"You Don't Know Me, But ...": Access to Patient Data and Subject Recruitment in Human Subjects Research

In this article, we argue that maintaining a patient's right to provacyis an essential factor in determining who has legitimate access to patient information. Our thesis is that access to patient information for recruitment or screening for research must not violate a patient's provacy. Th...

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Bibliographic Details
Published inAmerican journal of bioethics Vol. 11; no. 11; pp. 31 - 38
Main Authors Schonfeld, Toby, Brown, Joseph S., Amoura, N. Jean, Gordon, Bruce
Format Journal Article
LanguageEnglish
Published United States Taylor & Francis Group 01.11.2011
Subjects
Beneficence
Bioethics
Confidentiality - ethics
Confidentiality - legislation & jurisprudence
Data mining
Deception
Ethics Committees, Research
Ethics, Research
Health Insurance Portability and Accountability Act - ethics
Humans
Informed Consent - ethics
Patient Selection - ethics
Patients
Personal Autonomy
Privacy
Quality Assurance, Health Care
Referral and Consultation
Research - manpower
Research - organization & administration
Research Personnel - ethics
United States
United States
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Summary:In this article, we argue that maintaining a patient's right to provacyis an essential factor in determining who has legitimate access to patient information. Our thesis is that access to patient information for recruitment or screening for research must not violate a patient's provacy. That is, we argue that HIPAA's permissibility unethically expands the number of people with access to private patient information. Adapted from the source document.
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ISSN:1526-5161
1536-0075
1536-0075
DOI:10.1080/15265161.2011.603794