Experiences of Informal Caregivers of Older Adults Transitioned From Nursing Homes to the Community Through the Money Follows the Person Demonstration

• Published in: Journal of aging & social policy Vol. 29; no. 1; pp. 20 - 34
• Main Authors: Kristof, Lorand, Fortinsky, Richard H., Kellett, Kathy, Porter, Martha, Robison, Julie
• Format: Journal Article
• Language: English
• Published: England Routledge 01.01.2017; Taylor & Francis LLC
• Subjects: Access; Adult; Adult children; Adults; Aged; Aged, 80 and over; Anxiety; Caregiver burden; Caregiver stress; Caregivers; Children; Client satisfaction; Community Networks - economics; Community services; Depression (Psychology); Elderly; Female; Health technology assessment; home- and community-based services; Humans; long-term services and supports; Male; Medicaid; Middle Aged; Money; Nurses; Nursing; Nursing homes; Nursing Homes - economics; Older people; Personal Satisfaction; Satisfaction; Stress; Symptoms; Connecticut; long-term services and supports; Medicaid; Caregiver stress; nursing homes; home- and community-based services
• DOI: 10.1080/08959420.2016.1187034
• ISSN: 0895-9420

This study examined experiences of 156 informal caregivers of older adults who transitioned to the community through the Connecticut Money Follows the Person (MFP) Rebalancing Demonstration after prolonged nursing home stays. Caregiver burden, positive aspects of caregiving, depressive symptoms, anxiety, and comparative subjective stress were examined in relation to caregiver demographics and care receiver characteristics with a cross-sectional survey. Caregivers reported low burden, depressive symptoms, and anxiety, and fairly high levels of positive aspects of caregiving and satisfaction with community services. Most caregivers were less stressed compared to the time the care recipient was in, or before they entered, a nursing home. Live-in caregivers experienced more positive aspects of caregiving, but adult children reported higher burden than other caregivers. Unmet service needs also increased caregiver burden. Programs like MFP are a viable option with broadly positive outcomes from a caregiver's perspective. Enthusiasm for increasing access to community care is growing for older adults who otherwise would reside in nursing homes for extended periods. Identifying unmet service needs and needs for targeted functional support could further enhance caregiver experiences and contribute to the successful transition of older adults to the community.