Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States

• Published in: AJOB empirical bioethics Vol. 12; no. 3; p. 164
• Main Authors: Blacksher, Erika, Hiratsuka, Vanessa Y, Blanchard, Jessica W, Lund, Justin R, Reedy, Justin, Beans, Julie A, Saunkeah, Bobby, Peercy, Micheal, Byars, Christie, Yracheta, Joseph, Tsosie, Krystal S, O'Leary, Marcia, Ducheneaux, Guthrie, Spicer, Paul G
• Format: Journal Article
• Language: English
• Published: United States 03.07.2021
• Subjects: Alaska Natives; American Indian or Alaska Native; Genomics; Humans; Leadership; United States; United States; Alaska Native; American Indian; ELSI; Genomics; deliberation; community engagement

This paper describes the design, implementation, and process outcomes from three public deliberations held in three tribal communities. Although increasingly used around the globe to address collective challenges, our study is among the first to adapt public deliberation for use with exclusively Ind...