisle, Vanessa C, Kwakkenbos, Linda, Pépin, Mia, Carrier, Marie-Eve, Malcarne, Vanessa L, Peláez, Sandra, El-Baalbaki, Ghassan, Thombs, Brett D
• Format: Journal Article
• Language: English
• Published: England 10.04.2019
• Subjects: Adult; Europe - epidemiology; Female; Health Knowledge, Attitudes, Practice; Humans; Male; Needs Assessment; Patient Preference - psychology; Patient Preference - statistics & numerical data; Peer Group; Scleroderma, Systemic - epidemiology; Scleroderma, Systemic - psychology; Scleroderma, Systemic - rehabilitation; Self-Help Groups - organization & administration; Social Perception; Social Support; Surveys and Questionnaires; Europe; social support; support groups; Systemic sclerosis; scleroderma; patient support resources

The objectives were to identify reasons why patients attend scleroderma support groups and to ascertain preferences for how meetings are best organized. The survey included 30-items on reasons for attending and nine items on organizational preferences. Patients were recruited through European patien...