Care Management for Youth With Comorbid Developmental and Mental Health Conditions: A Discrete Choice Experiment Pilot Study

• Published in: Academic pediatrics Vol. 20; no. 2; pp. 241 - 249
• Main Authors: dosReis, Susan, N'Dri, Laetitia, Ross, Melissa, Camelo Castillo, Wendy, Reeves, Gloria, Butler, Beverly
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.03.2020
• Subjects: Adolescent; Adult; Affect; Aged; Anxiety Disorders - complications; Anxiety Disorders - therapy; Attention Deficit and Disruptive Behavior Disorders - complications; Attention Deficit and Disruptive Behavior Disorders - therapy; Attention Deficit Disorder with Hyperactivity - complications; Attention Deficit Disorder with Hyperactivity - therapy; Attitude to Health; Autism Spectrum Disorder - complications; Autism Spectrum Disorder - therapy; Body Weight; Caregivers; Child; Child Custody; Child, Preschool; Choice Behavior; Communication Disorders - complications; Communication Disorders - therapy; Decision Making; Depressive Disorder - complications; Depressive Disorder - therapy; developmental disabilities; Developmental Disabilities - complications; Developmental Disabilities - therapy; discrete choice experiment; Education, Special; Female; Humans; Learning Disabilities - complications; Learning Disabilities - therapy; Logistic Models; Male; Mental Disorders - complications; Mental Disorders - therapy; mental health; Middle Aged; Parents; Patient Preference; Patient-Centered Care; Pilot Projects; preferences; Psychotropic Drugs - therapeutic use; Social Interaction; Time Factors; Young Adult; developmental disabilities; discrete choice experiment; preferences; patient-centered care; mental health

Caregivers of a child with a coexisting cognitive/intellectual and an emotional/behavior/developmental disability have difficult decisions regarding care management options for their child. This study aimed to pilot and refine an instrument to elicit caregivers’ preferences in managing their child&#...