Considerations for selecting patient-reported outcome measures for peritoneal dialysis patients: A review of the literature

Patients with kidney failure choosing peritoneal dialysis (PD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced health-related quality of life (HRQoL) due to their disease process and the requirements of their dialysis regimen. Achieving shared decision...

Full description

Saved in:
Bibliographic Details
Published inRenal Society of Australasia journal Vol. 19; no. 2; pp. 118 - 122
Main Authors Shephard, Deanna, Tan, Ken-Soon, Lewis, Amanda
Format Journal Article
LanguageEnglish
Published Osborne Park, WA Cambridge Publishing 01.11.2023
Renal Society of Australasia
Subjects
Online AccessGet full text

Cover

Loading…
Abstract Patients with kidney failure choosing peritoneal dialysis (PD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced health-related quality of life (HRQoL) due to their disease process and the requirements of their dialysis regimen. Achieving shared decision making and finding balance for individual patients between maximising therapy and maintaining patients' HRQoL requires optimal assessment, clear communication of patients' priorities and integration of this information into patients’ dialysis regimens to improve the outcomes that are prioritised by patients. Defining the outcomes that are prioritised by patients and their carers is also required to develop a standardised approach to allow for integration of patient-reported outcome measures (PROMs) into patient care. Assessment of HRQoL is best achieved by utilising PROMs; however, multiple PROMs exist and there is currently no consensus from national and international guidelines on a standardised approach to utilising PROMs for patients on PD. The aim of this review is to analyse the literature regarding the use of PROMs for patients on PD to gain a greater understanding of how to guide care and improve patient outcomes.
AbstractList Patients with kidney failure choosing peritoneal dialysis (PD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced health-related quality of life (HRQoL) due to their disease process and the requirements of their dialysis regimen. Achieving shared decision making and finding balance for individual patients between maximising therapy and maintaining patients' HRQoL requires optimal assessment, clear communication of patients' priorities and integration of this information into patients' dialysis regimens to improve the outcomes that are prioritised by patients. Defining the outcomes that are prioritised by patients and their carers is also required to develop a standardised approach to allow for integration of patient-reported outcome measures (PROMs) into patient care. Assessment of HRQoL is best achieved by utilising PROMs; however, multiple PROMs exist and there is currently no consensus from national and international guidelines on a standardised approach to utilising PROMs for patients on PD. The aim of this review is to analyse the literature regarding the use of PROMs for patients on PD to gain a greater understanding of how to guide care and improve patient outcomes. Keywords peritoneal dialysis, symptom burden, health-related quality of life, kidney disease
Abstract Patients with kidney failure choosing peritoneal dialysis (RD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced health-related quality of life (HRQoL) due to their disease process and the requirements of their dialysis regimen. Introduction Patients with kidney failure undertaking peritoneal dialysis (PD) as their chosen kidney replacement therapy (KRT) frequently experience a high symptom burden and decreased healthrelated quality of life (HRQoL) associated with this treatment modality (Li et al., 2018). Conventionally, these limited resources are often directed towards optimising clinical performance measures such as increasing dialysis adequacy, minimising infections, and minimising hospital readmission rates (Kliger, 2016). [...]minimal resources are available for staff training, implementation and integration to electronic health records of PROMs (Van der Willik et al., 2021). [...]when clinical performance measures are reported publicly by well recognised clinical guidelines and are linked to healthcare funding within organisations, they exert a powerful influence on the delivery of care, having both intended and unintended consequences on patient outcomes (Kliger, 2016).
Patients with kidney failure choosing peritoneal dialysis (PD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced health-related quality of life (HRQoL) due to their disease process and the requirements of their dialysis regimen. Achieving shared decision making and finding balance for individual patients between maximising therapy and maintaining patients' HRQoL requires optimal assessment, clear communication of patients' priorities and integration of this information into patients’ dialysis regimens to improve the outcomes that are prioritised by patients. Defining the outcomes that are prioritised by patients and their carers is also required to develop a standardised approach to allow for integration of patient-reported outcome measures (PROMs) into patient care. Assessment of HRQoL is best achieved by utilising PROMs; however, multiple PROMs exist and there is currently no consensus from national and international guidelines on a standardised approach to utilising PROMs for patients on PD. The aim of this review is to analyse the literature regarding the use of PROMs for patients on PD to gain a greater understanding of how to guide care and improve patient outcomes.
Audience Academic
Author Ken-Soon Tan
Amanda Lewis
Deanna Shephard
Author_xml – sequence: 1
  givenname: Deanna
  surname: Shephard
  fullname: Shephard, Deanna
– sequence: 2
  givenname: Ken-Soon
  surname: Tan
  fullname: Tan, Ken-Soon
– sequence: 3
  givenname: Amanda
  surname: Lewis
  fullname: Lewis, Amanda
BookMark eNptUk1r3DAQFSWBbpL-gZwEhd7s6suy3Nuy9AsCveQutPJoV4ttuZLcEvrnq3ibpoGiw4iZ92aG9-YKXUxhAoRuKak5Z7x5H5M51bSrWU2pqihjr9CGMaIqQZS6QBuqOKu4IuI1ukrpRIjkXLIN-rULU_I9RJN9-WEXIk4wgM1-OuC5ZGHKVYQ5xAw9Dku2YQQ8gklLhDN-huhz2ccMuPdmeEg-PTHTB7zFEX54-ImDw_kIePD5cVph36BLZ4YEb_7Ea3T_6eP97kt19-3z1932rrKC0FyBKoHuDe1YI4VwSsqWW0obJ1TTgFJd31tlGk4lbdSeE9v2XAjpJAfYG36N3p7bzjF8XyBlfQpLnMpEzSllHeuUEM-ogxlA-8mFHI0dfbJ626qOtawVrKDq_6DK62H0tmjgfMm_ILz7h3AsGuVjCsOyqv0SyM5AG0NKEZyeox9NfNCU6NVj_eixpp1munisi8f8r2Jx9FnbMKzGlc4nk5NOYKI9rluu9RAPug_-3JDK54JouWzacimSlGuR_DeR3Lon
ContentType Journal Article
Copyright COPYRIGHT 2023 Renal Society of Australasia
Copyright Renal Society of Australasia Nov 2023
Copyright_xml – notice: COPYRIGHT 2023 Renal Society of Australasia
– notice: Copyright Renal Society of Australasia Nov 2023
DBID AAYXX
CITATION
3V.
4T-
4U-
7RV
7X7
7XB
8FI
8FJ
8FK
ABUWG
AFKRA
AYAGU
BENPR
CCPQU
FYUFA
GHDGH
K9.
KB0
M0S
NAPCQ
PQEST
PQQKQ
PQUKI
PRINS
DOI 10.33235/rsaj.19.2.118-122
DatabaseName CrossRef
ProQuest Central (Corporate)
Docstoc
University Readers
Nursing & Allied Health Database (ProQuest)
Health & Medical Collection
ProQuest Central (purchase pre-March 2016)
Hospital Premium Collection
Hospital Premium Collection (Alumni Edition)
ProQuest Central (Alumni) (purchase pre-March 2016)
ProQuest Central (Alumni)
ProQuest Central
Australia & New Zealand Database
ProQuest Central
ProQuest One Community College
Health Research Premium Collection
Health Research Premium Collection (Alumni)
ProQuest Health & Medical Complete (Alumni)
Nursing & Allied Health Database (Alumni Edition)
Health & Medical Collection (Alumni Edition)
Nursing & Allied Health Premium
ProQuest One Academic Eastern Edition (DO NOT USE)
ProQuest One Academic
ProQuest One Academic UKI Edition
ProQuest Central China
DatabaseTitle CrossRef
University Readers
ProQuest One Academic Eastern Edition
ProQuest Health & Medical Complete (Alumni)
ProQuest Central (Alumni Edition)
ProQuest One Community College
ProQuest Nursing & Allied Health Source
ProQuest Hospital Collection
Health Research Premium Collection (Alumni)
ProQuest Central China
ProQuest Hospital Collection (Alumni)
ProQuest Central
Nursing & Allied Health Premium
ProQuest Health & Medical Complete
Health Research Premium Collection
ProQuest One Academic UKI Edition
Health and Medicine Complete (Alumni Edition)
Docstoc
ProQuest Nursing & Allied Health Source (Alumni)
Australia & New Zealand Database
ProQuest One Academic
ProQuest Central (Alumni)
DatabaseTitleList
University Readers


Database_xml – sequence: 1
  dbid: 7X7
  name: Health & Medical Collection
  url: https://search.proquest.com/healthcomplete
  sourceTypes: Aggregation Database
DeliveryMethod fulltext_linktorsrc
Discipline Medicine
EISSN 2208-4088
EndPage 122
ExternalDocumentID A789272742
10_33235_rsaj_19_2_118_122
10.3316/informit.473657408600886
Genre Literature Review
GeographicLocations Australia
GeographicLocations_xml – name: Australia
GroupedDBID 04C
123
29P
36B
3V.
6PF
7RV
7X7
8R4
8R5
AAWTL
ABUWG
ADBBV
ADOJX
AFKRA
AH1
AHMBA
ALIPV
ALMA_UNASSIGNED_HOLDINGS
AYAGU
BENPR
BKEYQ
BMSDO
BPHCQ
BVXVI
ECT
EIHBH
EX3
FYUFA
GJPHO
IAO
IHR
IHW
INH
INR
ITC
NAPCQ
OK1
P2P
PQQKQ
PROAC
PV9
Q2X
RZL
UKHRP
WOW
8FI
8FJ
AAYXX
CCPQU
CITATION
HMCUK
4T-
4U-
7XB
8FK
K9.
PQEST
PQUKI
PRINS
ID FETCH-LOGICAL-c401t-e84011ba1925644f86673c115f4855e889ddc8a5316158b30c7d3446f63eeba3
IEDL.DBID 7X7
ISSN 1832-3804
IngestDate Thu Oct 10 20:49:57 EDT 2024
Tue Nov 19 21:37:51 EST 2024
Tue Nov 12 23:49:29 EST 2024
Tue Aug 20 22:14:40 EDT 2024
Fri Aug 23 01:16:34 EDT 2024
Wed Aug 28 03:40:41 EDT 2024
IsPeerReviewed true
IsScholarly true
Issue 2
Language English
LinkModel DirectLink
MergedId FETCHMERGED-LOGICAL-c401t-e84011ba1925644f86673c115f4855e889ddc8a5316158b30c7d3446f63eeba3
Notes Renal Society of Australasia Journal, Vol. 19, No. 2, Nov 2023, 118-122
Informit, Melbourne (Vic)
PQID 3112929844
PQPubID 39602
PageCount 5
ParticipantIDs proquest_journals_3112929844
gale_infotracmisc_A789272742
gale_infotracacademiconefile_A789272742
gale_healthsolutions_A789272742
crossref_primary_10_33235_rsaj_19_2_118_122
rmit_collectionsjats_search_informit_org_doi_10_3316_informit_473657408600886
PublicationCentury 2000
PublicationDate 20231101
2023-11-00
PublicationDateYYYYMMDD 2023-11-01
PublicationDate_xml – month: 11
  year: 2023
  text: 20231101
  day: 01
PublicationDecade 2020
PublicationPlace Osborne Park, WA
PublicationPlace_xml – name: Osborne Park, WA
– name: Heidelberg
PublicationTitle Renal Society of Australasia journal
PublicationYear 2023
Publisher Cambridge Publishing
Renal Society of Australasia
Publisher_xml – name: Cambridge Publishing
– name: Renal Society of Australasia
SSID ssj0063362
Score 2.3025284
Snippet Patients with kidney failure choosing peritoneal dialysis (PD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and reduced...
Abstract Patients with kidney failure choosing peritoneal dialysis (RD) as their kidney replacement therapy (KRT) frequently experience high symptom burden and...
SourceID proquest
gale
crossref
rmit
SourceType Aggregation Database
Publisher
StartPage 118
SubjectTerms Analysis
Care
Care and treatment
Caregivers
Clinical outcomes
Clinical practice guidelines
Clinical trials
Decision making
Dietary restrictions
Diseases
Evaluation
Evidence-based medicine
Fatigue
Hemodialysis
Kidney diseases
Kidneys
Literature reviews
Nephrology
Patient outcomes
Patients
Peritoneal dialysis
Quality of life
Renal replacement therapy
Title Considerations for selecting patient-reported outcome measures for peritoneal dialysis patients: A review of the literature
URI http://search.informit.org/doi/10.3316/informit.473657408600886
https://www.proquest.com/docview/3112929844
Volume 19
hasFullText 1
inHoldings 1
isFullTextHit
isPrint
link http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV3Pi9QwFA66C-JF_Imj65qD4EHiTps0Tb1IlV0XYReRXRhPIU1TQXRmnXZP_vN-r0lnqQdhYA5Jafvyfnxf0vceY6-gM41qpRehcJ1QjZfCqQC7UqROvkKQH6t9nuvTS_V5VazShlufPqucfOLoqNuNpz3yI0nAIK-MUu-vfgvqGkWnq6mFxm22n-UI5dDncrUjXFrKsaEoaa2QZqli0oyUuSyOtr2Dm6je5nAa4FF5PgtM_7rnWX79GHpO7rN7CTPyOi7yA3YrrB-yO2fpVPwR-zN13Yy7bxw4lPdjfxvEJZ4qp4p4OhBavrke8MqB_4rbg3E-FTymuty4D6WSUJ2S6cr-Ha95THHhm44DMfKfu2LMj9nFyfHFx1ORmioIDyo1iABGl2WNA7IrgIU6Q30_PXBhR2VigjFV23rjYJrAOqaRS1-2Epyx0zKExsknbG-Np3nKeNnqzquuAmNrlF5WBiS907rpMvzMslywN5NA7VUsnWFBOUbxWxK_zSqbg4IYC_Ev2EuSuY3pnzu7s3VpqrykA-UFez3OIMsbts67lECAp6EaVrOZB7OZsBg_H57W1SaL7e2Nfi3YGa21JUMcP4db9z_c0NvoemwsaIvxzfa7RdyJ75TpmwGouS5KBbIIgGX0s__f7jm7Sy3sY37jAdsbttfhBYDO0ByO2nzI9utv9adL_H84Pv_y9S9VDAAQ
link.rule.ids 314,780,784,12056,21388,27924,27925,31719,33744,43310,43805,73745,74302
linkProvider ProQuest
linkToHtml http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1Lb9QwEB7BVgIuiKdYKNQHJA7IdBM7jtNLtaBWC3RXCC1Sb5bj2EhV2S2b9MSfZyZ2WoUDUm52lGQ8j2_szDcAb1FnatkIx31hA5e1E9xKj3YlSZ1chUG-Z_tcqcUP-eW8OE8bbm36rXLwib2jbraO9sgPBQGDvNJSHl_95tQ1ik5XUwuNu7BHzOnFBPY-nqy-fR98sRKibylKestxgoxlM0LkojjctRYdRfUhR7eBmVSej0LTvw56VGHfB5_TR_AwoUY2j8v8GO74zRO4t0zn4k_hz9B3M-6_MUSirO073GBkYok7lcfzAd-w7XWHH-3Zr7hBGOcT5TExc-NzqJiEmEqGO9sjNmexyIVtA0PMyC5v6Jifwfr0ZP1pwVNbBe4wmeq4x5wuy2qL2K5ANBQ0df50iAwDEcV4raumcdqicSLa0bWYubIRmDUGJbyvrXgOkw2-zQtgZaOCk6HCnK2WalZpTNODUnXI8NKzcgrvB4Gaq0ieYTDp6MVvSPwmq0yOSYg2KP4pHJDMTSwAvbE8My91lZd0pDyFd_0Msr1uZ51NJQT4NsRiNZq5P5qJNuPGw8O6mmSzrbnVsCksaa0NmWL_Q9ymvbBda6LzMZHSFse3u58GI0_8pkzdDqCiq6KUmC4ixNLq5f8fdwD3F-vlmTn7vPr6Ch5QQ_tY7bgPk2537V8j7OnqN0m3_wLIrwEy
linkToPdf http://utb.summon.serialssolutions.com/2.0.0/link/0/eLvHCXMwfV1Lb9QwEB7BVqq4IJ5ioVAfkDggs0nsOA4XtEBX5dFVhYrUm-U4diUEu2WTnvjzzMROq3BA2psdJTuexze25xuAl6gzjWyF4760gcvGCW6lR7uSpE6uxiA_sH2u1fF3-fm8PE_3n7p0rXL0iYOjbreO9sgXgoBBUWspFyFdizj9uHp3-ZtTByk6aU3tNG7DHkbFrJjB3vuj9em30S8rIYb2oqTDXOhMxhIaIQpRLnadRadRvynQhWBWVRSTMPWvs55U2w-BaHUP7iYEyZZxye_DLb95APsn6Yz8IfwZe3DGvTiGqJR1Q7cbjFIs8ajyeFbgW7a96lEAnv2Km4VxPtEfE0s3vocKS4i1ZHyye8uWLBa8sG1giB_Zz2tq5kdwtjo6-3DMU4sF7jCx6rnH_C7PG4s4r0RkFDR1AXWIEgORxnit67Z12qKhIvLRjchc1QrMIIMS3jdWPIbZBr_mCbCqVcHJUGP-1kiV1RpT9qBUE3L86ayaw-tRoOYyEmkYTEAG8RsSv8lrU2BCog2Kfw6HJHMTi0GvrdAsK10XFR0vz-HVMIPssN9ZZ1M5AX4NMVpNZh5MZqL9uOnwuK4m2W9nbrRtDie01obMcrgct-l-2L4z0RGZSG-L49vdhcEoFP9Trm4GUOlVWUlMHRFuafX0_687hH1Ua_P10_rLM7hDve1j4eMBzPrdlX-OCKhvXiTV_gu7YQVf
openUrl ctx_ver=Z39.88-2004&ctx_enc=info%3Aofi%2Fenc%3AUTF-8&rfr_id=info%3Asid%2Fsummon.serialssolutions.com&rft_val_fmt=info%3Aofi%2Ffmt%3Akev%3Amtx%3Ajournal&rft.genre=article&rft.atitle=Considerations+for+selecting+patient-reported+outcome+measures+for+peritoneal+dialysis+patients%3A+A+review+of+the+literature&rft.jtitle=Renal+Society+of+Australasia+journal&rft.au=Shephard%2C+Deanna&rft.au=Tan%2C+Ken-Soon&rft.au=Lewis%2C+Amanda&rft.date=2023-11-01&rft.pub=Renal+Society+of+Australasia&rft.issn=1832-3804&rft.eissn=2208-4088&rft.volume=19&rft.issue=2&rft.spage=118&rft.epage=122&rft_id=info:doi/10.33235%2Frsaj.19.2.118-122&rft.externalDBID=HAS_PDF_LINK
thumbnail_l http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/lc.gif&issn=1832-3804&client=summon
thumbnail_m http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/mc.gif&issn=1832-3804&client=summon
thumbnail_s http://covers-cdn.summon.serialssolutions.com/index.aspx?isbn=/sc.gif&issn=1832-3804&client=summon