How to implement medical and patient associations in low‐income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)

• Published in: Haemophilia : the official journal of the World Federation of Hemophilia Vol. 27; no. 2; pp. 261 - 269
• Main Authors: Sannié, Thomas, de Moerloose, Philippe, Albert, Brigitte, Anani, Ludovic, Arcé, Claire, Baglo, Tatiana Priscilla, Bahayde, Cheikh, Bollahi, Mohamed Abdallahi, Bouchez, Jean‐Michel, Castet, Sabine, Chami, Irene, Daviet, Bernard, Diallo, Abdou Ramane, Diallo, Maimouna, Dien, Maryse, Diop, Saliou, Dokekias, Alexis Elira, Duport, Gaetan, Duport, Jean‐François, Ehungu, Gini, Fashaho, Aloys, Feil, Mohamhed Wenne, Ferré, Norbert, Fondanesche, Christian, Giraud, Nicolas, Gruel, Yves, Gris, Jean‐Christophe, Guillou, Erwan, Haffar, Assad, Kafando, Eleonore, Kanyamunhunga, Aimable, Katendi, Guelor, Kinde, Dorothée, Kundabi, Gueth, du Laurent de la Barre, Michel, Marques‐Verdier, Alain Marques, Mekhuzla, Salomé, Michaud, Maguy, Mulindabyuma, Sylvestre, Ndahayo, James, Nébié, Yacouba, Ngoukoulou, Jean‐Paul, Pilorgé, Fabrice, Pouplard, Claire, de Poursac, Nicolas, Rakoto, Olivat Alson, Ryman, Anne, Romero‐Lux, Olivia, Sauvêtre, François, Sawadogo, Ghislaine, Schved, Jean‐François, Seromba, Emmanuel, Sow, Bouna, Sy‐Bah, Diariatou, Tardy, Brigitte, Ternisien, Catherine, Toulon, Pierre, Trossaert, Marc, Virenque, David, Weill, Alain, Zein, Ekhtel Benina, Zohoun, Alban, Zongo, Aristide, Zoungrana, Augustin
• Format: Journal Article
• Language: English
• Published: England Wiley Subscription Services, Inc 01.03.2021; Wiley
• Subjects: Africa; association; haemophilia; Hemophilia; Hemophilia A; Humans; Life Sciences; methodology; partnership; Patients; World Federation of Hemophilia; haemophilia; association; partnership; World Federation of Hemophilia; methodology; Africa

Introduction There is a lack of joint recommendations by healthcare professionals (HCP) and patient organizations when a partnership between high and low‐income countries in the field of haemophilia is planned. Aim To draft recommendations to clarify the methodology when a partnership between low‐ a...