Psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA-8) for caregivers of children with gastrostomy tube nutritional support

• Published in: Journal of human nutrition and dietetics Vol. 26; no. 2; pp. 191 - 197
• Main Authors: Martínez-Costa, C., Calderón, C., Pedrón-Giner, C., Borraz, S., Gómez-López, L.
• Format: Journal Article
• Language: English
• Published: England Blackwell Publishing Ltd 01.04.2013; Wiley
• Subjects: Adolescent; caregiver; Caregivers; Child; child nutrition; Child, Preschool; Chronic Disease; Cost of Illness; Cuidadors; enteral nutrition; Female; gastrostomy; Gastrostomy - adverse effects; Humans; Male; Malnutrition - complications; Malnutrition - prevention & control; Mothers; Nervous System Diseases - complications; Nervous System Diseases - therapy; Nutrició; Nutrition; nutritional support; Nutritional Support - adverse effects; Ostomy; Outcome Assessment (Health Care) - methods; Parenteral Nutrition, Home - adverse effects; Patient Satisfaction; Psicometria; Psychometrics; Questionnaires; Satisfacció dels pacients; satisfaction; Spain; Studies; Surveys and Questionnaires; Spain
• ISSN: 0952-3871; 1365-277X
• DOI: 10.1111/jhn.12000

Background To analyse the psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA‐8) in parents/caregivers of children with home enteral nutrition (HEN) by gastrostomy tube (GT). Methods Eighty‐six caregivers (mothers) of paediatric patients with HEN by GT were recruited. Patients suffered from neurological disease (61.6%) and other chronic diseases. The SAGA‐8 scale, a structured questionnaire to explore satisfaction with HEN by GT, and the Caregiver Burden Inventory (Zarit) were completed. The discriminating power of each of the SAGA‐8 items, internal consistency and external validity were evaluated. An exploratory factor analysis and Kaiser–Meyer–Olkin (KMO) was performed as well. Results Eighty‐four percent of the families expressed high satisfaction with GT feeding. All eight items of SAGA‐8 gave additional information. The exploratory factor analysis revealed that a significant part of the items’ variability could be explained by two independent factors: Factor 1 (direct benefit), which compiled the variables related to the perception of children's overall improvement by GT feeding; Factor 2 (indirect benefit), which grouped the variables related to a decrease in respiratory infections, feeding time and institutional support. Results from KMO (0.628) indicated the high adequacy of the items assessed in the factorial analysis. Moreover, the questionnaire presented high internal consistency (0.76), and the external validation analysis confirmed the correlation between SAGA‐8 and Zarit, thereby emphasising the approptiate use of the SAGA‐8 to detect carers’ satisfaction. Conclusions The SAGA‐8 questionnaire has a high discriminatory power to assess the degree of satisfaction experienced by parents/caregivers of children with HEN by GT and, subsequently, the patients’ wellbeing.