The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report

In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patien...

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Published inAdolescent health, medicine and therapeutics Vol. 10; pp. 15 - 19
Main Authors Cioana, Milena, Peterson, Devin, Missiuna, Paul, El-Hawary, Ron, Carey, Timothy, Potter, Murray A, Banfield, Laura, Thabane, Lehana, Samaan, M Constantine
Format Journal Article
LanguageEnglish
Published New Zealand Dove Medical Press Limited 01.01.2019
Taylor & Francis Ltd
Dove Medical Press
Subjects
Adolescent Idiopathic Scoliosis
Arthritis
childhood scoliosis
Children & youth
coalition
Conferences, meetings and seminars
Dentistry
Epidemiology
Families & family life
Health care access
Identification
Medical research
Medicine, Experimental
Meeting Report
Patients
pediatric
Pediatrics
Quality of life
Research methodology
Researchers
School effectiveness
Scoliosis
Surgery
Teenagers
Canada
coalition
childhood scoliosis
adolescent idiopathic scoliosis
pediatric
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Abstract In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders' perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants' main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts.
AbstractList In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders’ perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants’ main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts.
Milena Cioana,1,2 Devin Peterson,3 Paul Missiuna,3 Ron El-Hawary,4 Timothy Carey,5,6 Murray A Potter,7 Laura Banfield,8 Lehana Thabane,9-12 M Constantine Samaan1,2,9 1Department of Pediatrics, McMaster University, Hamilton, ON, Canada; 2Division of Pediatric Endocrinology, McMaster Children's Hospital, Hamilton, ON, Canada; 3Division of Orthopedics, Department of Surgery, McMaster University, Hamilton, ON, Canada; 4Orthopedic Surgery Department, IWK Children's Health Center, Dalhousie University, Halifax, NS, Canada; 5Department of Pediatrics, Schulich School of Medicine and Dentistry, University of Western Ontario, London, ON, Canada; 6Department of Surgery, Schulich School of Medicine and Dentistry, Western University, London, ON, Canada; 7Department of Pathology and Molecular Medicine, McMaster University, Hamilton, ON, Canada; 8Health Sciences Library, McMaster University, Hamilton, ON, Canada; 9Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, ON, Canada; 10Department of Anesthesia, McMaster University, Hamilton, ON, Canada; 11Centre for Evaluation of Medicines, St Joseph's Health Care, Hamilton, ON, Canada; 12Biostatistics Unit, St Joseph's Healthcare-Hamilton, Hamilton, ON, Canada Abstract: In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders' perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants' main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts. Keywords: adolescent idiopathic scoliosis, childhood scoliosis, coalition, pediatric
In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders' perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants' main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts. Keywords: adolescent idiopathic scoliosis, childhood scoliosis, coalition, pediatric
Audience Academic
Author El-Hawary, Ron
Carey, Timothy
Potter, Murray A
Peterson, Devin
Banfield, Laura
Samaan, M Constantine
Cioana, Milena
Missiuna, Paul
Thabane, Lehana
AuthorAffiliation 12 Biostatistics Unit, St Joseph’s Healthcare-Hamilton, Hamilton, ON, Canada
1 Department of Pediatrics, McMaster University, Hamilton, ON, Canada, samaanc@mcmaster.ca
4 Orthopedic Surgery Department, IWK Children’s Health Center, Dalhousie University, Halifax, NS, Canada
9 Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, ON, Canada, samaanc@mcmaster.ca
2 Division of Pediatric Endocrinology, McMaster Children’s Hospital, Hamilton, ON, Canada, samaanc@mcmaster.ca
3 Division of Orthopedics, Department of Surgery, McMaster University, Hamilton, ON, Canada
5 Department of Pediatrics, Schulich School of Medicine and Dentistry, University of Western Ontario, London, ON, Canada
8 Health Sciences Library, McMaster University, Hamilton, ON, Canada
10 Department of Anesthesia, McMaster University, Hamilton, ON, Canada
7 Department of Pathology and Molecular Medicine, McMaster University, Hamilton, ON, Canada
6 Department of Surgery, Schulich School of Medicine and
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Keywords coalition
childhood scoliosis
adolescent idiopathic scoliosis
pediatric
Language English
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Snippet In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic...
Milena Cioana,1,2 Devin Peterson,3 Paul Missiuna,3 Ron El-Hawary,4 Timothy Carey,5,6 Murray A Potter,7 Laura Banfield,8 Lehana Thabane,9-12 M Constantine...
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StartPage 15
SubjectTerms Adolescent Idiopathic Scoliosis
Arthritis
childhood scoliosis
Children & youth
coalition
Conferences, meetings and seminars
Dentistry
Epidemiology
Families & family life
Health care access
Identification
Medical research
Medicine, Experimental
Meeting Report
Patients
pediatric
Pediatrics
Quality of life
Research methodology
Researchers
School effectiveness
Scoliosis
Surgery
Teenagers
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Title The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report
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