Initial Experience of a Hereditary Hemorrhagic Telangiectasia Center of Excellence

• Published in: Ear, nose, & throat journal Vol. 96; no. 6; pp. E33 - E36
• Main Authors: Thompson, Christopher F., Suh, Jeffrey D., McWilliams, Justin, Duckwiler, Gary, Wang, Marilene B.
• Format: Journal Article
• Language: English
• Published: Los Angeles, CA SAGE Publications 01.06.2017
• Subjects: Chicago; Comprehensive Health Care - methods; Comprehensive Health Care - organization & administration; Comprehensive Health Care - standards; Health Services Research; Humans; Quality Assurance, Health Care; Telangiectasia, Hereditary Hemorrhagic - diagnosis; Telangiectasia, Hereditary Hemorrhagic - therapy

Our objectives in reviewing the initial experience of a hereditary hemorrhagic telangiectasia center of excellence (HHT COE) were to better understand the interventions being performed in the comprehensive care of these patients and to present the early data as a reference for other tertiary centers...