Disability and quality of life in hereditary ataxias: a self-administered postal questionnaire

• Published in: International disability studies Vol. 9; no. 1; p. 10
• Main Authors: D'Ambrosio, R, Leone, M, Rosso, M G, Mittino, D, Brignolio, F
• Format: Journal Article
• Language: English
• Published: Switzerland 1987
• Subjects: Activities of Daily Living; Adolescent; Adult; Child; Disabled Persons; Female; Friedreich Ataxia - genetics; Friedreich Ataxia - physiopathology; Friedreich Ataxia - psychology; Gait; Humans; Italy; Male; Middle Aged; Postal Service; Prognosis; Quality of Life; Self Disclosure; Social Support; Surveys and Questionnaires; Italy

A postal questionnaire was sent to 151 patients affected by Friedreich's disease (FD) and other hereditary ataxias (OHA) to study their disability and quality of life. A 79.5% response rate was obtained. A scoring system based on disability in walking, dressing, personal care, eating and speaki...