The “A” of FAIR – As Open as Possible, as Closed as Necessary

• Published in: Data intelligence Vol. 2; no. 1-2; pp. 47 - 55
• Main Authors: Landi, Annalisa, Thompson, Mark, Giannuzzi, Viviana, Bonifazi, Fedele, Labastida, Ignasi, da Silva Santos, Luiz Olavo Bonino, Roos, Marco
• Format: Journal Article
• Language: English
• Published: One Rogers Street, Cambridge, MA 02142-1209, USA MIT Press 01.01.2020; MIT Press Journals, The
• Subjects: Accessibility; Accessibility of health data; Data sharing; ELSI; Ethics; FAIR metadata; GDPR; Information sharing; Metadata; Personal information; Privacy

In order to provide responsible access to health data by reconciling benefits of data sharing with privacy rights and ethical and regulatory requirements, Findable, Accessible, Interoperable and Reusable (FAIR) metadata should be developed. According to the H2020 Program Guidelines on FAIR Data, dat...